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Author Topic: Washington Post article on Lyme
Anneke
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Yet another hack job by a widely read and respected newspaper!! We need to respond to this article with gusto:


There's No Neutral Ground in War Of Information About Lyme Disease

By Jason Feifer
Special to The Washington Post
Tuesday, May 15, 2007; Page HE01

Maryland Del. Karen S. Montgomery (D-Montgomery) knows Lyme disease can
be a nasty foe: Both she and her husband have been through bouts of it.
But when she introduced a bill in the legislature to distribute
long-established treatment guidelines on the tick-borne infection to
doctors statewide, she ran up against another adversary: Lyme advocacy
groups.

Opponents dropped by her office in Annapolis to demand interviews.
E-mails and faxes flooded in, expressing dissatisfaction with what the
writers saw as shortcomings in the guidelines. The president of the Lyme
Disease Association -- a group with 24 affiliates in 15 states --
testified against the bill, saying it would stymie treatment for what
the group says is a chronic, painful and largely unrecognized form of
the infection. Montgomery's measure was approved by the House of
Delegates, but it died in the Senate last month.


As the incidence of Lyme disease has grown nationwide -- roughly 23,300
cases were recorded by the Centers for Disease Control and Prevention in
2005, up from about 17,000 in 2001 -- so has the political clout of Lyme
activist groups, building on some people's frustration with standard
treatments and the belief that many diffuse ailments, from arthritis and
headaches to irritability and poor concentration, are actually symptoms
of lingering, active Lyme disease. The activists have attacked
legislation on state and federal levels, protested outside doctors'
offices and lined up powerful allies, including Connecticut's attorney
general. Last month they opened the Lyme Disease Research Center at
Columbia University, made possible by $3 million the groups raised.

Fighting treatment guidelines of the type Montgomery favored has become
one of the activists' primary goals. Those guidelines, crafted by the
Infectious Diseases Society of America, a leading group of disease
specialists, recommend against some treatments, such as long-term
courses of antibiotics; the activists say such advice stops doctors from
recognizing and treating "chronic Lyme."

The IDSA and other medical experts say there's no evidence that this
chronic condition exists. Undeterred, the groups have produced their own
guidelines -- including treatments that have not passed standard
scientific tests or peer review -- and held conferences and published
books about the disease. Leading health authorities including the CDC
say some of the groups are promoting misleading and potentially
dangerous information -- encouraging some doctors to misdiagnose
patients and treat them with bogus remedies.

"We do indeed get calls from patients who are confused -- they hear one
thing and then they read something else, and they don't quite know what
to make of it," said Paul Mead, a medical epidemiologist at the CDC.

Researchers such as Gary Wormser, a Johns Hopkins-trained infectious
diseases expert and lead author of the IDSA guidelines, say the
activists have created an atmosphere of intimidation that inhibits
research. "I don't think there has ever been another disease for which I
have been attacked on the Internet like this. . . .They're not just
content to just have two schools of thought, either. They kind of want
to wipe out mainstream thinking and only have this school of thought."

Pat Smith, president of the Lyme Disease Association, said that such
charges are unfounded and that it's mainstream experts who are keeping
useful disease information from people who need it.

"We are patients, we are families of patients, and quite frankly we are
tired of a small group of individuals dictating that patients should not
be getting treatment for a disease that they have," she said. After
feeling harassed for years, she added, patients were standing up for
their rights and challenging disease experts, who are "getting a dose of
their own medicine."

*Infectious Debate*

------------------------------------------------------------------------

Lyme disease, first recognized by researchers in Old Lyme, Conn., in
1975, is a common infection readily treatable with a two- to four-week
course of antibiotics, according to medical authorities, including the
CDC. In 1998 the Food and Drug Administration approved a Lyme vaccine;
the manufacturer withdrew it from the market in 2002, citing low sales.

Caused by the bacteria /Borrelia burgdorferi/, Lyme is typically
transmitted through the bite of a deer tick. A bull's-eye rash often
develops around the area of the bite, and a patient may develop flulike
symptoms such as aching and fatigue. "A few patients, particularly those
diagnosed with later stages of disease, may have persistent or recurrent
symptoms," says the CDC, and a second four-week course of antibiotics
may be helful. If left untreated, the disease can spread to joints, the
heart and the nervous system, according to the agency.

Symptoms that persist long after treatment do not mean the disease is
still active, say infectious disease experts. But they concede that some
questions remain. "Here is where it gets confusing," wrote Wormser in an
e-mail, "because about 10-20 percent of people without Lyme will have
the same types of symptoms at any point in time. So the question arises:
Are the symptoms that are present . . . post-Lyme related to having had
Lyme, due to some other identifiable cause or the same as the symptoms
(of unknown cause) found in the healthy population?. . . The good
scientific studies cannot find evidence of residual Borrelia in such
patients."

Some advocacy groups disagree, claiming the disease can often become a
treatment-resistant chronic infection marked by painful muscle spasms,
memory loss and chronic fatigue/./ Their ranks include some people who
have never tested positive for the infection on recognized tests and
can't account for their exposure . Some of those convinced they have
chronic Lyme search out physicians that activist groups call "Lyme
literate." Some of these doctors prescribe up to a year or more of
antibiotics, claiming the standard short-term dose isn't always
sufficient to kill the Lyme bacteria. Studies have shown that long-term
antibiotic treatment is not effective, can lead to antibiotic resistance
and can harm or even kill, according to CDC epidemiologist Paul Mead.

