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» LymeNet Flash » Questions and Discussion » Activism » Massachusetts residents - write in support of Lyme Bill

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Author Topic: Massachusetts residents - write in support of Lyme Bill
shaka02
Junior Member
Member # 19315

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Please forward to everyone you know! While this action is needed from MA
residents, supporters outside the state are urged to contact anyone they
may know in MA to encourage their participation. Many thanks!
ACTION ALERT re: MASS. PHYSICIAN PROTECTION LEGISLATION
In Brief (detailed explanation available below):
The time has now come to contact Governor Deval Patrick! Language to
protect physicians who treat Lyme disease has been included in an outside
section of the FY11 Budget. Help us make the Governor aware of our (or a
friend or family member's) difficulties in finding appropriate treatment for
Lyme disease in Massachusetts and our need for this legislation!
1. We must ALL urge Governor Patrick to sign the Budget, with this
section intact. The IDSA has opposed this legislation at every turn and we
fully expect that they will be pressuring Governor Patrick to veto this
section of the Budget Bill. We have already been told that the Legislature will
not have enough votes to overturn such a veto. Please send letters, fax,
call or email Gov. Patrick (contact info below, including a sample and some
tips for your letter) to let him know how important this is to so many of his
constituents. Politicians DO take notice when they receive many letters
and calls on the same topic - so help us get his attention!
Governor Deval Patrick


Massachusetts State House
Office of the Governor
Room 280
Boston, MA 02133
Phone: 617.725.4005
888.870.7770 (in state)
Fax: 617.727.9725
TTY: 617.727.3666


Or use this link to email Gov. Patrick:
_http://www.mass.gov/?pageID=gov3utilities&sid=Agov3&U=Agov3_contact_us_
(http://www.mass.gov/?pageID=gov3utilities&sid=Agov3&U=Agov3_contact_us)
1. We have also been encouraged to contact the Commissioner of the
Department of Public Health, John Auerbach (contact info below), as Governor
Patrick is likely to seek his opinion on the matter. If you send a letter
or fax to Gov. Patrick, you can just send a copy to Commissioner Auerbach
as well. We need Commissioner Auerbach on our side.
Commissioner John Auerbach
Massachusetts Dept. of Public Health


