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This topic has been moved to Medical Questions.     next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Activism » Newly Diagnosed chronic Lyme help please

   
Author Topic: Newly Diagnosed chronic Lyme help please
Kelly64
Junior Member
Member # 49593

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Really would like someone to talk to in area . Arizona ""Live in West Valley the community is Verrado. My email is [email protected]

Hello, I'm new at this disease and lost and confused . So much I could say that I've been through over the past 5 years reaching this diagnosis. I mostly need to talk to someone that's educated/familiar the more I read and search for a Dr the more depressed and defeated I feel.

Any information on a LLMD Dr in this area or a support group would be beneficial and probably save $ as it seems that every avenue I turn the cost is $ 60,000-$80,000 this was through Envita.I live 20 miles west of Phoenix in Buckeye. I have also been diagnosed with mold . The current path I'm on is being treated for mold with Cholestyramine powder .

Also awaiting mold results of my home .. Have completed intro visit to LLMD Dr in AZ** will follow up on January with the 11/2 hour visit for recommended treatment plan for Lymes" appears to be a treatment using supplements.

My Nature Path in Good Year" very good he is not Lymes but after 2 years he had me tested and it came back positive .He does not claim to know Lymes but do to the fact it seems to be knocking at his do

**edited city of LLMD per LN rules**

[ 01-17-2017, 06:51 PM: Message edited by: Lymetoo ]

Posts: 7 | From Arizona | Registered: Jan 2017  |  IP: Logged | Report this post to a Moderator
lookup
LymeNet Contributor
Member # 44574

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Kelly64, welcome to Lymenet. Hopefully, you can get some support networking come your way because of this thread. In the mean time, feel free to ask questions here or vent.

This site has been very helpful to our family. There are so many people here who know a lot and share their experiences. I have a notebook and I write down their tips and have pulled them up when needed.

All the best to you on your healing journey!

Posts: 764 | From Northwest | Registered: Sep 2014  |  IP: Logged | Report this post to a Moderator
TF
Frequent Contributor (5K+ posts)
Member # 14183

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Hi, Kelly and welcome to Lymenet! We will help you all we can.

As you become familiar with LymeNet, you will see that we have different forums for different types of questions.

One forum is for Seeking a Doctor. Another is for Medical Questions. You have posted in the Activism forum which is for people who want to change the climate regarding lyme disease in this country.

Not too many people look in the Activism forum, so I will ask the moderators of LymeNet to move your post to a more appropriate forum for you. This way, more folks will see your post.

If you look on the left side of the page, you will see Support Groups. Click on that and select Arizona. This will give you the contact information for one or two lyme support groups in Arizona. Contact both of them and learn from them whatever you can.

Also, do not think that you will have to spend $60,000 or $80,000 to treat lyme disease. Also, Envita has been discussed here before. We rather suggest you go to a doctor who specializes just in lyme disease. In other words, his practice is 100% lyme patients. That is how a doctor gains expertise with this complex disease which is really a combination of diseases.

You should not have to spend that kind of money to get well from lyme.

When you say you have been diagnosed with mold, perhaps you mean that you have a mold allergy or toxicity or are living in a moldy environment. Often a moldy environment can set a person up for getting lyme disease. I believe that is what happened to me.

I suggest you look at the notes I took a few years ago when a doctor talked about the mold-lyme connection in a lyme conference. My notes are here:

http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/1/112279?#000000

Also, to get your education on lyme disease, I suggest you read the Burrascano Lyme Treatment Guidelines found here:

http://www.lymenet.org/BurrGuide200810.pdf

This document is not an easy read because it was written for other doctors to teach them about lyme disease. But, it will give you a good education on the disease that you have.

It will also tell you exactly what good lyme disease treatment looks like.

To find what others have to say about Envita, use the LymeNet "Search" function. You'll see it at the top of the screen under "Post a Poll." This way, you can pull up all the old posts people have written about Envita or any other subject.

Here is an example of an old Envita post:

http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/2/24039?#000000

Plan on spending some time searching for a good lyme doctor. There is a learning curve to finding a good one. You can ask in Seeking a Doctor for a good one in your area. However, often in your area of the country, you have to be willing to travel to see someone good. Lyme doctors are few and far between. So, it is best if you are willing to travel.

For example, the doctor I recommend in Maryland requires his patients to come to the office in person once every 3 months. The other months he will do telephone or Skype appointments with you.

He sees patients from Canada, Florida, Texas, Ohio, New Mexico, upstate New York, etc. plus local people.

So, if your state doesn't have anybody good, this is how you can still get great lyme treatment.

Keep asking questions here and we will be happy to answer. Your story is a common one. I went undiagnosed for at least 10 years before a doctor thought to test me for lyme.

Still, I got rid of lyme (and babesiosis and bartonella) by going to a doctor who followed the Burrascano Guidelines. Then, over the years, I sent at least 5 of my friends to Burrascano type doctors and they also got well. This is why I believe in the Burrascano Guidelines.

Now that you have been diagnosed, you can start to make progress. We will all help you every step of the way.

Posts: 9931 | From Maryland | Registered: Dec 2007  |  IP: Logged | Report this post to a Moderator
faithful777
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Member # 22872

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**moving to medical questions**

--------------------
Faithful

Just sharing my experience, I am not a doctor.

Posts: 2680 | From Colorado | Registered: Oct 2009  |  IP: Logged | Report this post to a Moderator
   

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