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» LymeNet Flash » Questions and Discussion » General Support » Morgellons in News AGAIN!

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Author Topic: Morgellons in News AGAIN!
Tincup
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Another excellent Morgellons scientific article! Three thumbs up for the authors and for those suffering from this nasty symptom of Lyme disease.

Press Release- announcing article and findings.

http://www.prweb.com/releases/2016/10/prweb13748660.htm#

You can download the full article from here.

https://www.dovepress.com/articles.php?article_id=29451

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www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

Posts: 20324 | From The Moon | Registered: Jun 2004  |  IP: Logged | Report this post to a Moderator
TX Lyme Mom
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Hooray! Just in time for presentation at ILADS early next month.

You're really on your toes, Tinny. This hasn't even been posted in our TxLyme Yahoo group yet, and Cindy Casey-Holman, RN, who is the founding director of the CEHF Morgellon's group, is a member of our TxLyme Yahoo forum so we usually are the very first group to hear this kind of exciting news.

You must be very well connected to receive this news items while it's still "hot off the press." Thanks for sharing.

PS -- I'm editing to add that when their last major paper came out in 2014, I had the opportunity to visit with the lead author in person at the Morgellon's Conf. which is held in Austin, TX each year. What stuck in my mind the best was an off-hand remark that it's as if the skin cells are creating an internal scab just below the surface of the exterior layer of the skin as a reaction to irritation there and then that scab simply continues to grow until it projects out through the exterior layer of the skin.

I hope I'm quoting the gist of what I recall hearing her say accurately, but that's the distinct impression of her explanation that I came away with -- a scab-like extrusion that sometimes (but not always) projects through the skin. (I can't remember the precise names for these different layers of skin cells.)

Or it might have been Eva Sapi who made that remark when she was Skyped in for her presentation, instead of having been stated by Middleveen herself. Yes, I think it was Sapi who gave that explanation, upon my best recollection, because I had posed a follow-up question to her via Skype during the Q&A period following Sapi's presentation at that meeting.

This explanation certainly made such good sense to me, in light of the intense itching and burning pains described by victims of this horribly irritating disease process. That's why it impressed me so vividly because I had had a lot of trouble comprehending what they meant until Eva Sapi put it into those simpler terms.

The fibers are almost invisible to the naked eye without a lighted magnifying glass, so it's no wonder that doctors who don't bother to examine the skin under proper lighting and magnification call these patients "delusional" and then go on to label the disease itself by the pejorative term of "delusional parasitosis."

Pox on those imposter dermatologists who then dare to refer their defenseless patients to see a shrink, thereby adding insult to injury. May they all itch in their own graves throughout all eternity!

[ 10-18-2016, 09:19 PM: Message edited by: TX Lyme Mom ]

Posts: 4560 | From TX | Registered: Sep 2002  |  IP: Logged | Report this post to a Moderator
Tincup
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Laughing, TX Lyme Mom, as I say this about Cindy ...

She likes me best!

[lol]

Actually I saw this on a doctor's forum. I just love it when the Morgellons people can get help with the science behind this awful disease.

Funny story (or fond memory)- when I first met her (one of the early Lyme conferences- their first time there) I went up to their table and said something like- "Man, you Morgellons people are so weird, you must be crazy... blah blah blah."

The one poor dear behind the table looked horrified and didn't know what to say. Of course, I was teasing them and later that weekend got to talk with Cindy in depth. At that time few if any Lyme patients/doctors knew or could prove Morgellons was connected to Lyme and most Lyme patients considered them crazy too.

I really liked Cindy and told her I was going to be friends with the Morgellons community since they were the only people I knew who were crazier than Lyme patients (according to the IDSA/CDC) and they actually made us look good. HA!

I began writing about the illness and posting as if we (Lyme patients) weren't ashamed of our red-headed Morgellons step children who were trying to make themselves appear "normal". And what do you know... years later they finally made the connection thru the science!

We've stayed in contact over the years and I enjoy her and her successes, very much so. She is a wonderful advocate. And she puts up with me!

And yes, I am very happy to see the science continuing to be published. Very happy!

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Muscle Car55
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Great info Tincup, it's like everything the CDC has covered from AIDs, to Lyme, to Morgellons has all been a lie...

Some will say it's just incompetence, I just think it's all part of their depopulation program to just ignore those who are sick. As well as not having to make health insurance companies pay for the bill.

Coast to Coast AM did a great special on the link between Lyme and Morgellons. http://www.coasttocoastam.com/shows/2009/04/14/

There's also been an assocation with red rain...
http://www.coasttocoastam.com/article/red-rain-morgellons-photos/

Weird stuff...

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TX Lyme Mom
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A new book on Morgellons is due out very soon, but it is not listed on Amazon yet. Here's a link to the pre-announcement about it on FaceBook:
https://www.facebook.com/MorgellonsBook

The book is authored by the ILADS Nurse Practitioner who has treated more Morgellon's patients than all other ILADS practitioners combined. She earned her PhD based on her original research project studying Morgellon's in her clinical practice as an NP.

I'm told that if you "like" this webpage, then you will receive notification just as soon as the book is released. I've also been told that the release date is scheduled prior to this year's ILADS Conf. to be held in early November.

Believe it or not, our daughter had those tiny little fibers coming out of her skin which she could see with her x-ray vision eyes back when she was about age 19 or 20. Luckily, she sun-burned the heck out of herself all summer long while living on a lake in West Texas -- the same lake where she had gotten her tick bite more than a decade earlier!

This was long before Lyme disease was widely known outside of Old Lyme, CT. It never dawned on either of us that she, too, had been a Morgellon's patient at an earlier time in her life until I heard one of the speakers at the 2015 Morgellon's conference held in Austin, TX that year.

