randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
I had been on diovan, which is valsartan, for years. been back in er due to blood pressure. when they asked what I was taking or had been taken, i said currently benicar and previously diovan.
the er doc told me, and said I didn't tell you, but you should always ask where your medications are made.
he said he would never take any meds made overseas and would not give them to his family.
well I took my prescription to the pharmacy and said I wanted the american made. the guy told me nope, your insurance says you have to take generic or they don't pay. he then says you know most all generics are made overseas and are not the same no matter what they tell you. but I didn't say that.
so people in the medical field know all this, are having us take inferior drugs,some of which they now are saying have dangerous drugs in them, and we can't do anything.
this sucks....
and I'm having so many side effects from benicar I'm sicker than a dog. so back to dr tomorrow for another change. same dr who tried norvasc, diuretics, lisinpril,and hydrexaline.
wish they'd get their act together. these er visits are bankrupting me.....
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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posted
I wish randibear was actually back with us.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96238 | From Texas | Registered: Feb 2001
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Rumigirl
Frequent Contributor (1K+ posts)
Member # 15091
posted
quote:Originally posted by Lymetoo: I wish randibear was actually back with us.
Yup. It's really too bad no one knows how to reach her. You know it's not good when people disappear from LN. Unless you know they got better, which was not the case with her, sadly.
Posts: 3792 | From around | Registered: Mar 2008
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posted
Miss all the old timers also. They had some great information and support. I think if we all get together like they do for breast cancer and have a nationwide walk the old timers i'm sure would be involved in that. That is the only way we will get nationwide recognition and funds. I think the Lyme Gala raised a couple million. The breast cancer walk raises much more. We need to get out there as one force across the nation and keep up with it.
Posts: 554 | From southern new jersey | Registered: May 2003
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posted
Good idea...however, I would give out before I even got there. I think many others are also very low in energy, and with other problems.
I thought that there would be a time when the CDC, AMA, NIH and insurance companies would have so many family members sick that they would be forced to focus on Lyme Disease.
I have been waiting for more than 50 years. (I could well be the first one bit by an infected tick.)
Posts: 556 | From New Mexico, USA | Registered: May 2007
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I believe I contracted Lyme disease in either 1958 or 1959.
It just wasn't identified at that time.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96238 | From Texas | Registered: Feb 2001
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Rumigirl
Frequent Contributor (1K+ posts)
Member # 15091
posted
quote:Originally posted by Lymetoo: daisys
I believe I contracted Lyme disease in either 1958 or 1959.
It just wasn't identified at that time.
Yes, I, too, believe that I got TBDs either in utero, or from when I was very little, which was way before anyone knew about Lyme.
We always vacationed at Montauk, Long Island, at the beach. We walked through the dunes to get to the beach, and got tons of ticks on us for many, many years. We burned them off with a match---no one knew that wasn't a good idea. I vacationed there still as a young adult.
Montauk, like CT, was ground zero for TBDs. It's right near Plum Island. Of course, no one knew about any of this, aside from the people who worked there.
Posts: 3792 | From around | Registered: Mar 2008
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Like you probably have had, I've had over 100 tick bites in my lifetime. We went to our cabin in Texas 2-3 times a month and usually got ticks on us each time we were there.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96238 | From Texas | Registered: Feb 2001
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Rumigirl
Frequent Contributor (1K+ posts)
Member # 15091
posted
Arghhh!! Yeah, challenging to adequately treat after decades of tick bites before anyone knew anything. I had weird symptoms as a kid that I now recognize looking back.
At about age 8 or so, I had "bursitis" in my feet so bad I couldn't walk, so I crawled, but then got it so bad in my knees I couldn't crawl! What 8-year old has bursitis like this?? Sigh.
There's a lot of us who had so many tick bites going way back. Remember Wild Condor? Her tick bites may have been as a young adult, but tons of bites.
On another note: I just found out the other day that the husband of someone on a well-known forum for Lyme doctors, etc. just died of neurological TBDs---leaving behind her and her two daughters. He was a psychiatrist. But he was diagnosed too late. Awful.
Posts: 3792 | From around | Registered: Mar 2008
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Yes, I remember having terrible leg cramps and pains that they said was "growing pains." I was very young also.
I think I got lyme when I was about 8. That was the first year we went to the cabin. My brother and I ran around in the woods and came back with more than a 100 seed ticks on our legs.
Day 1.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96238 | From Texas | Registered: Feb 2001
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Rumigirl
Frequent Contributor (1K+ posts)
Member # 15091
posted
Arghh, Lymetoo!! It's a wonder that you have been able to improve so much. And the same for many others.
I just need a break from all the bumps in the road that keep knocking me off treatment. Ha, like many I could use a fairy Godmother! Somehow I'll prevail.
Posts: 3792 | From around | Registered: Mar 2008
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posted
Well, my bad, I can't believe I wrote that I was maybe the first one to be bit by an infected tick. What?
I grew up in Colorado where Rocky Mountain Spotted Fever has been a threat for a long time. Ticks are plain filthy--they collect junky stuff from each host they latch onto.
Now, I can't remember exactly what I meant to say (fancy that) but, I appreciate this forum for it's support and the opportunity to share experiences and information.
This is the place for rants and raves too. :-) We can all take it, because we've been there, and understand.
Posts: 556 | From New Mexico, USA | Registered: May 2007
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