State medical boards have launched investigations of many so-called
Lyme-literate doctors and have taken disciplinary action against some.
In April 2006, for example, the North Carolina Medical Board charged a
doctor with inappropriately diagnosing and treating 10 patients for Lyme
disease. According to Quackwatch, an organization that tracks
unscientific medical claims, there was no evidence for his Lyme
diagnosis in any of the cases and no basis for his prescribing several
months' treatment with intravenous antibiotics. He was allowed to
continue practicing medicine, subject to restrictions.

Paul Beals, a family practitioner in the District, treats patients he
has diagnosed with chronic Lyme with up to a year of antibiotics,
monitoring them, he said, to make sure the medicine is not causing harm.
He also instructs patients to boost their immune systems by making
dietary and lifestyle changes, including more rest, no alcohol, and
taking dietary supplements and fish oils.

"The CDC just doesn't recognize how resilient this bug is to short-term
antibiotics," he said.

Beals has been placed on probation in Maryland and the District for
performing tests and prescribing treatments, unrelated to Lyme disease,
without medical indication.

Rob Marra, a personal trainer in Baltimore, uses alternative therapies
including diet change (lots of vegetables; no coffee, sugar or grains)
and nutritional supplements (including sea salts and magnesium) for what
he said is a case of chronic Lyme that basically immobilized him for
more than two years. He said he doesn't care that most doctors wouldn't
approve of this treatment.

"The medical community has always resisted things that have tons of
anecdotal evidence, but if they don't have a lab result or the research
to back up what someone is actually saying, they'll say that they're
crazy," he said.

*Desperate Measures*

------------------------------------------------------------------------

Alternative Lyme therapies promoted on the Internet and elsewhere include:

/? Hyperbaric oxygen chamber./ The chamber, more commonly used to
promote the healing of infected wounds, delivers oxygen in high doses.
Supporters offer multiple reasons for its use, most notably that
increased oxygen levels in the bloodstream will harm the Lyme bacteria
and that oxygen helps stimulate the immune system. Wormser said there's
little evidence that this treatment does anything to fight Lyme disease,
but he said it isn't considered harmful, either.

/? Rife machine./ Proponents say the electromagnetic device, at one time
marketed as a cancer cure, aims energy waves whose specific frequencies
shatter the Lyme bacteria, in much the same way that a singer's voice
can shatter glass. Attorneys general in Wisconsin and Minnesota have
taken action against selllers of Rife machines, claiming they offer
false promises. Quackwatch says the device has "no value for diagnosing
or treating anything."

/? Dietary changes./ Some patients take large doses of salt along with
vitamin C, believing this will dehydrate or hurt the Lyme bacteria.
"It's one of those therapies that doesn't have biologic rationale.
There's no reason that it should work," said John Bartlett, an
infectious disease specialist at the Johns Hopkins University School of
Medicine. Other patients eat an alkaline diet because they believe the
food can raise the body's pH and make it inhospitable to the Lyme
bacteria. Wormser said that it's extremely difficult to alter the body's
pH and that any serious change could result in death.

/? Pulse dosing./ Instead of taking a course of antibiotics, some
patients take long breaks between bouts of medication in the belief that
it will make the drugs more effective. Wormser said that has not been
proved and that pulse-dosing studies done for HIV showed that it hurt
patients.

The Lyme patient advocacy movement gained momentum in 2006, when the
Infectious Diseases Society of America updated its guidelines for
identifying and treating Lyme disease. The society included a list of
alternative therapies not recommended for treatment of Lyme -- including
pulse dosing, use of the hyperbaric oxygen chamber and nutritional
management -- and that became a rallying point for the groups.

They got a boost from Connecticut Attorney General Richard Blumenthal,
who launched an investigation into the IDSA to see whether it had
unlawfully ignored some information about the disease. That
investigation is ongoing, according to Blumenthal's office.

Wormser, author of the IDSA guidelines, said that throughout medical
history, groups of people have blamed diverse and medically unexplained
symptoms on a wide variety of ailments. Instead of chronic Lyme, he
said, it was once chronic Epstein-Barr, and another time it was chronic
candida. The difference now, he said, is that the Lyme groups are so loud.

/Jason Feifer last wrote for Health about proposals to give tax breaks
to organ donors. Comments:health@... ./

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Anneke
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Our comments and letters can be emailed to:

[email protected]

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Tincup
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Boy this article sure smacks of McStupid.

Imagine the Washington Post using Quackwatch as it's main information source? Hello???

And who'd of thought WORMSER was Hopkins trained?

But I really like this quote...

"The IDSA and other medical experts say there's no evidence that this chronic condition exists."

And this really makes them sound clever..

"Researchers such as Gary Wormser, a Johns Hopkins-trained infectious diseases expert and lead author of the IDSA guidelines, say the
activists have created an atmosphere of intimidation that inhibits research. "I don't think there has ever been another disease for which I have been attacked on the Internet like this. . . .They're not just content to just have two schools of thought, either. They kind of want
to wipe out mainstream thinking and only have this school of thought."

You don't think McStupid and Wormser are BOTH reading Lyme disease chat groups, do you?

Anyhow...

PLEASE be respectful when writing.. and I KNOW it is hard to do.. but we NEED to be credible and sincere.

Thank you!