250 Washington Street
Boston, MA 02108
Telephone: (617) 624-6000
TTY/TDD (617) 624-6001

Here's the link to the form to send an email to Commissioner Auerbach:
_http://www.mass.gov/?pageID=eohhs2terminal&L=4&L0=Home&L1=Government&L2=Dep
artments+and+Divisions&L3=Department+of+Public+Health&sid=Eeohhs2&b=terminal
content&f=dph_g_feedback_form&csid=Eeohhs2_
(http://www.mass.gov/?pageID=eohhs2terminal&L=4&L0=Home&L1=Government&L2=Departm\
ents+and+Divisions&L3=Depart
ment+of+Public+Health&sid=Eeohhs2&b=terminalcontent&f=dph_g_feedback_form&cs
id=Eeohhs2)
3. It would also be helpful to send a copy of your letter to your own
State Senator and State Representative (find yours at:
_http://www.mass.gov/legis/city_town.htm_
(http://www.mass.gov/legis/city_town.htm) ), so
that they also are aware of the large number of us that want and need this
legislation to pass. It is an election year, after all - and they can also
urge
the Governor to sign.
4. If you are emailing the Governor and have any trouble sending
your message with the online form, just email a copy to lymebill at gmail dot come_
(mailto:[email protected]) and we will be sure that the Governor receives
a hard copy of your letter. Any letters that are emailed to
[email protected]_ (mailto:[email protected]) will be printed and submitted
to the
Governor and Commissioner Auerbach
TIPS FOR YOUR LETTER TO THE GOVERNOR:
Please personalize your letter -- don't just copy the sample and send it,
if at all possible! Form letters are not taken as seriously as a
personal letter. However, a form letter MUCH better than nothing, if
that's all
you can manage right now.
Keep your letter brief and to the point - no more than one page! As much as
we'd like them to, they won't read all the way through our long, very sad
and usually infuriating stories.
If you are writing about yourself, and particularly if you are writing
about a child under 18, please consider the fact that this is not private
correspondence. You do not need to mention your child's name, your doctor's
name, or any specifics about your treatment.
Be sure to include your full name and address.
Good points to mention:
· If you (or a family member or friend) were unable to find a
doctor in Massachusetts to diagnose or treat you appropriately for Lyme disease
- and especially if any Massachusetts doctor indicated that they couldn't
or wouldn't diagnose or treat you for Lyme disease because they were
afraid of the consequences, or because they needed to follow the IDSA
guidelines. Please don't mention names.
· If you went to a physician out of state because of this.
· If long-term antibiotics helped you.
· If the delay in treatment caused additional health problems.
· It's also good to mention the financial toll this has taken on
you and your family overall.
· Your desire to be able to choose a treatment which is
alternative to those prescribed in the IDSA guidelines.
SAMPLE LETTER TO GOVERNOR:
The Honorable Deval Patrick
Governor of Massachusetts
Massachusetts State House
Room 280
Boston, MA 02133
RE: The Outside section of the Conference Committee Report of the FY11
Budget pertaining to long-term treatment of Lyme disease
Dear Governor Patrick:
I want to urge you to sign the FY11 Budget with the section pertaining to
long-term treatment of Lyme disease intact. This is extremely important
legislation for my family and our state.
(INSERT YOUR SHORT STORY HERE)
This Legislation will allow physicians to clinically diagnose a patient
with Lyme disease and will enable very ill MA residents to choose treatment
options that best meet their needs, while the medical community works to
find better consensus on LD treatment guidelines. Please sign it into law and
allow the citizens of Massachusetts a choice in the treatment of Lyme
disease.
Sincerely,
Jane Doe
435 Maple Street
Anytown, MA 00022
If you would like a Microsoft Word template for this letter to be emailed
to you, send an email to lymebill at gmail dot come
with the word TEMPLATE in the subject field.


The Details:
*Text of the proposed legislation: Chapter 112 of the General Laws is
hereby amended by inserting after section 12CC the following section:-
Section 12DD. (a) As used in this section, the following words shall
have the following meanings:-
“Long-term antibiotic therapy” the administration of oral, intramuscular
or intravenous antibiotics singly or in combination, for periods of time in
excess of 4 weeks.
“Lyme disease” the clinical diagnosis of a patient by a physician,
licensed under section 2 of chapter 112 of the presence of signs or symptoms
compatible with acute infection with Borrelia burgdorferi; late stage,
persistent or chronic infection with Borrelia burgdorferi; complications
related to
such infection or with such other strains of Borrelia that after adoption
of this bill, are recognized by the national Centers for Disease Control
and Prevention as a cause of Lyme disease. “Lyme disease” shall also
include an infection that meets the surveillance criteria set forth by the
national Centers for Disease Control and Prevention, and a clinical diagnosis of
Lyme disease that does not meet the national Centers for Disease Control
and Prevention surveillance criteria but presents other acute and chronic
signs or symptoms of Lyme disease as determined by the treating physician.
Such clinical diagnosis shall be based on knowledge obtained through medical
history and physical examination only, or in conjunction with testing that
provides supportive data for such clinical diagnosis.
(b) A licensed physician may prescribe, administer or dispense long-term
antibiotic therapy for a therapeutic purpose to eliminate infection or to
control a patient's symptoms upon making a clinical diagnosis that the
patient has Lyme disease or displays symptoms consistent with a clinical
diagnosis of Lyme disease, if such clinical diagnosis and treatment are
documented
in the patient's medical record by the prescribing licensed physician.

