posted
Just came back from the NYC rally. The speakers were great; unfortunately, there are thousands if not tens of thousands of folks suffering in the tri state area but I would venture to say there were about 100 people there - disappointing turnout.
Posts: 749 | From State full of ticks | Registered: Dec 2008
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Lymedin2010
Frequent Contributor (1K+ posts)
Member # 34322
posted
Yes, I was there too.
I expected a lot more as well, but lets not forget this is a battle to be heard. We have to contribute and help and fight any which way we can. For the people who have suffered unnecessarily in the past, for our families, and all the innocent children who are allowed to go on to suffer and that will suffer in the future.
My hat goes off to two of the patients/speakers; Meghan Harrison & Ariana Sierzputowski. Both have been through a tremendous amount of pain and were willing to share it all with us today. I got the chance to shake one of their hands and to thank them and their parents for such dedication.
They are great Lyme warriors in the forefront. There are great people there who are all fighting for us, but they need our help. Let's try to support anyway we can. Please also spread the word that Dr Eva Sapi needs continued donation for her to obtain an Atomic microscope.
I got to meet, talk, shake the hands of Pamela Weintraub & she also signed my book. I also saw one of my LLMD's, Dr C and my daughters LLMD Dr J.
Posts: 2087 | From NY | Registered: Oct 2011
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posted
Thanks for the report. I imagine it's pretty hard for sick patients to travel. How about miking an on-the-speaker-phone call-in sometime?
Also, I heard that the atomic microscope got paid for! Now they're raising more funds (matching funds) for her research, so people can still contribute.
Posts: 13107 | From San Francisco | Registered: May 2006
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Lymedin2010
Frequent Contributor (1K+ posts)
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posted
Good news about the funds. Lets keep those who support the cause well backed up.
I am posting my video of Pamela Weintraub's speech at the protest. It is going to take a while to upload though. I will be back later today to post on this forum.
Posts: 2087 | From NY | Registered: Oct 2011
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posted
I was there with my husband and son. We did a very rough estimate and I think there were at least 300 people there at any point in time. It is hard to tell in NYC because so many people in general. But 300 people may even be Conservative. I thought it was a huge success!!
Posts: 472 | From New Jersey | Registered: Dec 2007
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
Someone actually organized a "flash mob" here in Montana. She was very sick on IV and put it all together herself. Only a couple of people showed up though but it was good to see another person with lyme here.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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posted
In retrospect, maybe the count was somewhere higher than I had. It is difficult to tell in NYC. Even still, only 300 people on a beautiful day in NYC. I know folks are sick but I really was expecting a much bigger turnout.
Posts: 749 | From State full of ticks | Registered: Dec 2008
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
Thank you guys so much for posting but no way. I could have been there. With us all being so sick the social media way is how to get the word out. look aroun a lot i a lot is started maybe spread the word I don't even know how to do I don't even know how to do it but but I know lots of you do
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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Lymedin2010
Frequent Contributor (1K+ posts)
Member # 34322
posted
I know a lot of people around me who are affected in one shape or form. None of them were there though.
Had it been two or three days earlier, I don't know if I would have made it either. I did get my wife & mother-in-law and father to go though. My friend also stopped by to support the cause.
What we need is for people to go on skype and log in online to see the rally live & for the rally to have a big video cube with scrolling blocks of live video from each person attending via the net.
Imagine that video screen and grid block & on there indicating city/state/country of each live person. It would have a much bigger impact when they see people from all over the world.
Posts: 2087 | From NY | Registered: Oct 2011
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Lymedin2010
Frequent Contributor (1K+ posts)
Member # 34322
posted
Okay guys here is Pamela Weintraub's speech at the rally.
I had zoomed in all the way & it caused any movement to amplify through the growing shakiness of my hands, sorry about that.
If it bothers you to see it, then just look away and listen.
kelmo
Frequent Contributor (1K+ posts)
Member # 8797
posted
I have a friend, who is housebound, and has been posting photos of rallies around around the world. I know AZ didn't do anything. Too hot to spend the day outside in Phoenix. Unless, of course, you are a Jodi Arias trial nut.
Posts: 2903 | From AZ | Registered: Feb 2006
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posted
Moving to activism. For exciting news of what's going on in the Lyme world, you should check activism daily!!! Why just sit in medical questions discussing nothing but treatment.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
i still dont see where there is anything...kam? tutu? where
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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posted
[QUOTE]Originally posted by Lymedin2010: [QB] What we need is for people to go on skype and log in online to see the rally live & for the rally to have a big video cube with scrolling blocks of live video from each person attending via the net.
Imagine that video screen and grid block & on there indicating city/state/country of each live person. It would have a much bigger impact when they see people from all over the world.
I think we need more ideas about how to be visible in larger numbers. I like this technology idea.
With all the technology we have, I'd like to see people figure out how to get folks connected from their skype locations to the general event.
If we don't have our own skype equipment, to call a family member or friend who does and bring it over to use.
Can this be done yet, in large numbers? That way, we could have virtual attendance!
Or, whatever other technology can bring folks together on a large screen from their homes.
Posts: 13107 | From San Francisco | Registered: May 2006
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
i know...i am learning new things... i am learning my new phone and can post pics now...i will really try...
i bet the idsa is laughing at us
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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posted
Re a way to be represented when not present, I saw that UK folks made a Lyme tree with leaves, and if you click on the leaves, you get to read a Lymed person's story. Clever. www.worldwide-lyme-protest.org.uk - scroll down to see it.
Posts: 13107 | From San Francisco | Registered: May 2006
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posted
If you "like" Lyme Worldwide Protest you will have photos of the protest from all over the world show up on your FB page.
I was in Chicago for an event last weekend (not my hometown or home state) and I tried to find the protest on Friday. I didn't see anything.
On Saturday I tried again. I walked down N. Michigan Ave. and at one point saw a handful, maybe 7 people including children, protesting.
I continued on to Daley Plaza because I thought I had read there was supposed to be something going on there. I didn't see anything.
So I turned around to head back to the original group and when I got there, they were gone.
I got stopped many, many times on my walk on Michigan Ave. inundated with many, many causes. It's tough out there.
Posts: 478 | From Third Coast | Registered: Feb 2011
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
lp, thanks that was a great campaign.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6459 | From Louisville, Ky | Registered: Jan 2002
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posted
In London we had about 50-70 people turn up - not a brilliant turnout but you have to bear in mind that thanks to the near-totality of the Denial here, only a tiny fraction of those who have Lyme actually know that that is what they have got.
As everywhere else, we had the problem of many people who would have wished to come but were too sick to travel. We had blown-up photos of some of them, with a short text about each person, strung all along the front of our rally. You can see that here (apology about the quality).
But I think Lymedin2010's idea of the videocube is great and I'll suggest it to people for next year's Worldwide Protest.
Elena
quote:Originally posted by Lymedin2010: .... What we need is for people to go on skype and log in online to see the rally live & for the rally to have a big video cube with scrolling blocks of live video from each person attending via the net.
Imagine that video screen and grid block & on there indicating city/state/country of each live person. It would have a much bigger impact when they see people from all over the world.
-------------------- Justice will be ours. Posts: 786 | From UK | Registered: Oct 2007
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