[Big Grin]

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

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Tincup
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Here are the instructions for sending a Letter to the Editor.

``````````````````````````````````````````````

Letters must be fewer than 250 words long and exclusive to The Washington Post; they may not have been submitted or posted to, or published by any other media or web outlet.

They must include the writer's home address, e-mail address, and home and business telephone numbers. Anonymous letters will not be considered, nor does The Post permit the use of pseudonyms.

Due to space limitations, all letters are subject to abridgment. Because of the volume of letters we receive, we cannot respond individually to the authors of letters we are unable to use. However, we read every letter we receive, and we appreciate the interest and value the views of those who take the time to send us their comments.

To send a letter by e-mail, please send to [email protected]. Do not send attachments; they will not be read. If you prefer to send your letter by surface mail, please send to the following address:

Letters to the Editor
The Washington Post
1150 15th Street, NW
Washington, DC 20071

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

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Tincup
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Just in case you missed it... here is the other article in the Post.. same day.


http://www.washingtonpost.com/wp-dyn/content/article/2007/05/14/AR2007051401209.html


The Bugs in Lyme Tests

By Megan S. Smith
Special to The Washington Post
Tuesday, May 15, 2007; Page HE04

If you head to your doctor's office with a suspected case of Lyme disease, this is what you might expect:

The doctor would first listen to your history of tick exposure and symptoms, such as muscular pains and headache. You'd then be checked for visible signs of infection, such as the telltale bull's-eye rash often, but not always, present in Lyme cases. If you had this rash, you probably would proceed straight to your local pharmacist for antibiotics, says the National Institute of Allergy and Infectious Diseases, and skip the next step: laboratory testing for Lyme.

The main problem with blood tests for Lyme disease, according to NIAID, is that they're not ideal in either their sensitivity (ability to detect the presence of infection) or their specificity (ability to differentiate Lyme from another infection).

What's more, because the tests detect only the presence of Lyme antibodies -- rather than the actual Lyme bacterium -- a positive response is not proof of an active infection; antibodies can remain in the blood long after an infection has ended, NIAID says.

There's more: Lyme bacteria incubate for anywhere from three to 30 days before causing infection; if you are tested soon after a tick bite, you may test negative because antibodies haven't had time to form.

As a result, "a history of having had a deer-tick bite, followed by the characteristic 'bull's-eye' lesion . . . with flulike symptoms is considered to be the most reliable diagnostic indicator of Lyme disease," according to NIAID.

To confirm a Lyme diagnosis, the Centers for Disease Control and Prevention recommends two blood tests performed by reputable labs: The first is an ELISA (enzyme-linked immunosorbent assay) to measure antibody levels -- a test considered highly sensitive to late-stage infection. The second test, the Western immunoblot assay, identifies antibodies particular to Lyme.

If a patient with Lyme-like symptoms for more than three weeks has both blood tests performed and both come back negative, "it's negative," according to CDC epidemiologist Paul Mead -- meaning the patient doesn't have Lyme.

The CDC and the Food and Drug Administration have warned about the proliferation of unapproved Lyme tests -- including blood and urine tests, some used by commercial labs.

Megan S. Smith is a Washington area freelance writer who conducted molecular genetics research for her master's in biology. Comments:[email protected].

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

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valymemom
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They call this reporting!!! Does no reporter look beyond the shiny surface anymore????

Send responses.

In the August 2003 the Post did a front page story of Amy Tan in its Health section. My one son had just been diagnosed.

I might suggest they follow up with another Tan story.

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lymewreck36
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Everytime I read articles like these two my spirit feels so trampled. It feeds my sense of hopelessness.

I will try to get a response out to these publications today or tomorrow.

Mary

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valymemom
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I am hopeful the Post will receive volumes of mail regarding these articles......just like Annapolis received volumes of calls and faxes regarding Ms. Montgomery's bill that just needed some tweaking to make it acceptable.
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Rene
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UP
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Lymeindunkirk
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Please respond. The Washington Post needs to know our feelings. The only good that comes from this article is that it makes us more determined to fight.
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ldfighter
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This Washington Post piece was so flagrantly biased that I'll never be able to look at any article in that paper the same way again.

It's not just about Lyme, my trust in their journalistic integrity is now gone whether it's Lyme or AIDS or Iraq - and I think that's another important message to get across to the editors.

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Vanilla
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Oh and the Post article states that the patients are confused. Talk about projection!
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Lymeindunkirk
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I think this article needs to be put back into medical. Yes, I know it really doesn't belong there but who ever looks under activism? Not me. Everyone needs to make sure they respond to this article and it will only get the attention it needs by being in the medical section. Please put it back where it will receive the attention it needs!
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Lymeindunkirk
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UP
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Vanilla
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Was the Washington Post article in the paper or only their online paper? I am asking because I called the paper to complain and the operator who is not too bright never heard of the writer of the article Jason so she keeps asking me where I read the article because she thinks it was not in their paper but perhaps on-line.

I do have another number I am about to try right now to use for my complaint:

800.627.1150

A flood or tsunami of phone calls would be good.

I finally asked the receptionist for the complaint department and left a long message and my phone number.

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Walnut
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Please, also contact the Washington Post's ombudsman. Deborah Howell.

I am going to contact the Ms. Howell and ask her to investigate why the Washington Post Health Section printed such an uninformed, one-sides piece, with many incorrect "facts."

Contact: Deborah Howell
Email: http://projects.washingtonpost.com/staff/email/deborah+howell/

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Pantsinsocks
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I clicked on the "comments" link at the bottom of the article on washingtonpost.com, and wrote a pointed letter to Mr. Feifer, the "reporter".

I got a response from the editor that they would like to print it as a letter to the editor in the health section. Good.

Let's flood them with letters.

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valymemom
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It is late PM and I have avoided going to get my paper and mail. I read the article on the Post site at 6 AM. Wrote my letter.

It is more upsetting to see it in newsprint.

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Lymeindunkirk
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I sent my letter this morning as well. Everyone one needs to send one!
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Vanilla
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Both write and call the 800 number both.

That is good about getting your letter published!

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Walnut
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The author Jason Fiefer is a freelance writer, who has written only a couple of articles for the Washington Post.

For more see: http://www.happyscrappy.com and http://www.jasonfeifer.com/

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Soleilpie
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I sent my letter.

It's angers me to no end when someone compares the minor aches and pains of the general public with those of Lyme patients!

I would love for Wormser to take a trip over to my mother's house and take a look at her and tell her to her face that she represents the general public!

She's bed bound, unable to sit up on her own or walk. She has a trache in and experiences the kind of pain that has caused her to talk about suicide!
[cussing]

Ok settle down Christina! I'm counting to 10...

--------------------
The best index to a person's character is how he treats people who can't do him any good, and how he treats people who can't fight back.
-Abigail van Buren (Pauline Esther Friedman) (1918-2002)

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Soleilpie
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Hey you guys I think the email address it should actually go to is [email protected].

That is the address given at the bottom of the article online.

Maybe we could just send our letter to both email addresses:
[email protected].
[email protected].

--------------------
The best index to a person's character is how he treats people who can't do him any good, and how he treats people who can't fight back.
-Abigail van Buren (Pauline Esther Friedman) (1918-2002)

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monkeyshines
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This is my local paper. I'm appalled. I sent a letter this afternoon (and yes, Vanilla, it was in the print version too).

monkeyshines

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Tincup
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I also called and spoke to the same secretary.. and left a message for the ob whatever it is called.

Also..

Just got word.. I THINK one of our LLMD's letters will be in the paper. GREAT!

Mine? Probably never.. but I do try!

