LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » General Support » Support Groups for Spouses?

 - UBBFriend: Email this page to someone!    
Author Topic: Support Groups for Spouses?
Ben Edwards
Junior Member
Member # 52355

Icon 1 posted      Profile for Ben Edwards     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hi. Just found this board. My spouse got bitten by a tick when she was 11. Her lyme was diagnosed 30 years after. She's in her mid-50s. I met her ten years ago. I've researched lyme many times over the years but it just occurred to me a few days ago that I never really understood how much she felt that it controlled her and how much pain she was in. How much she felt it caused her relationships to dwindle. Her relationships with her mother, kids, friends, and me. She's struggled to work and sometimes just to function.

I kept assuring her over the years that the relationships were fine but she kept pushing back. I've been as supportive as I could be and she's thanked me for that, and I think I've done a good job. We've done fun things and love each other, although COVID put a damper on activities.

Well, she left me recently to go home so she could find a cure on her own. Didn't leave for traditional reasons such as another man or general unhappiness, like you might find in a bad marriage, but because she felt so inadequate in all aspects of her life due to the lyme. She moved back in with her mother.

It came a shock and I'm devastated. We had a brief chat, after talking non-stop for 5 years, and she said she needed space to recover from the Lyme, which I will give her.

I'm looking for a SPOUSE support network. I'm not looking for a cure (everyone here knows that's hard) but for something like AlAnon for spouses. Do you know of one?

--------------------
Ben Edwards

Posts: 2 | From Washington DC | Registered: May 2021  |  IP: Logged | Report this post to a Moderator
hopingandpraying
Frequent Contributor (5K+ posts)
Member # 9256

Icon 1 posted      Profile for hopingandpraying     Send New Private Message       Edit/Delete Post   Reply With Quote 
So sorry about that. Lyme is devastating and takes a heavy toll on everyone!

I don't know about spouse support networks, but I would recommend you contact the DC Lyme Support Group - maybe they can help you or know of one.

www.natcaplyme.org

Posts: 8814 | From Illinois | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
Rumigirl
Frequent Contributor (1K+ posts)
Member # 15091

Icon 1 posted      Profile for Rumigirl     Send New Private Message       Edit/Delete Post   Reply With Quote 
Wow, that sounds like a complete shock for you!! I am so sorry to hear it. Lyme takes a terrible toll on everything, relationships included.

At our local Lyme support group, spouses or other family members, come for support, both with the person with Lyme, or independent of the person with Lyme. Spouses need support, too!!

Of course, since the pandemic, the group is virtual on Zoom. Frankly, that is easier, even though I might miss meeting in person.

I strongly urge you to take part. It also sounds as if you could use a therapist or counselor, especially someone who has experience with people with chronic illnesses.

It's too bad that she didn't let you know in time to get therapy/counseling help for the two of you. My heart goes out to both of you. There's a lot of pain involved with this awful illness complex. Don't give up. I hope that she may open up to you again after a while.

Posts: 3736 | From around | Registered: Mar 2008  |  IP: Logged | Report this post to a Moderator
Ann-Ohio
Frequent Contributor (1K+ posts)
Member # 44364

Icon 1 posted      Profile for Ann-Ohio     Send New Private Message       Edit/Delete Post   Reply With Quote 
You can reach Nat Cap Lyme here. [email protected]

https://natcaplyme.org/support-groups/#washington-dc

--------------------
Ann-OH

Posts: 1058 | From Ohio | Registered: Aug 2014  |  IP: Logged | Report this post to a Moderator
hiker53
Frequent Contributor (5K+ posts)
Member # 6046

Icon 1 posted      Profile for hiker53     Send New Private Message       Edit/Delete Post   Reply With Quote 
Ben, I will be praying!

--------------------
Hiker53

"God is light. In Him there is no
darkness." 1John 1:5

Posts: 6785 | From Illinois | Registered: Aug 2004  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.