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» LymeNet Flash » Questions and Discussion » General Support » Dancing with Lyme disease -or coping with chronic state

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Author Topic: Dancing with Lyme disease -or coping with chronic state
Ann-Ohio
LymeNet Contributor
Member # 44364

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How you feel when coping with flare-ups of Lyme disease - very vivid accounts of experiencing several different tick-borne disease symptoms when they hit again.

https://www.elephantjournal.com/2020/07/dancing-with-lyme-disease-a-story-of-ebb-flow-and-coming-back-to-life/?fbclid=IwAR33kK-BBHjlOQtwbhbbhO_Y0T_2IgURXcTy-akEpZwanSuuDLfEltJt5zI

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Ann-OH

Posts: 906 | From Ohio | Registered: Aug 2014  |  IP: Logged | Report this post to a Moderator
Ann-Ohio
LymeNet Contributor
Member # 44364

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Here is something I don't hear often enough: (split-up for easier reading)

"Lastly, to all the doctors and health practitioners recognising late-stage Lyme disease and supporting the patients afflicted with it,
whether through medical treatment or holistic therapies,

there are no words to describe my respect for and appreciation and admiration of you.

You are the foundation and the core of treating, supporting, and caring for those with this disease.

Thank you for seeing us, hearing us, validating us, and acknowledging us.

Thank you for increasing the quality of our health and our lives. Thank you for helping our bodies heal."

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Ann-OH

Posts: 906 | From Ohio | Registered: Aug 2014  |  IP: Logged | Report this post to a Moderator
daisys
LymeNet Contributor
Member # 11802

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That's for sure. The LLMD who saved my life was investigated within the last 6 years, with his license at risk. How many doctors are committed enough to risk their career to treat such a complicated disease?

As for the dance, when I feel good, I think it's going to last. When I feel bad, I think it's going to last.

Either way of thinking is negative. I either get very disappointed at the next down turn, or I am very discouraged.

Over all, I am getting better, but still with ups and downs. It's a slow dance for me.

Posts: 401 | From New Mexico, USA | Registered: May 2007  |  IP: Logged | Report this post to a Moderator
aklnwlf
Frequent Contributor (1K+ posts)
Member # 5960

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[spinning smile] me dancing!

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Do not take this as medical advice. This comment is based on opinion and personal experience only.

Alaska Lone Wolf

Posts: 4870 | From Columbus, GA | Registered: Jul 2004  |  IP: Logged | Report this post to a Moderator
   

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