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» LymeNet Flash » Questions and Discussion » Activism » CALDA to give our views to IDSA, Please take a look, Very Important !!!

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Author Topic: CALDA to give our views to IDSA, Please take a look, Very Important !!!
lymetwister
Frequent Contributor (1K+ posts)
Member # 19590

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My LLMD sends me lots of good articles, etc. via email. Well I just got this from my LLMD and I thought it would be good to post here. I answered the short survey and I think everyone here should too. Anyway, here is the email I recieved.


"I am doing a survey to support the speech I will be giving at the IDSA review hearing on July 30th. Please distribute the survey far and wide to anyone you think might be interested in responding. Below is my blog posting on this. Thanks.
Lorraine

Listen up! Speak out and be heard! Help CALDA represent your views to the IDSA!

The Infectious Diseases Society of America's new Lyme disease guidelines review panel will hold a one day hearing on July 30. This hearing is part of the antitrust settlement that the Connecticut Attorney General negotiated. Of the 18 speakers selected to testify, two are patient advocates, including me. The testimony will be aired live on the internet on July 30 so stay tuned. STAND UP AND BE COUNTED CALDA is conducting a survey of individual Lyme experiences to give you a chance to have input. Results of the survey will be included in my testimony to the IDSA panel.

To participate in this survey,
Click Here
http://www.lymepolicywonk.org/

Your responses will be treated with confidence and at all times data will presented in such a way that your identity cannot be connected with specific published data. This survey should take 5-8 minutes. Note that once you start the survey, you will need to fully complete it. (You can not save it and return to it later.)

Lorraine Johnson, JD, MBA"

Posts: 1227 | From District of Columbia | Registered: Mar 2009  |  IP: Logged | Report this post to a Moderator
bettyg
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i just saw this on activism and took the 8-10 min. survey just clicking on boxes...please complete.

then EMAIL this to all on your LYME LIST GROUP, etc.

let's send THOUSANDS of replies to lorraine! thx all, and thanks for posting above [Smile] xox

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Leelee
Frequent Contributor (1K+ posts)
Member # 19112

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I got an email from CALDA this morning announcing this survey.

It did not take long to complete and was well worth doing. I appreciate what they are doing very much!

--------------------
The ultimate measure of a man is not where he stands in moments of comfort and convenience, but where he stands at times of challenge and controversy. Martin Luther King,Jr

Posts: 1573 | From Maryland | Registered: Feb 2009  |  IP: Logged | Report this post to a Moderator
kam
Honored Contributor (10K+ posts)
Member # 3410

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Did it

Thanks for the reminder

Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002  |  IP: Logged | Report this post to a Moderator
mushroomman06
LymeNet Contributor
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Done.
Posts: 108 | From maryland | Registered: Sep 2007  |  IP: Logged | Report this post to a Moderator
hurtingramma
LymeNet Contributor
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Easy to complete - not so easy to do the "code". Hard to see. I always have trouble with those darned things.

--------------------
"Few of us can do great things, but all of us can do small things with great love". Mother Theresa

http://www.facebook.com/profile.php?id=1629665573&ref=name

Posts: 938 | From Northeast Kingdom Vermont | Registered: Aug 2005  |  IP: Logged | Report this post to a Moderator
   

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