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This topic has been moved to Medical Questions.     next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » General Support » Migraines

   
Author Topic: Migraines
SLH516
LymeNet Contributor
Member # 48060

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I'M SO SICK OF MY MIGRAINES!!!

There's only so many times I can say that to "outsiders," but the migraines are freakin' DAILY (and have been for over a year), and I just have to effing SCREAM sometimes, but I don't want to chase everyone away.

So I'm screaming right now. Silently and online (I have roommates), but still screaming. :-(

[ 05-27-2016, 03:53 PM: Message edited by: Lymetoo ]

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Nula
LymeNet Contributor
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So sorry, SLH516! You migraines might be Babesia-related. Babesia is known to cause brutal headaches (I've had them and still get them from time to time).

The only thing that's been helping mildly is using a peppermint oil roll-on on my forehead.

Where do you get your migraines? Front? Back? Whole head? Are there other symptoms that usually go along with them?

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I appreciate all your replies. If it takes me a while to respond, it is either because I'm too sick or because I am unable to log in. From European servers, Lymenet is very frequently inaccessible for days at a time ...

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dogmom2
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sorry to hear you're dealing with this, they're so awful.

The only thing I've tried that helps me is advil and valium together. I've tried the stronger stuff(pain meds, imitrex, cbd capsules, various other herbs) and it didn't help.

Mine are one -sided(always the right side) and usually progress to being sick and spending many hours on the bathroom floor.

But the meds have made them more tolerable for me, took me about 15 years to find something that helped.

I hope you find something that helps you.

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SLH516
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Member # 48060

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The headaches are bilateral, at the temples and across the top of my head. No face, nothing indicating trigeminal nerve so I'm guessing peppermint oil wouldn't help. One neurologist wants me to do a temporal artery biopsy. I saw someone say they had a negative CT/MRI/MRA (can't remember which) so that meant they didn't have temporal arteritis -- I didn't think it could be diagnosed that way. I've had all three, and they were completely negative for anything.

Other symptoms with migraines -- almost always light sensitivity, frequently nausea, infrequent vomiting. In over a year I haven't been able to identify any pattern or any triggers. Over the past couple of weeks my neck/base of skull have started hurting -- I used to occasionally get tension headaches in that general area, but ibuprofen always resolved those, and it has no effect on these. My TMJ (the actual joint, not the syndrome) has gotten really stiff and sore, and I can't open my mouth all the way without it hurting. My teeth hurt sometimes, too. (Sorry for writing a novel here, Nula!)

Propranolol helped bring the severity down so that I'm able to be up and around for at least part of each day. A combination of Benadryl/ibuprofen used to help if they weren't too severe, but this past week they've been severe enough that that hasn't helped. I've tried everything else that western med has offered pain-wise (neither my pain doc nor PCP will give me narcotics of any sort, even for "emergencies," i.e. a migraine that's going to send me to the ER).

Totally off topic -- dogmom2, what kind of dogs do you have? I love dogs but can't have them where I live, so I live totally vicariously through other dog moms! <chuckle>

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Lymetoo
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Moving to Medical Questions

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--Lymetutu--
Opinions, not medical advice!

Posts: 94842 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
   

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