`````````````````````````````````````````
Dear Editor,

Mr. Feifer's article, Combat Zone, is correct. Lyme disease patients have been stuck in a vicious medical, legal and insurance war initiated by a handful of unscrupulous self-proclaimed experts who restrict life-saving antibiotic treatment; adamantly support lab tests known to miss up to 90 percent of people who are infected; publish their own studies based on results of unreliable tests; and support "cost-effective" treatment guidelines which exclude opposing scientific views.

To compound patients problems, Delegate Karen Montgomery (MD) recently sponsored a bill mandating these highly questionable Lyme disease guidelines be distributed across the state in spite of protests from thousands of physicians, support groups and patients nation wide. Had it not been for the Senate's intervention, Montgomery's bill could have destroyed even more lives.

To the relief of chronically ill patients, government officials recently launched an investigation into the Infectious Disease Society of America's guideline development process, related to antitrust violations, monopolization practices and exclusionary conduct. Maryland Congressmen unanimously signed on as cosponsors for a federal bill that would actually help patients and Governor Martin O'Malley officially declared, May is Lyme Disease Awareness Month.

In order to help themselves and their neighbors, chronically ill patients, physicians and parents of sick children have come together to provide education and support through local and national groups, such as the all-volunteer Lyme Disease Association. Working together they intend to right this atrocious wrong so others won't suffer at the hands of a few misguided soldiers in the combat zone.

Sincerely,

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

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henson2
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UP!

This "reporting" is already causing untold anguish among Lyme patients in that area who have legitimately been diagnosed with long-term Lyme and are trying to find acceptance from their families, friends and colleagues. INCREDIBLY SAD.

Please flood the Washington Post with letters, to both the addresses listed in the above messages.

Among other things, the Post should know how many readers are now aware of the paper's inability to demonstrate professional journalistic coverage, and readers will judge other stories on other topics accordingly. And likely stop subscribing, if this is representative of the Post's journalism.

Will write something in Medical now.

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OptiMisTick
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I sat up last night and wrote points that I have titled "Questions Jason Feifer Should Have ASked, Parts I and II."

I wrote them with my one remaining brain cell and documented these points as I could, in case there are those out there with brain cells on strike.

If you want my list to choose topics for your letter from, PM me privately. I will try to get it to you quickly. You need to give me a private email to send it to.

OptiMisTick

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Anneke
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OptimisTik -

Can you please post those questions you've composed? I've moved the article to the medical section - you can post them there!

Thanks,
Anneke

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henson2
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Up

Sometimes the Post will do extensive letters to the editor coverage on a particular topic or in response to an article.

[ 19. May 2007, 01:28 PM: Message edited by: henson2 ]

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Anneke
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did some googling... Here is a post by Jason Feifer, the author of the Wash. Post article on HIS OWN BLOG TODAY: (Does he sound like an immature jerk or what??? Does he have any idea of the damage he has caused by the lack of his journalistic integrity??? I doubt it!) We can all post on his "blog" as well... It's:
www.happyscrappy.com

Here's his own words:

Ticked off?
I have a piece in today's Washington Post about the battle over Lyme disease. Mainstream science says it's a readily treatable, tick-borne bacterial infection, but patient advocacy groups and some doctors say it can become a chronic, debilitating ailment. The groups have organized themselves like political activists and aren't hesitating to wield their strength, much to the chagrin of mainstream medical groups.

One Lyme blog has already posted my e-mail address and a four-year-old photo of me. (Those sideburns? No more.) Should be interesting to see what the day brings.

Posted by Jason Feifer at May 15, 2007 09:04 AM

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bettyg
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posted 15-05-2007 11:16 PM
--------------------------------------------------------------------------------
OptimisTik -

Can you please post those questions you've composed? I've moved the article to the medical section - you can post them there!

Thanks,
Anneke
*********

anneke,

OMT sent this to me tonight privately; she does NOT want to post publicly to give OPPOSITION OF WHICH THEY ARE MANY VISITORS and/or members any 1st hand ammunition! ok. [Wink]

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Soleilpie
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Uh, I really doubt this guy's winning any journalistic awards.

Not that he wrote that article intentionally to hurt Lyme patients, but I'm a firm believer in "what goes around, comes around."

Maybe he'll get a clue one day...

