posted
I've been seeing quite a few posts on Facebook about this Alzheimer research group or that clinical trial for prevention of Alzheimer's
I have been posting on almost every one that Lyme Disease should be tested for and then putting in a link or two about Kristopherson's misdiagnosis of Alzheimer's which was actually Lyme Disease.
Don't know if it will do much good, but perhaps someone will actually do some research.
-------------------- I still have a good time wherever I go! Posts: 138 | From Lost Wages | Registered: Oct 2016
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Thank you for doing that. What you are doing really matters. For anyone with energy and access to which ever reply options there are, please continue. The ILADS.org and LymeDisease.org links are also very important - or at least the names of these key groups to find the right detail.
Too many think the CDC will have what they need and just stop there.
As to "someone doing research" Alan MacDonald's work is stunning in this connection.
Oh, I see now you were talking about readers / individuals doing their own personal research to find the real information. The best source to date:
I am hospital pathologist by trade and my world is microscopic images. . . . -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- I don't post in other places, have zero social media access to do so. So, for others who do, if it is workable, I hope these links will help. Sometimes, though, just the name of the organization can be posted in the reply sections as links won't go through. That's still vital, though.
Sometimes, with the www. omitted, the main part of the address with the .org (or whichever it is) might post. That might speed the reader along if they know that much.
Some top informational sources to consider including in any postings:
posted
I was on Namenda, an alzheimer's drug, for the cognitive problems I had when my lyme was the worst. Fast forward a few years and I had to get a new neurologist. She didn't think I needed the namenda anymore so she gave me a standardized memory test. I passed, so no more namenda. I am a lot better than when I started on it. My memory isn't 100%, but it's around 90% which is pretty good.
Posts: 607 | From (deer tick)Heaven! Angeles National Forest | Registered: Oct 2000
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Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177
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