posted
Hi - my sister in law just called me and read me a one-page article in December's O magazine by Dr. Oz about the Lyme controversy! Woo hoo! He has a comparison of the 2 sides, quoting Dr. H from ILADS and then Dr Halperin for IDSA viewpoint. It's great for us. Thank you Dr Oz! Now Oprah and Dr. Oz, we need a whole show...
Posts: 227 | From South of the North Pole | Registered: Jan 2007
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lymewreck36
Frequent Contributor (1K+ posts)
Member # 4395
posted
Can someone type in some of the commentary from the article. I'm in Switzerland, and it's kind of hard to find "O" around here.
Mary
Posts: 1028 | From North Carolina | Registered: Aug 2003
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posted
My LLMD told me at my last appointment that although he feels that the Lyme bug is never really gone-the patients of hers that relapse are the ones who stop taking supplements designed to support their immune system.
In other words- keep yourself in good health with common sense and a healthy lifestyle and chances of relapse are minimized.
Posts: 365 | From Sylvania | Registered: Aug 2008
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posted
I'll state the requisite: any publicity is good publicity.
I'm in agreement with Dr. Oz regarding additional therapies for cell repair, to support the immune system. I felt better (better = less bad) when I did pretty much *everything* possible.
However, a little reality check. People are going undiagnosed or misdiagnosed. Patients are going un-treated or under-treated.
We don't have access to the western medicine and, if laden with economic issues, to access to eastern or alternative care he espouses either.
For those of us who are fortunate enough to have a diagnosis, and have insurance, unfortunately and overwhelmingly these other supportive (non antibiotic) therapies are not covered by insurance. and at some point we can't rack up any more debt.
For people who are wealthy and have more resources at their disposal, they do have more opportunity, like the doctor he mentions, Patricia Gerbarg.
This is something that Dr. Oz doesn't touch on. Plus, I don't think he realizes the havoc that additional tick-borne diseases, never mind lyme disease, wreak on the human body.
Anyway, we do what we can in the meantime, while waiting for an affordable cure or management system.
posted
Would he say this about TB? Keeping body in good shape as a preventive is just another way of blaming the patient for their own illness.
Posts: 8430 | From Not available | Registered: Oct 2000
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Pre-tickbornes, I took care of myself the way he espouses on his TV program.
A tick bite takes down the healthiest of us, takes down athletes, integrative doctors, you name it....
Tick-borne diseases are epidemic and much more virulent than is suggested- but so is the "blame the victim" mentality.
Posts: 571 | From Massachusetts | Registered: Oct 2008
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lymewreck36
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Member # 4395
posted
O.K. I just read the article. Thanks so much for the link.
I have to say, ...I know some discussion is better than no discussion, but this article is really wishy washy.
It's nice for people to know that there are doctors out there to treat chronic infection, but come on..... We've been waiting for "O" magazine to do an article forever, and this is as tough as it gets?
Mary in Switzerland
Posts: 1028 | From North Carolina | Registered: Aug 2003
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posted
I hope I don't sound corny here... but a month ago I wrote into the doctor OZ show. I was in a meltdown mode. I begged for him to bring this disease front and center. I didn't bother to explain my story. I just expressed how important it is for Americans to realize the symptoms and controvery behind this disease. I hoped I would get a reply...only got thanks for writing the show. Keep Watching. I agree with you all any publicity is good publicity. Maybe now, after the article, he WILL do a show.
Posts: 72 | From Virginia | Registered: Nov 2009
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MADDOG
Frequent Contributor (1K+ posts)
Member # 18
posted
The keeping in shape ,taking care of your self stops working when you pass the fifty mark.
I got lyme at 29 years old.
I had been teaching disco,and doing martial arts.
I kicked a 3 third degree blackbelts butt to the floor.
My legs were so hard i could tighten the musel and knock on my leggs.
The lyme took me down a few peggs.
However I could take ABX ,herx,stop the ABX and go climb a mountain.
The the lyme would come back .
After 50 I dont snap back any more and cant get half way to base camp.
MADDOG
Posts: 3921 | From Ohio | Registered: Oct 2000
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momlyme
Frequent Contributor (1K+ posts)
Member # 27775
posted
Oprah Radio / Dr. Oz did a RADIO show:
Oprah Radio host Dr. Mehmet Oz talks with filmmaker Andy Abrahams Wilson and reporter Kathy Fowler about Lyme disease.
Toxic mold was suppressing our immune systems, causing extreme pain, brain fog and magnifying symptoms. Four days after moving out, the healing began. Posts: 2007 | From NY/VT Border | Registered: Aug 2010
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onbam
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posted
A perspective from the cat, and a perspective from the mouse.
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Tammy N.
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Member # 26835
posted
After such a long wait it would have been nice to see a home run for our team. At least they had a strong lead-in with Dr. H.
Posts: 2238 | From East Coast | Registered: Jul 2010
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
This is an older (2009) article, just so you know.
momlyme
Frequent Contributor (1K+ posts)
Member # 27775
posted
How many letters, emails, etc. would it take for Oprah to do a TV special on Lyme/ Under Our Skin/ the epidemic that is commonly misdiagnosed?
In my small town, population 2,000 -- I know of 3 people who have been dealing with unexplained pain for years. Now that I know about Lyme... I see their symptoms and have called them to tell them that their unexplained illness could be Lyme. (pain in bottom of feet, headaches, joint pain, muscle pain, bone pain, trouble with food 'allergies', and excruciating, debilitating pain. All 3 of them are going to be tested for Lyme (by their doctors). The testing is so unreliable that all three of them may get false negatives.
If there are 3 that I know of, how many are out there suffering without any diagnosis or direction. If Oprah would do a special...
I realize these are old articles & radio broadcasts... but what they show is that Oprah & Dr. Oz are aware of the epidemic and perhaps they are waiting to see that there is widespread interest & need for getting this information out there?
I did some searching and found this on the Oprah website:
Hi, thank you for writing and sharing your thoughts. Members can submit show suggestions by clicking the 'Contact Us' link at the bottom of the Oprah.com website. Here is the link for your convenience:
I hope this is helpful. HarpoBear, Oprah.com Community Manager
-------------------- May health be with you!
Toxic mold was suppressing our immune systems, causing extreme pain, brain fog and magnifying symptoms. Four days after moving out, the healing began. Posts: 2007 | From NY/VT Border | Registered: Aug 2010
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Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
We had entire organized campaign over a year ago and bombarded both Dr. Oz and Oprah with our stories and asked for her to do a show on the plight of those who suffer with Lyme and co's and it was all for naught.
Posts: 5188 | From Lyme Zone | Registered: Jan 2009
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momlyme
Frequent Contributor (1K+ posts)
Member # 27775
posted
Ah, I kind of figured this must have been done but found nothing about it when I searched the forum. Thanks for filling me in. I only found this site in August of this year.
I sent in my son's story yesterday. People who are new to the forum who weren't around last year could do the same if they feel like it. I am sure Oprah get's many topic suggestions... constant contact over time *could* penetrate the information overload.
Perhaps, what it takes is someone famous with Lyme Disease? Like Montel Williams with MS?
-------------------- May health be with you!
Toxic mold was suppressing our immune systems, causing extreme pain, brain fog and magnifying symptoms. Four days after moving out, the healing began. Posts: 2007 | From NY/VT Border | Registered: Aug 2010
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onbam
Unregistered
posted
Oprah's Bilderberg. I'd trust her as far as I could throw her.
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My LLMD told me at my last appointment that although he feels that the Lyme bug is never really gone-the patients of hers that relapse are the ones who stop taking supplements designed to support their immune system.
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