Honored Contributor (10K+ posts)
Member # 5829
My letter to IDSA/ACR/AAN Guideline Panel- the latest one- included this comment, amongst others.
QUOTE- "At this time I am formally requesting the IDSA/ ACR/ AAN patient representatives and the additional parent with a child with Lyme disease be identified for the public (ask them for the information), along with their experiences in dealing with Lyme and tick borne diseases, and the level of their education regarding Lyme and tick borne diseases.
We also want to know if they have been through any process to check for conflicts of interest, if they have published or worked with, or are related to any of the panel members and if they will be morally and legally responsible for the recommendations they helped to develop."
This is their collective response to that section of my letter...
"Regarding the other questions and statements posed in your last communication, all comments regarding the content of the draft guideline will be considered via the public comment process, and any responses that the panel decides to make will be reflected in the final guideline."
ACTION- If you think it is important to know who is representing YOU and all of us on the Lyme disease guideline panel, please write to the IDSA through their public comment page (or by the email provided there at the bottom) and tell them WE WANT TO KNOW!
The more comments they get asking this question, the more pressure on them to respond.
Deadline for comments is approaching, so please get 'er done!