** H1148: An Act relative to the treatment of chronic Lyme disease, filed
by Representative Robert Hargraves last year, had been stalled and changed
in various committees as it made its way through the legislature and we
were running out of time to get that bill passed during the current
legislative session. Senator Frederick Berry worked with Rep. Hargraves to
attach
identical language (which is similar to the CT law) to both the Senate and
House versions of the Budget. The Senate and House versions of the FY 2011
Budget have both been passed in their respective chambers and are currently in
Conference Committee, where any discrepancies will be negotiated. Because
both versions of the budget contain the identical physician protection
language, that section will remain the same in the final Budget that is
presented to the Governor, which will probably be on or around June 19th
(Please
try to contact the Governor before then!) This is our very best chance to
see this become law and the only possibility of it becoming law this year.

Posts: 4 | From Massachusetts, USA | Registered: Mar 2009  |  IP: Logged | Report this post to a Moderator
ckm
Junior Member
Member # 23996

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This is a BIG deal...Can we also post this under all discussions since this is that critical and most people on this site go under "medical questions and general support"? Maybe a link on home page? and please, please take 5 minutes to write a small letter and email, mail, fax or call. Very short time period on this. I wish good health to all...
Posts: 7 | From Boston | Registered: Jan 2010  |  IP: Logged | Report this post to a Moderator
ckm
Junior Member
Member # 23996

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I HONESTLY believe this belongs on the home page since it is coming up this week. and should also be on top of every section. Im from MA, but would help anyone in any state w/ this matter. Thank you!!!! Can somone? Moderator, admin please see about this. All legislation signings, votes, etc..should be the first thing people see. The more people speaking up, the more people listen.
Posts: 7 | From Boston | Registered: Jan 2010  |  IP: Logged | Report this post to a Moderator
veourtzigx9
Member
Member # 25094

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I sent my letter via email to the Governor. This bill would mean great things for those of us with Lyme in MA. Especially with it being a highly endemic area for tick-borne infections.

Hopefully (at least in my best dreams) this might have a domino effect with the insurance companies in MA, whereby the Governor's recognition of this legislation would cause them to be more open to approving treatments, especially the more "high-end" types like long-term antibiotic IV.

Posts: 10 | From Western Massachusetts | Registered: Mar 2010  |  IP: Logged | Report this post to a Moderator
bcb1200
Frequent Contributor (1K+ posts)
Member # 25745

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Sent mine in 2 weeks ago.

--------------------
Bite date ?
2/10 symptoms began
5/10 dx'd, after 3 months numerous test and doctors

IgM Igenex +/CDC +
+ 23/25, 30, 31, 34, 41, 83/93

Currently on:

Currently at around 80% +/- most days.

Posts: 3114 | From Massachusetts | Registered: May 2010  |  IP: Logged | Report this post to a Moderator
22dreams
LymeNet Contributor
Member # 17846

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The Governor signed it today!

http://www.mass.gov/bb/gaa/fy2011/os_11/h67.htm

Posts: 571 | From Massachusetts | Registered: Oct 2008  |  IP: Logged | Report this post to a Moderator
Lymelighter
Frequent Contributor (1K+ posts)
Member # 5310

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YAY!!!!!!!!!
Posts: 1010 | From Mars | Registered: Feb 2004  |  IP: Logged | Report this post to a Moderator
bcb1200
Frequent Contributor (1K+ posts)
Member # 25745

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Woo Hoo!!

--------------------
Bite date ?
2/10 symptoms began
5/10 dx'd, after 3 months numerous test and doctors

IgM Igenex +/CDC +
+ 23/25, 30, 31, 34, 41, 83/93

Currently on:

Currently at around 80% +/- most days.

Posts: 3114 | From Massachusetts | Registered: May 2010  |  IP: Logged | Report this post to a Moderator
Lymelighter
Frequent Contributor (1K+ posts)
Member # 5310

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FOLKS, THIS IS AMAZING AND LONG OVERDUE!!

http://wbztv.com/video/[email protected]

Posts: 1010 | From Mars | Registered: Feb 2004  |  IP: Logged | Report this post to a Moderator
   

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