LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Activism » Received this letter back from Senator

 - UBBFriend: Email this page to someone!    
Author Topic: Received this letter back from Senator
joahsark
LymeNet Contributor
Member # 20598

Icon 1 posted      Profile for joahsark     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hi Guys, I signed a link here a couple weeks ago and somehow this form letter (on bottom) got sent to my Wa state Senator on March 29. Below is her reply. Any great suggestions on how to reply back to her?

Dear Mrs. ****-

Thank you for your email concerning Lyme Disease. I have contacted the Department of Health to inquire about the severity of this problem in Washington State. Per the DOH, Washington averages anywhere from zero to three cases per year. Additionally, as Chair of the Senate Health and Long Term Care Committee, I am unaware of any correspondence or contact from the medical community citing a need for specific action to address this as a critical need.

If you have information indicating a severe underreporting of the problem, please send that information to me and I can have staff look into this issue further.

Always,

Sen. Karen Keiser

-----Original Message-----
From: *******************
Sent: Monday, March 29, 2010 3:05 PM
To: Keiser, Sen. Karen
Subject: Lyme Disease Epidemic

Sen. Karen Keiser
WA

Dear Representative,,

Hello,

Lyme Disease and Coinfections need much better treatments, cures and understanding by the doctors and the entire medical community, with better testing, much more clinical studies and longer treatments as each patient requires.

Insurance companies which overcharge the individuals is a crime, and they must pay for the long term treatments while the patients with Lyme Disease greatly suffers.

Lyme leads to Many Cancers, Fibromayalgia, Parkinsons, ALS, MS, EBV, Herpes, Syphilis, Chronic Fatigue, Arthritis, Spinal and Herniated Disc Disorders, Brain Tumors, Depression, Rage, and many many more disabling medical conditions.

Lyme disease is being disputed by our elected officials and undertreated while people greatly suffer.

Poor testing, poor medical community understanding and undertreating it leads to further life long complications.

Millions are infected and millions are still undiagnosed with it.

We need special funding, Bills passed, cures found, proper testing, better understanding, proper education of the entire medical community, coinfections need better testings and treatments, longer treatments for the sick individuals, special care needs for the patients and Bills passed on this very urgent matter ASAP.

We need Lyme Litterate Specialist Doctors.

Lyme Disease and its Coinfections is a Major Epidemic like no other, it is currently spreading like nothing else, and is going to be bigger than any other Infectious Disease known to Mankind.

Lyme disease and its Coinfections are spread not just by Ticks alone, but also by dust mites, bed bugs, lice, spiders, mosquitoes, bees, birds, cats, dogs, just about any animal, and even human bodily fluids.

Please take this matter very seriously and take an immediate action.


Thank you,

Best Regards,

********

Posts: 219 | From pacific nw | Registered: Jun 2009  |  IP: Logged | Report this post to a Moderator
gatorade girl
LymeNet Contributor
Member # 24896

Icon 1 posted      Profile for gatorade girl   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
you should send her a copy of under our skin.

--------------------
gatorade girl

"I still have Mt.Everest to climb, but I have traveled across the world and arrived at the mountain".

Posts: 633 | From baltimore | Registered: Mar 2010  |  IP: Logged | Report this post to a Moderator
joahsark
LymeNet Contributor
Member # 20598

Icon 1 posted      Profile for joahsark     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thats a good idea, wish I could get a copy for less than 30 bucks. Just can't spare it with no insurance and too many meds. Was hoping someone had some eloquent words or some type of form letter to send back.
Posts: 219 | From pacific nw | Registered: Jun 2009  |  IP: Logged | Report this post to a Moderator
Pinelady
Frequent Contributor (5K+ posts)
Member # 18524

Icon 1 posted      Profile for Pinelady     Send New Private Message       Edit/Delete Post   Reply With Quote 
Sorry. It is the typical response. They suffer from Monkeynolook syndrome.

--------------------
Suspected Lyme 07 Test neg One band migrating in IgG region
unable to identify.Igenex Jan.09IFA titer 1:40 IND
IgM neg pos
31 +++ 34 IND 39 IND 41 IND 83-93 +
DX:Neuroborreliosis

Posts: 5850 | From Kentucky | Registered: Dec 2008  |  IP: Logged | Report this post to a Moderator
gatorade girl
LymeNet Contributor
Member # 24896

Icon 1 posted      Profile for gatorade girl   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
sent you a private message with my contact at OPen Eye pictures.

--------------------
gatorade girl

"I still have Mt.Everest to climb, but I have traveled across the world and arrived at the mountain".

