LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Activism » Connecticut Lyme Disease Legislation...Good News so Far!

 - UBBFriend: Email this page to someone!    
Author Topic: Connecticut Lyme Disease Legislation...Good News so Far!
Tracy9
Frequent Contributor (1K+ posts)
Member # 7521

Icon 1 posted      Profile for Tracy9         Edit/Delete Post   Reply With Quote 
HARTFORD -- The Legislature' s Public Health Committee unanimously passed
a bill about tick-borne Lyme disease Thursday that could rock the health
care industry if it becomes law.


"This is a huge message," state Rep. Kim Fawcett, D-Fairfield, the
bill's sponsor, said after the panel approved the proposal without
debate.

The proposal would validate the treatment of chronic Lyme disease in
Connecticut. It clarifies to physicians, despite an opinion from the
Infectious Disease Society of America that chronic Lyme disease does not
exist, that they do have the right to diagnose and prescribe long-term
antibiotics for the illness without fear of reprisal by the state.

"The thing that's important to us is we send a clear message, 'It's OK
to go outside the Infectious Disease Society of America guidelines,' "
said Fawcett, who is not a member of the health panel.

Discovered in the mid-1970s in Connecticut, Lyme disease is transmitted
to humans by the bite of infected blacklegged ticks.

Symptoms include fever, headache, fatigue and a rash. If untreated,
infection can spread to joints, the heart and the nervous system.

The commonly accepted treatment is up to 28 days of antibiotics. But
some patients are convinced they suffer from chronic Lyme disease and
need longer courses of antibiotic treatment.

But the Infectious Diseases Society, which in 2006 developed updated
treatment guidelines for doctors, dismisses chronic Lyme disease as a
myth.

"There are no convincing published scientific data that support the
existence of chronic Lyme disease," Anne Gershon, president of the
Virginia-based society, wrote lawmakers in February.

She wrote that the concept of chronic Lyme disease has been promoted by
"a small group of physicians" but the dangers of long-term antibiotic
therapy are well-documented and should not be encouraged by legislation
like the bill passed by the committee Thursday.

State Rep. Jason Bartlett, D-Bethel, another bill sponsor who sits on
the Public Health Committee, told colleagues Thursday the legislation
would address the dueling "standards for practice" that have arisen over
chronic Lyme disease.

"Because of these two disagreements the (Connecticut) Department of
Public Health, we feel, has been biased towards the 28 days of
antibiotics, " Bartlett said.

He said the result is a "chill effect" on physicians who might otherwise
be willing to diagnose and treat chronic Lyme disease.

Following a public hearing on the bill in early February, William
Gerrish, a spokesman for the health department, said there is no state
policy against long-term antibiotic treatment of Lyme disease.

Gerrish said state health officials are concerned the bill as written
would strip the department of its ability to review complaints and
violations, particularly in cases where the care being provided to a
patient deviates from current, evidence-based practice.

No doctors offered testimony in February that they felt persecuted by
the state health department for treating chronic Lyme disease.

But at the time, Matthew Katz, vice president of the Connecticut State
Medical Society, confirmed there are concerns among physicians over the
state's recent actions against Dr. Charles Ray Jones, a New Haven
pediatrician renowned for treating chronic Lyme disease.

In December 2007, the state Medical Examining Board, responding to an
investigation by the Department of Public Health, fined Jones $10,000
and put him on probation for two years for diagnosing children with Lyme
disease and treating them with antibiotics before examining them.

Jones is appealing the decision.

Katz said news coverage focused on the doctor's reputation as a last
resort for those complaining of chronic Lyme disease.

"What appeared in the paper and on the news -- Lyme disease mistreatment
-- it raised a lot of concerns," Katz said at the time.

Fawcett's bill states that as of July 1, 2009, the Medical Examining
Board may not discipline a licensed physician "solely for" prescribing,
administering and dispensing long-term antibiotic therapy to a patient
clinically diagnosed with Lyme disease as documented in their medical
records.

The State Medical Society backs the concept of the bill, but is not
taking a position on the existence of chronic Lyme disease.

Gerrish said the Department of Public Health is still hoping to work
with the health committee to "preserve our ability to conduct a thorough
investigation to protect the public."