--------------------
The best index to a person's character is how he treats people who can't do him any good, and how he treats people who can't fight back.
-Abigail van Buren (Pauline Esther Friedman) (1918-2002)

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Blackstone
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Okay ladies and gentlemen... I think we have a chance at discrediting this article. I don't think it was written maliciously. The author did go over such things as Rife and HBO, but did so through the "feces-colored glasses" of Wormser.

I'm going to call my LLMD and see if he can write a letter as well (We're both in the washington Metro area).

I encourage everyone else to write and send emails as well, but we cannot afford to "look crazy". The author as already set lyme patients up to look like a bunch of misdirected, desperate people at best and crackpot hypochondriacs at worse. We need to discredit his source and point out the flaws in his reporting in a logical manner. Lets work together here to ensure this happens.

First thing is first - Wormser. Can one of our PubMed savvy people pull up one of those articles where Wormser /did/ assert there was chronic lyme, back in the day? We want to pinpoint the time at which he and Steere ruled against their own research for whatever reason. We catch him in this lie, we already discredit him.

Who can dig up the abstracts or documents for this?

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valymemom
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A lymenet member's daughter was interviewed and it was shown on Fox 5 PM news yesterday. To see go to myfoxdc.com

It just happened to be televised the same day.

I think I found the video in the health section - titled something about dangers in your backyard.

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lou4656
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I am sending an e-mail. This is really sad. [Frown]

--------------------
LouLou

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lymewreck36
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My reply sent to Jason at "Happyscrappy."

Below is the research you should have done before you printed the uniformed piece on lyme disease that participates in maiming thousands. The day will come when the Infectious Disease Society of America will be exposed for their government ties, their political needs to squash the subject of chronic lyme, and the harm that they inflicted on children and adults in the U.S. population and abroad. What will you have to hide behind then? Better to print a retraction or something discussing what has been brought to light since your first comments.

One thing I learned when doing my Master's Degree was critical thinking skills. That afforded me the ability to discern where truth falls. You see, when there are thousands of dissenting voices, one would have to ask how that would be possible if there weren't some degree of validity. How could such a huge grass roots movement come to be? The question begs to be answered. Then, the investigative process would begin, including looking closely at the reasons for the dissenting voices. This is the part of the process you left out.

Aren't you supposed to be an investigative reporter?

Do you really trust all "institutions" to the degree that you will not hold them to the critical process? Such trust smacks of VERY youthful naivete. I would think that a newspaper reporter would need to question a bit more!

It has happened countless times in medical history that a few enlightened physicians have been persecuted by the mainstream.

Read below for enlightenment.

Mary
victim of lyme politics
three daughters victims of lyme politics
husband victim of lyme politics
family of five with chronic lyme


1. "The Semmelweis Syndrome" Excerpt from the following link: http://www.home-school.com/Articles/phs21-marypride.html

"Semmelweis, ... was the first to discover that when doctors washed their hands before delivering babies, the mothers didn't die of "childbirth fever." At the time, 12 out of every 100 Hungarian women who gave birth died of this disease, which we now realize was caused by the doctors' own unhygienic practices. A doctor would go straight from an autopsy, where he was cutting up a corpse riddled with disease, to the bedside of a woman in labor. With the same hands that had recently been covered with putrid bodily fluids, he would probe around or inside the woman's body in the course of delivering her baby. Naturally, the incidence of infection was high. There were maternity hospitals in Budapest ...where the mortality rate from childbirth fever approached 100 percent - which is why women had their babies at home, if they possibly could.

Semmelweis discovered a simple procedure which put an end to childbirth fever in his patients. So what was the reaction of the medical community? Ridicule. Persecution. The attacks against Semmelweis were so severe that, overcome with depression, he took his own life.

Lister and the Discovery of Antiseptic Medicine

Meanwhile, a man you probably have heard of, Joseph Lister (in whose honor "Listerine" is named), was developing his own theory of "anti-sepsis." The very year Semmelweis died, Lister began performing the first germ-free operations. At the time even the smallest surgical procedure carried a 50 percent risk of death - not due to the surgery itself, but to the seemingly inevitable infections that would follow (again, transmitted by unsterile instruments and unwashed doctors).

The results of Lister's innovations were stunning. Patients who were expected to die, didn't. And again, persecution was his immediate reward. You'd never know this from reading the World Book Encyclopedia entry, which only mentions Lister's contributions and his eventual honors, received decades after his initial discoveries. But Lister's discovery, and his theories that germs caused wounds to get infected, earned him immediate, scathing, constant denouncements from the day's top medical authorities. If you read a biography of Lister, you'll probably be awed, as I was, by his remarkable perseverance and self-sacrifice as he continued striving, year after year, in the face of incredible discouragements.

Eventually Lister did prove to everybody's satisfaction that he and Semmelweis were right - but only after tens of thousands had died needlessly as a direct result of their doctors' refusal to examine the evidence for themselves.

Why...did those doctors not listen to poor Semmelweis?" ...Because they didn't want to admit they had been responsible, even unwittingly, for harming their patients. One doctor did believe Semmelweis. He had delivered his daughter' baby with unwashed hands, and she had died of childbirth fever. Stricken with remorse, he killed himself. Meanwhile, his thicker-skinned colleagues merely continued killing their patients.

Doctors Can Be Wrong

It is important for you to understand this, ....Doctors are not always right. In fact, they have often been wrong. But they are trained to be certain that they are always right. This makes it very hard for them to change their minds about anything."


2. Then there is the story of Drs. Robin Warren and Barry Marshall who showed the bacterium Helicobacter pylori plays a key role in the development of both stomach and intestinal ulcers. Marshall suffered a lot of problems getting the medical establishment to believe him, and it took at least 20 years, during which time he suffered persecution by the medical community. Warren and Marshall eventually won the Nobel prize for their contributions to medicine.