Posts: 633 | From baltimore | Registered: Mar 2010  |  IP: Logged | Report this post to a Moderator
Dayle Ann
LymeNet Contributor
Member # 1657

Icon 1 posted      Profile for Dayle Ann     Send New Private Message       Edit/Delete Post   Reply With Quote 
That form letter is an embarrassment. Some info in it is valid, but it is mixed up with misconceptions and out and out misinformation. In addition, it is poorly written with several misspellings. A friend of mine who is a legislator in the northwest wrote to me: he'd received several copies, and asked me to help him understand the issue and sort out fact from non-fact. While there is a real need to inform our legislators, this letter is a set-back in that regard. It makes the senders look like nutcases. The Washington State representative asked for something valid: specific information that would give her reason to question the standard line of the Washington DOH, which gets its info from CDC. We need to give it to her. LDA, the SW Penn LDA, and ILADS all have good materials, and I agree that Pam Weintraub's book is an excellent resource for them to read. I suggested it to my friend, myself.

--------------------
..." ...almost basically together situation."
unknown quote from somewhere


Posts: 441 | From USA | Registered: Sep 2001  |  IP: Logged | Report this post to a Moderator
EscapeFromLymeland
Member
Member # 24931

Icon 1 posted      Profile for EscapeFromLymeland     Send New Private Message       Edit/Delete Post   Reply With Quote 
I agree Dayle! Very embarrassing - combine it with the 'never sit on a toilet seat' and never drink cold water, else you might catch Lyme disease.

This whole thing has turned into one BIG joke. I can picture it now, people asking for face mask dispensers beside every roll of toilet paper and call it a conspiracy when no one listens.

Posts: 42 | From Lymeland USA | Registered: Mar 2010  |  IP: Logged | Report this post to a Moderator
joahsark
LymeNet Contributor
Member # 20598

Icon 1 posted      Profile for joahsark     Send New Private Message       Edit/Delete Post   Reply With Quote 
It definitley isn't a letter I would've written myself. All I did was add my name to a petition here on this site, believing I was doing the right thing, and this letter was sent with my name attached. I've learned my lesson for sure.
Posts: 219 | From pacific nw | Registered: Jun 2009  |  IP: Logged | Report this post to a Moderator
Dayle Ann
LymeNet Contributor
Member # 1657

Icon 1 posted      Profile for Dayle Ann     Send New Private Message       Edit/Delete Post   Reply With Quote 
Please don't think I was criticizing you, joahsark! I went to that site, and there is no indication that they are going to send that letter in your name to anyone. That is one reason I posted the warning above! I wanted people to be aware of what it really was, and the problems with the so-called "petition".

As I told my friend, people are responding to the "petition" out of a legitimate concern. I helped him sort out what was valid in the letter from the inaccuracies,gave him some background about Lyme, told him about what had been done in some other states, and gave him contact info for the Lyme group in his state. (Which used to be my state.)

Dayle Ann

--------------------
..." ...almost basically together situation."
unknown quote from somewhere


Posts: 441 | From USA | Registered: Sep 2001  |  IP: Logged | Report this post to a Moderator
Dayle Ann
LymeNet Contributor
Member # 1657

Icon 1 posted      Profile for Dayle Ann     Send New Private Message       Edit/Delete Post   Reply With Quote 
And I should have written SE Penn Lyme LDA, not SW in my first post above!

--------------------
..." ...almost basically together situation."
unknown quote from somewhere


Posts: 441 | From USA | Registered: Sep 2001  |  IP: Logged | Report this post to a Moderator
joahsark
LymeNet Contributor
Member # 20598

Icon 1 posted      Profile for joahsark     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thanks Dayle Ann, just glad you knew who to contact and that it will lead to better information going to the right places.
Posts: 219 | From pacific nw | Registered: Jun 2009  |  IP: Logged | Report this post to a Moderator
Hoosiers51
Frequent Contributor (1K+ posts)
Member # 15759

Icon 1 posted      Profile for Hoosiers51     Send New Private Message       Edit/Delete Post   Reply With Quote 
I agree that that letter is terrible!

Whoever originally wrote it should be ashamed.

Lyme leads to syphilis? Wow! Just wow.


Personally, I think contacting senators in such a general way is not the most productive use of time. If there is a bill coming up, etc, then maybe it's a good idea.

Posts: 4590 | From Midwest | Registered: Jun 2008  |  IP: Logged | Report this post to a Moderator
sickpuppy
LymeNet Contributor
Member # 23846

Icon 1 posted      Profile for sickpuppy     Send New Private Message       Edit/Delete Post   Reply With Quote 
Maybe the person who wrote the letter has lyme induced cognitive problems. Maybe he/she is a product of our stellar educational system, another issue in need of attention.

I went to that site and thought, "this could be a scam, someone trying to get info on individuals with lyme like an insurance company." Paranoid, maybe. Glad I didn't sign it.

Be careful on the ol' interweb.

Posts: 702 | From North Eastern USA | Registered: Dec 2009  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.