It was all I could do not to jump out of my seat and shout out loud about it when the speaker described the symptoms and all of the science behind it. Until then, it had seemed like a rare disease that happened only to other people.

I didn't realize how lucky she was that she got over it decades before there was any official recognition of it because most MD patients are not that lucky. They suffer enormously from it for many years, and there is a high rate of relapse even after what seems to be a successful remission.

What's so exciting about the newest journal article published just a couple of weeks ago is that Middelveen and Stricker's original study from 2015 has been replicated in four different laboratories around the world.

Furthermore, all of these research efforts has been privately funded by sick patients and often by the researchers themselves because there are no federal research funds or grants available for "diseases which do not exist."

Also, there is a documentary in the works by a Hollywood producer that will rival the two part series, Under Our Skin. The new documentary will be called "Skin Deep" and a trailer for it is already available on-line somewhere. (Google it. I've lost the link to it.)

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Tincup
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Lots of great info MuscleCar and TX. And TX- so sorry your daughter had these problems too.

I really love the fact people like you two care and are pushing for and supporting the folks with this nasty presentation.

Thanks so much!

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www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

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Tincup
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Got laughing just now. You are right. The CDC, et al do not have our best interests at heart. Not even close.

Reminds me of the movie Sister Act when Sister Mary Lazarus says...

"We can't leave it up to the feds!"

[lol]

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TX Lyme Mom
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Tinny,
Just for the sake of your curiosity, I'll bet you didn't know that the reason that Marianne Middelveen started her work researching Morgellon's disease is that her niece had it. They are in Canada where it is much harder to get a Lyme diagnosis or treatment than it is here in the US.

What really impressed me is that Middelveen stated that she had spent tens of thousands of dollars of her own money to fund her research, paying for all of the lab testing out-of-pocket herself.

She explained further that her house and her car are paid for and that she doesn't have any children of her own, and that this Morgellon's research project is her "baby." Now, that's real dedication, don't-cha think?

Tinny, you also said that Cindy loves you more (than me). I say: No, she doesn't -- 'cause I gave her more money towards filming their up-coming documentary than you did, I'll bet. Just kidding.

I'm not kidding about the fact that their group needs donations to complete the filming of their planned documentary, "Skin Deep." Here's where to send donations to MD research and such projects as this public education documentary:

Yikes, gotta' reboot my computer 'cause it won't let me post that link. Back soon to edit this message and add the missing link, but I'm gonna' post this much now anyway so I won't lose what I've already written.

PS -- Here's the missing link for donations:
http://www.thecehf.org/

PPS -- Here's another special link to their webpage where you can order one of the cheapie little $10 lighted microscopes which are great to carry with you when going to see your doctor so that you can insist that s/he examine those almost invisible little fibers coming out of your skin:
http://www.thecehf.org/cehf-merchandise.html

Interestingly enough, Morgellon's patients used to go to Toys-R-Us to buy $15 plastic toy microscopes to visualize their skin eruptions, but these Chinese imports are pocket-sized and more convenient to carry with you and they are much better in quality than those silly toy microscopes.

[ 10-20-2016, 02:17 PM: Message edited by: TX Lyme Mom ]

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TX Lyme Mom
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Hello again,
I should have created a new message, instead of editing my previous one, considering that it's been over 8 hrs. since I first posted that message earlier this morning.

Please review the PS addenda to my message above if you skimmed past it, thinking that you had already read that message. I promise that it's worth taking the extra time to do so.

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Tincup
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Have read with great interest. Back after the weekend to respond. Tied up and brain dead right now.

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ukcarry
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I read about this latest research and am delghted that studies such as these are being publshed to stand against the humiliating, dangerous and inaccurate (in most cases) diagnoses that people exhibiting these symptoms typically get from the medical profession.

There is a section on Morgellons in Stephen Buhner's 2015 revised and updated Healing Lyme that discusses some of these researchers' earlier research.

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WakeUp
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quote:
Originally posted by Muscle Car55:
Great info Tincup, it's like everything the CDC has covered from AIDs, to Lyme, to Morgellons has all been a lie...

Some will say it's just incompetence, I just think it's all part of their depopulation program to just ignore those who are sick. As well as not having to make health insurance companies pay for the bill.

Coast to Coast AM did a great special on the link between Lyme and Morgellons. http://www.coasttocoastam.com/shows/2009/04/14/

There's also been an assocation with red rain...
http://www.coasttocoastam.com/article/red-rain-morgellons-photos/

Weird stuff...

Agreed--- it is part of some sort of biological warfare testing program being directed against the public.

This is why it is being covered up and denied by the authorities --- in the most aggressive way, by blaming the victims.

I know its hard to believe, but the same people who are doing this evil own or control the mainstream media as well as the AMA, CDC, FDA and NIH, and this is why we have seen no adequate reporting over the years on Lyme, and now on Morgellons-- and it is also why victims have been dismissed as crazy-- because discrediting people in the media is an easy way to shut them up-- as long as people trust the media. Luckily trust has been reduced lately as people have woken up to the fact that the MSM is basically propaganda.

Central control of the media at the "top" is also why the mainstream media was so coordinated in their condemnation of Trump, whether you like the guy or not.

Its clear that the powers that be wanted Hillary as the candidate. She was their NWO candidate. Its interesting how psychopaths always blame the victims of their evil, thus compounding the level of evil.

The bible tells we, the victims, to PRAY for our enemies, but also to expose works of darkness. This is the most difficult thing I have ever been asked to do, since the damage to my health and life has been so severe. Its very hard to pray for the perpetrators.

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