3. Also the following critique of Medicine's 10 Greatest Discoveries by Meyer Friedman (Author), Gerald W. Friedland (Author)

Discussion found at the following: http://www.amazon.co.uk/Medicines-Greatest-Discoveries-Yale-Nota/dp/0300082789

"I read with extraordinary excitement Medicines 10 Greatest Discoveries by best-selling author Dr. Meyer Friedman and his co-author Dr. Gerald Friedland. They brought to life the intriguing stories of scientists who made the worlds most significant contributions to medicine. Crawford Long, for example, was severely bruised after a party in which he and the other guests were intoxicated by inhaling ether. Yet he felt no pain. This realization led him to try successfully using ether as an anesthesia during surgery. Before then surgery was performed with no pain killers. Torture! The authors spared no detail explaining the barriers each had to overcome to bring the field of medicine closer to where it is today. Persecution and even death at the hands of religious leaders. Shunning by medical colleagues. Withholding of research opportunities. In some cases Medicines 10 Greatest Discoveries gave credit to scientists long forgotten. For instance Ross Harrison, inventor of tissue culture, attended both Johns Hopkins and Yale universities. Neither school had commemorated him nor knew of his connection to tissue culture until the authors pointed out this fact to their presidents."

4. Also consider the publication at the following link. There you will find Persecution of Innovative Therapies. - Politics in Healing: The Suppression and Manipulation of American Medicine - Review - book review
http://findarticles.com/p/articles/mi_m0ISW/is_2001_June/ai_75178719

5. Additionally, see a sneak peek at Science, Money, and Politics: Political Triumph and Ethical Erosion. By Daniel S. Greenberg. Published 2001 by University of Chicago Press.

Link to book review at the following: http://content.healthaffairs.org/cgi/content/full/21/3/274

Excerpt: "Dan Greenberg began covering science in 1961 as the first "News and Comment" editor of Science, published by the American Association for the Advancement of Science. From 1971 through 1997 he wrote and published his own fortnightly Science and Government Report. He has written a marvelous book, jam-packed with detailed analyses of federal science agencies crying all the way to the bank. His scope is broad and includes the two agencies that support academic research--the National Science Foundation (NSF) and the NIH. Major themes include the following: Anxiety about funding crises for the support of scientific research are out of whack with the reality of sustained budget increases over time; the rhetoric of crisis enlivens the scientific community's misleading presentation of its case to Congress; more funds are never enough; and the fear of a fickle public drives continuing attention to "public understanding of science."
Although Greenberg pays more attention to the NSF than to the NIH, his chapter on "The Ethical Erosion of American Science" focuses exclusively on medical science. He deplores the penetration of pharmaceutical industry money into academic medical research; examines controversies at both the Journal of the American Medical Association and the New England Journal of Medicine; reviews recent turmoil within the world of institutional review boards (IRBs), which were instituted to protect human subjects of research; and concludes with an account of the death of Jesse Gelsinger, an eighteen-year-old enrolled in a gene therapy clinical trial at the University of Pennsylvania. His judgment? "If their ethical senses were outraged by these events, the major institutions of science successfully concealed their distress from public view. Comfortable within the scientific ghetto, deft at raising public expectations and thereby stimulating generous support, the politicians of science are not comfortable with the seamy underside of their glittering enterprise. But they are not moved to do anything effective about it."


Let's turn now to the story of the AIDS epidemic and the role of patient activists.

6. See the following source for the below discussion and excerpt: Against the Odds: The Story of AIDS Drug Development, Politics And Profits by Peter Arno and Karyn L. Feiden.

Reviews: Editorial Reviews


From Publishers Weekly:
Freelance writer Feiden and health analyst Arno illuminate the profound effect that the AIDS patient community has had on the process of pharmaceutical testing, treatment and approval. Ten years into the epidemic, patient-activists have become increasingly involved, aware and influential in their interactions with pharmaceutical manufacturers, federal regulatory agencies and international underground trafficking. The book details how the travails of AIDS therapies have caused the emergence of parallel-track testing and community-based clinical trials, redefined placebo standards and private-use pharmaceutical importation, and recast the Orphan Drug Act and medical journal publication embargos. Extortionate pharmaceutical pricing and the absence of quality care for the disenfranchised are only a few of the book's sad revelations. This is an incisive view of how health activism has become an invaluable tool in dislodging the bureaucratic U.S. health-care system. Most alarming is the assessment that the tragedy of the stalled AIDS response could be easily replicated by a federal health-care system as yet ill-equipped to respond to a national emergency.
Copyright 1992 Reed Business Information, Inc.

From Library Journal
This is a fascinating account of how government and drug company bureaucracies have held up the development of such life-saving and life-prolonging AIDS drugs as AZT, ddI, bactrine, pentamidine, ganciclovir, and compound Q. At the same time knowledgeable activist and patient communities, frustrated and impatient, work heroically to change the policy and procedures of drug testing, pricing, and availability, thereby inspiring a new wave of health activism. Like Bruce Nussbaum's Good Intentions: How Big Business and the Medical Establishment Are Corrupting the Fight Against AIDS ( LJ 12/90), this scathing indictment of our political and medical establishment points up an unforgivable lack of leadership. Strongly recommended for all collections.
- James E. Van Buskirk, San Francisco P.L.
Copyright 1992 Reed Business Information, Inc.


