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» LymeNet Flash » Questions and Discussion » Activism » Are there any Funding or Patient Support Programs for Lyme Disease?

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Author Topic: Are there any Funding or Patient Support Programs for Lyme Disease?
springshowers
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I am trying to research this and have not come up with anything really.

I am looking for any ideas that could help financially treat this disease.

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Robin123
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I haven't heard of any, and I think there needs to be. It would be awesome if we could get a fund set up by someone, say, with a lot of money, I'm talking big league money, so they'd never miss it themself, who would like to help people get medical help.
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riverpatrol
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I think Tina Garcia at www.leaparizona.com was attempting to establish help for some people. I don't know how successful she has been in fund raising though. I see the web site is off-line right now but it was up a couple of weeks ago.
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pmerv
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In her testimony at the IDSA hearing, Tina said she had been too sick to do the fundraising necessary to help the many people who need help. I think that is what you will find across the board. No one has the kind of money needed to help sick patients, millions and millions of dollars. The LDA has their LymeAid4Kids fund but it only helps with expenses for testing. I don't know anyone else who can afford to give away that kind of money. Some of the drug companies have compassionate programs to supply meds to people. I've heard of a few people putting on benefits to help themselves or their families. Robin, if you have any connections to the "big league," see what you can do!

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Phyllis Mervine
LymeDisease.org

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Robin123
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Phyllis, I know they're around where I live - I see the money mentions in the paper all the time. Unfortunately, I do not clean house for any of them! Or clean mansion, I should say!

What I was wondering is I see items in the news from time to time, like Bill Gates has just given millions to xyz cause.

Has anyone approached the really big money people like Bill Gates and asked them to help? For them, I don't think they would ever feel a pinch from donating millions to a Lyme medical fund that could be managed by financially savvy people to earn interest and whatever else gets done for the money to keep generating money.

I notice that those who give big money for some cultural institution often like to be recognized with their name, or receive some really nice perks, like be able to attend rehearsals, that kind of thing.

Thinking outloud here - there are institutions where people are very, very wealthy. I know the names of some of them. I have actually been inside some of these institutions and heard the talk.

But it takes people who move in those circles and know people in those circles to do this work. I think it could happen through social relationships. That's usually how the big money is raised.

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