"That bill is perfect in our eyes," Fawcett said.

But Health Committee co-chairwoman state Rep. Betsy Ritter, D-Quaker
Hill, told her colleagues before Thursday's vote the legislation may
change before going to the full General Assembly.

"There will be " at least a bit more work going on with this bill
before we're finished," Ritter said.

--------------------
NO PM; CONTACT: [email protected]

13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG.

Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005  |  IP: Logged | Report this post to a Moderator
Leelee
Frequent Contributor (1K+ posts)
Member # 19112

Icon 1 posted      Profile for Leelee     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thanks for keeping us updated, Tracy.

This news is encouraging.

--------------------
The ultimate measure of a man is not where he stands in moments of comfort and convenience, but where he stands at times of challenge and controversy. Martin Luther King,Jr

Posts: 1573 | From Maryland | Registered: Feb 2009  |  IP: Logged | Report this post to a Moderator
bettyg
Unregistered


Icon 1 posted            Edit/Delete Post   Reply With Quote 
yippee for our side as long as no one gets sneaky putting in or DELETING info that will hurt us.
IP: Logged | Report this post to a Moderator
MaryL
Member
Member # 11997

Icon 1 posted      Profile for MaryL     Send New Private Message       Edit/Delete Post   Reply With Quote 
Tracy - do you have a link to the bill that was passed. I'd like to take a look at the wording. Do you have a bill number? I have an assignment to work on a bill for our state. Much obliged.
Posts: 81 | From Iowa | Registered: May 2007  |  IP: Logged | Report this post to a Moderator
bettyg
Unregistered


Icon 1 posted            Edit/Delete Post   Reply With Quote 
copying this from medical to here ....MAJOR UPDATE!!


Lyme Bill Passes in CT!!!!
*******************************

tonysgirl
Member
Member # 11202
posted 30-04-2009 04:35 PM

tonysgirl

I just saw this on WTNH.com, the Lyme bill has passed unanimously in CT. Good News!! Posts: 70 | From connecticut | Registered: Feb 2007


losferwrds
Member
Member # 19741
posted 30-04-2009 04:44 PM

Looks like a lotta sick people are gonna be moving to CT.
Posts: 20 | From Medford, NJ | Registered: Mar 2009


bettyg
Honored Contributor (10K+ posts)
Member # 6147
posted 30-04-2009 04:53 PM


tonysgirl; does that mean passing BOTH senate and house reps in conn???

OUTSTANDING!! CELEBRATIONS GALORE AFTER GOV. SIGNS OFF ON BILL!!! [group hug] [kiss]

IP: Logged | Report this post to a Moderator
lou
Frequent Contributor (5K+ posts)
Member # 81

Icon 1 posted      Profile for lou     Send New Private Message       Edit/Delete Post   Reply With Quote 
Are you sure the bill has passed in the legislature, or is this just passed out of committee?

Does anyone know how long the legislature is in session?

Is the governor likely to sign the bill? I would have thought that the position of the administration in the state was anti-lyme, considering that is who the state medical board works for.

Posts: 8430 | From Not available | Registered: Oct 2000  |  IP: Logged | Report this post to a Moderator
Tincup
Honored Contributor (10K+ posts)
Member # 5829

Icon 1 posted      Profile for Tincup         Edit/Delete Post   Reply With Quote 
Answers to some of the questions above....

Bill wording may be online late tonight or maybe tomorrow... as soon as they update the website.

Bill number is HB 6200.

For updates and wording on the bill, please go to:

http://www.cga.ct.gov/

The bill passed out of committee a while back.

Today (this morning) it passed in the House... with a 137-0 vote from what I understand.

Check the CT gov website for general session info.

I don't know if the Governor will sign the bill or not. It has to go through the Senate first and be passed there before going to the Governor.

The CT groups and LDA managed to help get the bill wording adjusted... and get it passed out of committee in decent form. Then after many meetings and communications and LOTS of effort, managed to get it worded better and passed through the House.

If the Governor won't sign the bill, it won't be for lack of trying and hard work on the part of Lyme patients, some of the CT groups and organizations who are putting out the effort.

