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» LymeNet Flash » Questions and Discussion » General Support » VOX - Lyme article Update. Sigh.

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Author Topic: VOX - Lyme article Update. Sigh.
Keebler
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Sigh. A very hard line here basically says chronic lyme does not exist & no proving tests and treatment unwarranted.

Might have well have been written by the IDSA.

I'm sure I emailed her key links to top organizations and even an article on persistent borrelia being found in tests. Sadly, she's sticking with the IDSA.

She might write that "chronic lyme" is contested yet in the end - it's the IDSA / CDC who are really speaking here.


https://www.vox.com/2018/5/2/17303516/lyme-disease-symptoms-treatment-test

Lyme, the tick-borne disease that’s spreading fast, explained
Summer is the season for Lyme. Here’s how to protect yourself.

By Julia Belluz - VOX - Updated May 29, 2018

---------------------------------------
Original post / link

Here we go. Start of the mass market press partly good, part lies about lyme, etc. Typical IDSA / CDC sources.

I thought VOX would do a better job than most but they don't.

Some good detail but the myths and lies still abound. The "tick needs to be attached 36 hours" dangerous myth as well as total dismissal of chronic lyme. There is some discussion of it but, in the end, she goes with the "facts" of the IDSA / CDC.

This is a problem when journalists believe only a few sources and may mention the other aspects yet then go along and dismiss them. There IS evidence of chronic lyme but the author did not do her own homework on that.

Babesia - well, my eyes did not see it listed with some of the other coinfections. Yet some good detail and quote by Dr. H on why coinfections matter. The fact that the author did read something from Dr. H is good but sure wish she could have gone to actually talk with him.

Lacking is the author's understanding of lyme treatment. She likely has no idea how complex it should be and that most people never get proper treatment at all but then are dismissed as "having been treated".

This is likely because there is no way to know that her sources are not telling the full truth. She likely has not even been able to learn about ILADS and how treatment might be most appropriate.

She never mentions that most doctors are very ignorant about lyme / TBD or that most doctors just don't treat it correctly - at all. Or that most doctors will dismiss even its existence in their state. Seriously. This happens more than anyone might think.

I'm hoping the author might come here to see the links below to learn more. I wish all journalists would learn from the doctors who are really doing the work and not rely upon the CDC / IDSA / NIH.

No way to post comments yet the author's email is listed by her name here:

https://www.vox.com/2018/5/2/17303516/lyme-disease-symptoms-treatment-test

Lyme, the tick-borne disease that’s spreading fast, explained

Summer is the season for Lyme. Here’s how to protect yourself.

By Julia Belluz - VOX - May 2, 2018


. . . Though they can’t jump . . . .

[some ticks can leap, actually]

. . . (In most cases, the tick needs to be attached to the skin for more than 36 hours before the bacteria can be transmitted.)

[Not true]

MAP Reported cases of Lyme disease in 2016.

[There are likely hundreds, or thousands of cases that go unreported in states where patients are told "no lyme here"

so this map may give the wrong impression of someone's risks in certain areas. As long as birds fly, ticks can travel and get dropped off where ever they might go.]
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[ 05-29-2018, 04:14 PM: Message edited by: Keebler ]

Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
Keebler
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http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4278789/#b19-ijgm-8-001

Int J Gen Med. 2015; 8: 1–8.

Lyme borreliosis: a review of data on transmission time after tick attachment

Michael J Cook - 2014 Dec 19

Excerpt:

. . . Mechanisms for early transmission of spirochetes have been proposed based on their presence in different organs of the tick.

Studies have found systemic infection and the presence of spirochetes in the tick salivary glands prior to feeding, which could result in cases of rapid transmission.

Also, there is evidence that spirochete transmission times and virulence depend upon the tick and Borrelia species.

These factors support anecdotal evidence that Borrelia infection can occur in humans within a short time after tick attachment. . . .

[Full article at link above]
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Keebler
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https://sites.google.com/site/virginialyme/ticks/how-long-to-transmit

Bite Transmission time for Bb and other TBD


https://sites.google.com/site/marylandlyme/

Maryland Lyme - excellent links here
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[ 05-02-2018, 05:59 PM: Message edited by: Keebler ]

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Keebler
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To share wherever & with whomever you wish. Please free free to copy & paste - and add your own links - all over the place.

BASIC LYME & TBD* LINKS

[* TBD = Tick Borne Disease, of which there are many]


For anyone new to lyme or other tick-borne disease, these are among the top patient education, advocacy and public awareness organizations. What patients call a "LLMD" a lyme literate medical doctor and why that matters so much.

First, never let anyone tell you that there is "no lyme" in any particular region or state - or that only one type of tick can transmit lyme - or that a tick must be attached only a certain number of hours to transmit disease. None of those myths are true. Get the facts.


http://www.ilads.org

ILADS - International Lyme & Associated Diseases Society

&

http://www.ilads.org/education/physician-training.php

ILADS Physician Training Program


https://www.lymedisease.org/

Lyme Disease.org - a top patient education organization


http://www.lymediseaseassociation.org

Lyme Disease ASSOCIATION


https://globallymealliance.org/

Global Lyme Alliance
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Keebler
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http://underourskin.com/

UNDER OUR SKIN & EMERGENCE Documentary set.
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Keebler
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I hope others will post LINKS TO HELP JOURNALISTS

Maybe this can become a resource thread for them.
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Keebler
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https://www.lymedisease.org/infection-persistent-lyme/

Infection found in treated patients with persistent Lyme symptoms

News from LymeDisease.org - April 17, 2018


& that article links to original source:

http://www.mdpi.com/2227-9032/6/2/33/htm

Persistent Borrelia Infection in Patients with Ongoing Symptoms of Lyme Disease

Marianne J. Middelveen 1, Eva Sapi 2Orcid, Jennie Burke 3, Katherine R. Filush 2, Agustin Franco 4, Melissa C. Fesler 5 and Raphael B. Stricker 5,*Orcid

Published: 14 April 2018

Abstract & Full Article

Excerpt from abstract:

. . . Results: Motile spirochetes identified histopathologically as Borrelia were detected in culture specimens, and these spirochetes were genetically identified as Borrelia burgdorferi by three distinct polymerase chain reaction (PCR)-based approaches.

Spirochetes identified as Borrelia burgdorferi were cultured from the blood of seven subjects, from the genital secretions of ten subjects, and from a skin lesion of one subject.

Cultures from control subjects without Lyme disease were negative for Borrelia using these methods.

Conclusions: Using multiple corroborative detection methods, we showed that patients with persistent Lyme disease symptoms may have ongoing spirochetal infection despite antibiotic treatment, similar to findings in non-human primates.

The optimal treatment for persistent Borrelia infection remains to be determined.
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Keebler
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Bumping up. See today's VOX article link, updated. In top post of this thread, with the original article on May 2.

On the same date as the first article went out, just checked my email history to see that I did send her the major links from article / organizations posted here. I got no reply. And, sadly, she disregarded the detail in my email to her.
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Bartenderbonnie
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Ah, the CDC's tentacles are far reaching.

Thanks for trying though Keebler. [Smile]

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Neko
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These articles are so disappointing.

And for the people who have chronic Lyme symptoms...their doctors test them for Lyme and it’s negative.

But they never even test for coinfections, which is probably the biggest problem.

Think of all the people who might not have Lyme but have a cocktail of bartonella, babesiosis, anaplasmodis, etc.

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