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» LymeNet Flash » Questions and Discussion » Activism » Do you want Oprah to do a show on lLyme?

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Author Topic: Do you want Oprah to do a show on lLyme?
ellenluba
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Member # 1707

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PLEASE DISTRIBUTE:

Hi folks,
To listen to the entire show that Dr. Oz did on Lyme disease and Under Our Skin, click on http://www.zshare.net/audio/51988431783ad036/

At the end he asks for letters from us telling him if we had long term antibiotic treatment and were cured by it.

Well, he's still learning, so we need to educate him that even those of us who were not cured were helped by long term antibiotics. We need more research so we can have a cure.

This is a huge opportunity for us. With Dr. Oz's popularity, winning him over could be the tipping point for us. Please, please write to him so he gets an idea of how many chronic Lyme patients there are.
https://www.oprah.com/plugform.jsp?plugId=495&referer=

Thanks,
Ellen

[ 06. December 2008, 01:16 AM: Message edited by: ellenluba ]

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Posts: 819 | From New York, NY | Registered: Oct 2001  |  IP: Logged | Report this post to a Moderator
ellenluba
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To me the first rule of Lyme activism has always been, "when you're drowning and God sends you a rowboat GET INTO IT."

The trick is to recognize the rowboats..

Dr. Oz's interest in us is a whole ocean liner.

Please write.
Ellen

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eric555
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I did my part, I wrote and begged her to do a show on this horrible disease...

I hope this will not be too late for us who suffer with this daily...

[Smile]

Here is what I wrote...

Hello,

Please do a proper show on Lyme Disease and how it is slowly but surely killing millions of people in the United States daily.
The sad thing is that most doctors dont really know how to deal with it or properly treat it.
In fact they are more afraid of inaurance companies law suits against them instead of helping people.
Most insurance companies feel that a two or three week course of treatment is more than enough, while the clear facts show that people struggle with it daily for years until the symptoms may start to go away.
Still there is no cure and still noone really is doing much about it.
Most people don't even know they have it until its too late and by then they develop irreversable sicknesses which are Neurologic, Arthritic and many many others...
In all reality and based on most scientific reaearch to date, seems this is totally equivolant to the next AIDS epidemic.
People are internally being eaten by this deasese just like AIDS is doing.

Thank you Dearly,
Eric

Posts: 570 | From philadelphia, pa | Registered: Dec 2008  |  IP: Logged | Report this post to a Moderator
slappy2779
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Hey, been gone for a while. I hope this works, I tried getting people to write to the Oprah show about doing a show on Lyme this past summer. I really hope people write in now. I agree, this is the best way to get info out about Lyme Disease.

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C.D.C = "Country Doesn't Care"
Ticks are like Snipers, you don't know they're there, until you see the bullseye.

Posts: 86 | From Upstate New York | Registered: Jun 2007  |  IP: Logged | Report this post to a Moderator
slappy2779
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Here's what I sent:

I have been diagnosed with Chronic Lyme since 1993 probably had it since 1991. I was diagnosed with Lyme Menengitis. The doctor that finally diagnosed me with it in '93nsaid I had it for at least two years before I was diagnosed. My white blood cell count was over 200.

Within the past four years I have been in relapse, (who knows maybe even longer), and the doctors where I live treated me like an idiot who is simply a hypochondriac. [loco]

Two years ago, when getting up to go to work, I fell straight to the ground. My wife forced me to go to the hospital, and I eventually lost all strength in my legs and can no longer walk. The first time I went to the hospital before this incident, they took my blood work and gave me antibiodics. When I went back a week later after this happened, they lost my blood work. [bonk]

They said I had Conversion disorder, Never mind the fact I was about to get married in a year and I loved my job. [bonk]

I tried to pull up information on the web for them, showed them my Aunt's book on Lyme, "Coping with Lyme Disease," by Denise Lang. One doctor went so far as to say I should go see her then. [dizzy]

They discharged me in a wheelchair with no treatments, and almost a year later I finally got them to redo my bloodwork. Surprise of suprises it came back with antibodies for Lyme. Great! finally the proof I need, they can't deny it now!

My doctor tells me it just means my body has built an immunity to lyme. You can't build an immunity to lyme, hence the reason you can get reinfected! I tried to tell him this, but no again I don't know what I"m talking about. They simply dropped me off at Social Services doorsteps with no where to go (the apartment I was living in before going into the hospital was a second floor with no elevator). [Eek!]

As a result of the failure of the health care system, I am bound to a wheelchair, detieriorating daily. Me and my wife just had a baby, and I am worried that my condition may limit me in caring for her. [toilet]

[ 13. December 2008, 03:36 PM: Message edited by: slappy2779 ]

--------------------
C.D.C = "Country Doesn't Care"
Ticks are like Snipers, you don't know they're there, until you see the bullseye.

Posts: 86 | From Upstate New York | Registered: Jun 2007  |  IP: Logged | Report this post to a Moderator
   

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