[Big Grin]

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

Posts: 20353 | From The Moon | Registered: Jun 2004  |  IP: Logged | Report this post to a Moderator
Tincup
Honored Contributor (10K+ posts)
Member # 5829

Icon 1 posted      Profile for Tincup         Edit/Delete Post   Reply With Quote 
Here is the announcement for those who have not seen it.

[Big Grin]

CT Doctor Protection Bill Passes House

April 30, 2009- Connecticut Lyme groups and the national Lyme Disease Association, Inc. are pleased to announce that H.B. 6200, with a floor amendment by Representative Betsy Ritter et al., passed through the Connecticut House of Representatives.

The House vote was unanimously in support of the bill by a final vote of 137 to 0.

The discussion on the floor this morning clearly delineated the protective intent of the bill. The bill will now proceed to the Senate for consideration.

H.B. 6200 contains language that will protect CT licensed Lyme treating physicians from prosecution by the State of Connecticut Medical Examining Board solely on the basis of a clinical diagnosis and /or for treatment of long-term Lyme disease.

The bill provides the definition for Lyme disease which includes , ``the presence in a patient of signs and symptoms compatible with acute infection with Borrelia burgdorferi; or with late stage or persistent or chronic infection with Borrelia burgdorferi, or with complications related to such an infection.''

It also defines clinical diagnosis as determined by a physician ``...that is based on knowledge obtained through the medical history and physical examination alone, or in conjunction with the testing that provides supportive data for such clinical diagnosis.'' In addition, it provides for updating the definition if other strains are found to cause Lyme disease.

The final bill was the result of months of negotiations between Legislative leaders, the Connecticut Department of Public Health and the undersigned groups representing patients.

We would like to thank Representatives Jason Bartlett, Kim Fawcett, Chris Lyddy , Peggy Reeves and all of the legislators who supported this bill.

We would also like to thank the Legislative leadership for taking time from their busy schedules to meet with us over the past several weeks. We particularly thank the joint Public Health Committee Chairs, Representative Betsy Ritter and Senator Jonathan Harris and the Public Health Committee for understanding this complex issue and its importance to patients in CT.

We would like to extend our appreciation to the patients, families and members of the Lyme community who wrote letters, made phone calls and testified in support of H.B. 6200.

We have confidence that the Connecticut Senate will fulfill its commitment to CT residents and pass this important piece of legislation intact.

For updates and wording on the bill, please go to

http://www.cga.ct.gov/


Lyme Disease Association, Inc.

Newtown Lyme Disease Task Force

Ridgefield Lyme Disease Task Force

Time For Lyme, Inc.

Eastern Connecticut Chapter Lyme Disease Association

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

Posts: 20353 | From The Moon | Registered: Jun 2004  |  IP: Logged | Report this post to a Moderator
bettyg
Unregistered


Icon 1 posted            Edit/Delete Post   Reply With Quote 
thanks for additional info tc [Smile]

CONN. LYME PATIENTS/ORGS ROCK!!

NOW ROCK YOUR SENATORS! [Smile] [group hug] [kiss]

IP: Logged | Report this post to a Moderator
paulieinct
LymeNet Contributor
Member # 17514

Icon 1 posted      Profile for paulieinct     Send New Private Message       Edit/Delete Post   Reply With Quote 
Here is the vote tally:


Vote for HB-6200 Roll Call Number 130

Taken on 04/30 AS AMENDED


The Speaker ordered the vote be taken by roll call at 12:34 p.m.

The following is the result of the vote:

Total Number Voting 137

Necessary for Passage 69

Those voting Yea 137

Those voting Nay 0

Those absent and not voting 14

The following is the roll call vote:


Y
ABERCROMBIE
Y
HEINRICH
Y
RITTER
X
FREY

Y
ALDARONDO
Y
HENNESSY
Y
ROBLES
X
GIBBONS

Y
ARESIMOWICZ
Y
HEWETT
Y
ROJAS
Y
GIEGLER

X
AYALA
Y
HOLDER-WINFIELD
Y
ROLDAN
Y
GIULIANO

Y
BACKER
Y
HORNISH
Y
ROY
Y
HAMZY

X
BARAM
Y
HURLBURT
X
RYAN, K.
Y
HARKINS

Y
BARRY
X
JANOWSKI
Y
SANTIAGO
Y
HETHERINGTON

Y
BARTLETT
Y
JARMOC
Y
SAYERS
Y
HOVEY

Y
BERGER
Y
JOHNSON, S.
Y
SCHOFIELD
Y
HWANG

Y
BOUKUS
Y
JOHNSTON, S.T.
Y
SERRA
Y
KLARIDES

Y
BUTLER
Y
JUTILA
Y
SHAPIRO
Y
LABRIOLA

Y
BYE
Y
KEHOE
Y
SHARKEY
Y
LEGEYT

X
CANDELARIA, J.
Y
LAMBERT
Y
SPALLONE
Y
MILLER, L.

Y
CARUSO
Y
LARSON
Y
STAPLES
Y
MINER

Y
CLEMONS
Y
LAWLOR
Y
TABORSAK
Y
NOUJAIM

Y
CONROY
Y
LEONE
Y
TALLARITA
Y
O'NEILL

Y
CONWAY
Y
LESSER
Y
TERCYAK
Y
PERILLO

Y
COOK
Y
LEWIS
Y
THOMPSON
X
PISCOPO

Y
DARGAN
Y
LYDDY
Y
TONG
Y
REBIMBAS

Y
DAVIS
Y
MAZUREK
Y
URBAN
Y
RIGBY

Y
DILLON
Y
MCCRORY
X
VILLANO
Y
ROWE

Y
DREW
Y
MEGNA
Y
WALKER
Y
SAWYER

Y
ESPOSITO
Y
MERRILL
Y
WIDLITZ
Y
SCRIBNER

Y
ESTY
Y
MIKUTEL
Y
WILLIS
Y
STRIPP

Y
FAWCETT
Y
MILLER, P.
Y
WRIGHT, C.
X
WILLIAMS

Y
FLEISCHMANN
Y
MIOLI
Y
WRIGHT, E.
Y
WOOD

Y
FLEXER
Y
MORIN
Y
ZALASKI

Y
FONTANA
Y
MORRIS

Y
FOX
Y
MOUKAWSHER

Y
FRITZ
Y
MUSHINSKY
Y
ALBERTS

X
GENGA
Y
NAFIS
Y
AMAN, W.
Y
DONOVAN (SPKR)

Y
GENTILE
Y
NARDELLO
Y
BACCHIOCHI

Y
GERAGOSIAN
Y
NICASTRO
Y
CAFERO

Y
GIANNAROS
Y
O'BRIEN
Y
CAMILLO

Y
GONZALEZ
Y
O'CONNOR
Y
CANDELORA, V.
Y
ALTOBELLO (DEP)

Y
GRAZIANI
Y
OLSON
Y
CARSON
Y
GODFREY (DEP)

X
GREEN, K.
Y
PERONE
Y
CHAPIN
Y
KIRKLEY-BEY (DEP)

Y
GROGINS
Y
REED
X
COUTU
Y
MCCLUSKEY (DEP)

Y
GUERRERA
Y
REEVES
Y
D'AMELIO
Y
ORANGE (DEP)

Y
HAMM
Y
REYNOLDS
X
FLOREN
Y
O'ROURKE (DEP)

--------------------
Sick since at least age 6, now 67. Decades of misdiagnosis. Numerous arthritic, neuro, psych, vision, cardiac symptoms. Been treating for 7 years, incl 8 mos on IV. Bart was missed so now treating that.

Posts: 765 | From nw ct | Registered: Sep 2008  |  IP: Logged | Report this post to a Moderator
paulieinct
LymeNet Contributor
Member # 17514

Icon 1 posted      Profile for paulieinct     Send New Private Message       Edit/Delete Post   Reply With Quote 
These are the language changes. They all appear to make the language clearer. Nothing bad.

On to the State Senate!! Then on the Governor's desk! Major VICTORY for us!!

This will be another HUGE public humiliation for IDSA. If they were smart, they would just leave the country. Maybe to Argentina, where all the old Nazis go to hide.

________________________



General Assembly
Amendment

January Session, 2009
LCO No. 6317


*HB0620006317HDO*

Offered by:

REP. RITTER, 38th Dist.

