posted
Mine got triggered from 24 hours of exposure to chemicals that burned in a fire next door. Suddenly I couldn't touch materials anymore without reacting with hives. I have very little clothing material I can touch.
So just trying to figure this out physiologically - the liver has to process toxins, so I'm guessing it got overwhelmed. Toxins also get stored in fat tissue.
So then I would think that more people would get sick like this after exposure to chemicals. Any more info on this happening?
Btw, foods don't seem to affect me.
Posts: 13155 | From San Francisco | Registered: May 2006
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posted
I know they talk a lot about livers being overloaded on the Salicylate group. Everyone there is chemically sensitive.
You are SO fortunate to be able to eat what you want. My limitations are life-changing.
I was also exposed to chemicals from a fire across the street a few years ago. I was only outside maybe 5 minutes. When I came inside I shut off our air-conditioner. So I hope not too much damage was done.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96238 | From Texas | Registered: Feb 2001
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posted
I have never had any type of allergies or sensitivities, had some on and off histamine issues with the lyme and co-infections which turned into MCAD a few months ago.
Its pretty horrible and discouraging.
Thanks for all of the links and helpful information!
-------------------- unsure445 Posts: 824 | From northeast | Registered: Jun 2008
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posted
I think so, AK. I need to read it again. I used to take it, but stopped when the people on the Mag group said not to take it unless you get all the testing. I know one test showed that I was low in D3.
unsure .. I used to have allergies and got shots, but really was not bothered by them in later years ... at least not severely. Now this.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96238 | From Texas | Registered: Feb 2001
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posted
A very stressful series of events all in one week .. which was preceded by nearly two years of eating basically a paleo diet which was high in oxalates and salicylates.
Now I can't handle either group of foods .. plus anything high in histamine.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96238 | From Texas | Registered: Feb 2001
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posted
MCAS is "the non-neoplastic cousin of the rare hematologic disease mastocytosis, mast cell (MC) activation syndrome-suspected to be of greatly heterogeneous, complex acquired clonality in many cases-is a potential underlying/unifying explanation for a diverse assortment of inflammatory ailments. Via - Dr. Afrin "
posted
It happens!! What do you know about this particular lab? Are they used to doing this for the doctor? Did you keep it refrigerated the entire time? Did you transport it on ice?
I didn't know until later than even refrigerating each cup full and THEN adding it to the jug is a good thing to do.
Then .. Did the LAB keep it refrigerated and SHIP it on ice?
Have you looked at salicylate sensitivity also?
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96238 | From Texas | Registered: Feb 2001
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aklnwlf
Frequent Contributor (5K+ posts)
Member # 5960
posted
I'm on Xyzal twice a day too! On top of everything else I'm taking. When I first started I did just half a pill because it made me so tired. Now look at me.....taking two a day!
-------------------- Do not take this as medical advice. This comment is based on opinion and personal experience only.
Alaska Lone Wolf Posts: 6525 | From Columbus, GA | Registered: Jul 2004
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This is so not fun! I am not an over the counter medicine person at all, rarely take Advil or Tylenol etc... and I now down antihistamines like they are candy...
Hoping my immunologist has more tricks up his sleeve.
How are you doing these days? Are you pretty stable or up and down with symptoms?
-------------------- unsure445 Posts: 824 | From northeast | Registered: Jun 2008
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posted
Sorry to ask what seems like a dumb question, but what is the Lyme connection here?
I have a friend who I suspect has Lyme disease, but she also has MCAS. Do people frequently have both?
Posts: 4 | From Massachusetts | Registered: Feb 2018
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Dr. Maria Castells of Brigham & Women's Hospital lectures on mast cell activation syndrome at the CSF Greater Metropolitan Washington Area Chapter meeting on March 19, 2014. Watch to learn more about how mast cell proliferation can cause gastrointestinal issues, allergies, etc. and how physicians assess and manage those affected.
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