7. See also, And the Band Played On: Politics, People, and the AIDS Epidemic
by Randy Shilts and William Greider

Book review excerpts:

From School Library Journal
YA Investigative journalist Shilts em ploys a case study approach to expose the alarms, disregard, and misinformation about AIDS that has been promoted by the government, gay and straight organizations, news agencies, and medical researchers. He indicts the political agendas of government officials, ego- driven scientists, and profit-conscious blood bank executives, all of whom impeded early AIDS research. In addition, he gives a fascinating account of the detective work needed in discovering new diseases. Although focusing his re ports on San Francisco and New York's gay communities and research centers in Atlanta and the Washington, D.C. area, Shilts dramatically explores the international problem of AIDS. Students will use the index for assigned papers, but it is the volume of information and the vignettes about real individuals that make compelling cover-to-cover reading. Alice Conlon, University of Houston
Copyright 1988 Reed Business Information, Inc. --This text refers to an out of print or unavailable edition of this title.

From Library Journal
In one of the most important books of the year, Shilts, who has been covering the AIDS crisis since 1981, sets a gripping narrative of human tragedy against a background of political and scientific controversy. His implication: the AIDS epidemic in the United States might have been averted had it not been for resistance from the government, scientists, the media, and the gay community. Shilts has the ability to draw the reader hypnotically into the personal lives of his characters. That, and his monumental investigative effort, would have made this a best-selling novel if the contents weren't so horribly true. Highly recommended. Judith Eannarino, George Washington Univ. Lib., Washington, D.C.
Copyright 1987 Reed Business Information, Inc. --This text refers to an out of print or unavailable edition of this title.


8. There are those enlightened few, as always, that strive to make favorable change in the status quo. See the below article at the following link:
http://muse.jhu.edu/login?uri=/journals/journal_of_health_politics_policy_and_law/v026/26.2havighurst.pdf
Havighurst, Clark C.
Evidence: Its Meanings in Health Care and in Law
Journal of Health Politics, Policy and Law - Volume 26, Number 2, April 2001, pp. 195-215

Duke University Press

Journal of Health Politics, Policy and Law 26.2 (2001) 195-215

"In April 2000 the Institute of Medicine (IOM) and the Agency for Healthcare Research and Quality (AHRQ) jointly hosted a one-day workshop to explore an intriguing and important intersection of medicine and law: the courtroom presentation of science-based medical evidence and expertise. This workshop was inspired by a concern that legal uses and interpretations of science-based medical evidence, particularly population studies and the findings of controlled clinical trials, may diverge substantially from the uses and interpretation of that evidence by the medical and health care researchers who produce it and of the practitioners and health plans that use it in making clinical decisions and policies. Recognizing that a preliminary discussion among professions was needed even to describe the nature of their differences, the IOM and AHRQ, at the instigation of John M. Eisenberg, director of AHRQ, convened about twenty clinicians, epidemiologists, health services researchers, health plan executives, practicing and academic lawyers, jurists, and social scientists in the field of legal medicine ..."

>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>


Surely, with such examples from numerous cases of misinformation, distortion, lies, and ethical violations, one could not POSSIBLY trust all government agencies and medical institutions at face value!

My own investigation into the truth began with a very simple realization. I was very sick. Bed ridden. When given antibiotics, my bells palsy went away and the neurological and arthritic symptoms improved. But then I was denied antibiotics by the medical "industry", and I completely relapsed.

My body was the "in vivo" study. I sought a lyme literate medical professional, who continued my antibiotics, in different combinations and strengths. I improved further this time. It continues to be the case that if I am denied antibiotics, I regress quickly, four years later.

So, in the beginning, I had to ask....what is going on? Why the barrier to getting treatment. The truth of chronic lyme was indisputable. I just needed to find out why I was denied treatment.

Enlightenment followed.

Jason, if you so wished, I could send you a lengthy article I have been working on regarding the politics of lyme disease, explanations for the top research scientists blocking information on chronic lyme disease, including a data base of peer reviewed, annotated medical articles establishing chronic lyme disease.

I you wish to become enlightened, and print a newer version of the politics of lyme in the Post, let me know, and we can begin a friendly exchange of questions and answers. It's up to you and what posterity will think of such articles as "There's No Neutral Ground in War Of Information About Lyme Disease." You can choose to be on the cutting edge. You can choose to be part of the fight for justice.

Mary

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Soleilpie
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I thought I'd let you all know that the Wash Post may run my letter in the Your Views section under the Health section's letters to the editor.

Keep those letters coming!

Editing to say that you may not want to post your letters here on Lymenet.

I'm not sure but by posting your letters here, the Wash Post may not consider it for their paper. I don't know where I got the idea that they absolutely wouldn't post it. I must have misread the email.

Anyway, they just ask if you've ever posted your letter on any internet forum or media outlet. It may just be that they want to reference this other outlet should they choose to publish your letter.

Sorry if I confused anyone!
Christina

[ 16. May 2007, 06:00 PM: Message edited by: Soleilpie ]

--------------------
The best index to a person's character is how he treats people who can't do him any good, and how he treats people who can't fight back.
-Abigail van Buren (Pauline Esther Friedman) (1918-2002)

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Vanilla
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Unfortunately not all LD supporters understand why this article is harmful to the Lyme community and badly written and researched.

There is a supportive post about the article over at canlyme.com/forum/

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lymewreck36
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My above posted lengthy reply to Jason was for his personal benefit. I didn't submit it for publication because it is simply too long.

Is it o.k. to leave it here, or should I remove it?

Mary

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Soleilpie
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Hi lymewreck36,

Hey I just wanted to tell you that my post wasn't meant specifically to you. It was just a general statement to anyone who wanted their letters considered for publication in the Washington Post. They specifically ask if your letter has ever been posted on any internet forum or other media outlet. I'm not sure if that means they won't post it, or if it's just something they want to know so they can reference it.