SEN. HARRIS, 5th Dist.

REP. GIEGLER, 138th Dist.

REP. FAWCETT, 133rd Dist.

REP. GODFREY, 110th Dist.

REP. HORNISH, 62nd Dist.

REP. LYDDY, 106th Dist.

REP. REEVES, 143rd Dist.
SEN. MCKINNEY, 28th Dist.

REP. TABORSAK, 109th Dist.

REP. TONG, 147th Dist.

REP. BYE, 19th Dist.

REP. HURLBURT, 53rd Dist.

REP. HWANG, 134th Dist.

REP. DREW, 132nd Dist.

REP. BARTLETT, 2nd Dist.



To: Subst. House Bill No. 6200
File No. 583
Cal. No. 391



"AN ACT CONCERNING THE USE OF LONG-TERM ANTIBIOTICS FOR THE TREATMENT OF LYME DISEASE. "

In line 4, strike "lyme" and insert "Lyme" in lieu thereof

In line 17, after "statutes" insert ", pursuant to a clinical diagnosis that is based on knowledge obtained through medical history and physical examination alone, or in conjunction with testing that provides supportive data for such clinical diagnosis"

In line 19, after "patient" insert "for a therapeutic purpose that eliminates such infection or controls a patient's symptoms"

In line 31, after "diagnosis" insert "and treatment"

In line 34, after "action" insert "for other reasons"

In line 35, after "or" insert "from entering into"

In line 36, strike "entered into" and insert "with such physician" in lieu thereof

In line 37, after "to" insert "the"

--------------------
Sick since at least age 6, now 67. Decades of misdiagnosis. Numerous arthritic, neuro, psych, vision, cardiac symptoms. Been treating for 7 years, incl 8 mos on IV. Bart was missed so now treating that.

Posts: 765 | From nw ct | Registered: Sep 2008  |  IP: Logged | Report this post to a Moderator
lou
Frequent Contributor (5K+ posts)
Member # 81

Icon 1 posted      Profile for lou     Send New Private Message       Edit/Delete Post   Reply With Quote 
The CT legislature adjourns June 3. Hope they keep this thing rolling along and get it to the governor in time to do an override if necessary.

In NY, the legislation died because the governor let it die, after it had passed both houses of the legislature. He waited until the last minute so that no override was possible. Subsequently, the governor's office arranged with the dept of health that the lyme doctor persecution would cease. But that is not an enforceable law and could change at any time.

The current gov of CT is Jodi Rell, a Republican. As Lt. gov., she initially became governor after the resignation of Gov. Rowland because of corruption charges. Then she won a term on her own.

The CT administration could have changed their position without legislation in the past, just directing the state medical board to stop their witch hunts. But they have not done it to date. Let us hope that the pressure to do the right thing in CT has now reached the point that the governor will not oppose this legislation, assuming it gets thru the senate.

Posts: 8430 | From Not available | Registered: Oct 2000  |  IP: Logged | Report this post to a Moderator
paulieinct
LymeNet Contributor
Member # 17514

Icon 1 posted      Profile for paulieinct     Send New Private Message       Edit/Delete Post   Reply With Quote 
I do not believe Rell will veto this bill, or let it die. The bill has way too much support, incl the 7,000 members of the CT Medical Society.

--------------------
Sick since at least age 6, now 67. Decades of misdiagnosis. Numerous arthritic, neuro, psych, vision, cardiac symptoms. Been treating for 7 years, incl 8 mos on IV. Bart was missed so now treating that.

Posts: 765 | From nw ct | Registered: Sep 2008  |  IP: Logged | Report this post to a Moderator
lou
Frequent Contributor (5K+ posts)
Member # 81

Icon 1 posted      Profile for lou     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hope you are right Paul. Many thanks to the folks who are working so hard on this and to you for keeping us in the loop.
Posts: 8430 | From Not available | Registered: Oct 2000  |  IP: Logged | Report this post to a Moderator
bettyg
Unregistered


Icon 1 posted            Edit/Delete Post   Reply With Quote 
so happy for all you folks; yes, keep bending the ears of your conn. senators so it doesn't die... hip hip hooray! [Smile]
IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.