By the way, I thought your personal letter to Jason was REALLY good. I actually learned quite a bit from it!

Christina

--------------------
The best index to a person's character is how he treats people who can't do him any good, and how he treats people who can't fight back.
-Abigail van Buren (Pauline Esther Friedman) (1918-2002)

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lymewreck36
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Hi Christina:

I did not take your remark personally, but after you said what you said, I realized that I had not seen other letters posted, and was struck with the possibility that I had been inappropriate.

Hope I did the right thing, and thanks for pointing that out for me.

Mary

p.s. Researching and writing my "response" took four hours of me sitting in pain at the computer. I know you all know how this feels. It was like giving birth!

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Anneke
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Mary,

I loved your email, and I too, learned a lot from it. Thank you so much for taking the time you did, in the midst of pain and fatigue, to writing such a wonderful invitation for this journalist to engage in dialogue. I hope this letter results in a productive discussion.

Anneke

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levity101
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Mary,
just wanted to say thank you for hanging in there during four hours of pain - you produced a wonderful essay and great research. Very enlightening and what people need to be reminded of....the politics and egoes of SCIENCE. Nothing has changed - truth is mostly hard-won it would seem.

Nancy

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lymewreck36
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california lyme:

thank you for those sitations. I am saving them to my database.

mary

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henson2
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Up

Let's not post any Letters to the Editor in a public forum.

(Mary, I did see you were providing a personal response, not a Letter for the Editor).

[ 19. May 2007, 01:29 PM: Message edited by: henson2 ]

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LisaS
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On a better note, read this article from Ladies Home Journal:

http://www.freewebs .com/teenswithly me/2007050914042 1313.pdf

Then, how about a bunch of letters to Ladies Home Journal thanking
them for writing this article about Lyme--and the IDSA/ILADS
controversy. How about including your personal story--in a few lines?
If they get enough response, maybe they'll do something more.

Write to Ladies' Home Journal

Talk to us! Do you have a comment about a story in Ladies' Home
Journal? Send your letters to lhj@meredith. com (it's easier for us to
respond quickly to e-mail). If you want your letter to be considered
for publication, please include your full name, address, including
city and state, and daytime phone number. Letters may be edited for
space and clarity.

--------------------
https://www.facebook.com/profile.php?id=1660435643

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Vanilla
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Mary great work and I am sure everyone including yappysappy Jason learned a lot from your letter.
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Tincup
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IMPORTANT!!!!!

ANYONE who wants their letters considered for publication can NOT have them already on internet boards... or even on their own personal blogs. I was told that today by the editor.. and they ARE watching our stuff...

IF they consider your letter you will get an email asking if you have placed it anywhere. And I repeat... they ARE watching what we are doing here and other places!!!!

So get them off of here if you want to be considered.

NOW!!!!

If you have put someone elses letter on here.. please delete ASAP!!! Too much work goes into them to have them kicked out of the running....

THANKS!!!

[Big Grin]

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

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lymewreck36
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Hey Tincup:

You posted the following:

If you have put someone elses letter on here.. please delete ASAP!!! Too much work goes into them to have them kicked out of the running....

Does that mean I should delete my post even though it is NOT submitted for publication?

By the way, I went to Jason's blog and posted it in his comments section.

Mary

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valymemom
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quote:
Originally posted by valymemom:
Californialyme

What great research/citations!

All of you who dig through these published papers.....a big thank you!

Speaking of retrieving good documents.....where is lou????


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Ann-OH
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I believe it is actually the numbers of responses that are important. I really don't care if they publish my response, so .....

Here is the response I sent to
[email protected] I am sending another version to the Wash. Post editor.
Ann - OH

In his article, "There's No Neutral Ground in War Of Information About Lyme Disease", published in the Washington post, Jason Feifer, shows a lack of good journalist skills on a couple of levels.

He did not do his homework in checking on the effectiveness of tests for Lyme disease.

The FDA paper on testing,FDA Medical Bulletin * Summer 1999 * Final Issue Lyme Disease Test Kits: Potential for Misdiagnosis: http://www.fda.gov/medbull/summer99/Lyme.html aptly shows that the tests for Lyme disease are unreliable and should never be depended on as a definitive diagnosis, no matter what Paul Mead the CDC epidemiologist says as quoted in the Post article on testing for Lyme disease, "The Bugs in Lyme Tests" by Megan S. Smith.

Then Feifer cites "Quackwatch" as a reliable source of information. It takes very little research to show what credentials of the owner and operator of "Quackwatch" are. Here is a quote from an account of a trial in 2005

Court Case: Stephen Barrett, M.D. vs. Tedd Koren, D.C. and Koren Publications, Inc.
Court of Common Pleas of Lehigh County for the State of Pennsylvania
Court Case No.: 2002-C-1837

[quote]
At trial, under a heated cross-examination by Negrete, Barrett conceded that he was not a
Medical Board Certified psychiatrist because he had failed the certification exam.

This was a major revelation since Barrett had provided supposed expert testimony as a psychiatrist and had testified in numerous court cases. Barrett also had said that he was a legal expert even though he had no formal legal training.

The most damming testimony before the jury, under the intense cross-examination by Negrete, was that Barrett had filed similar defamation lawsuits against almost 40 people across the country within the past few years and had not won one single one at trial.

During the course of his examination, Barrett also had to concede his ties to the AMA, Federal Trade Commission (FTC) and Food & Drug Administration (FDA). [end quote]

This is an "expert" on Lyme disease to be cited as an authority and given credence in good journalism??? I don't think so ! The AMA, Federal Trade Commission and the FDA should be putting this fraud in jail !

As for the annoying Lyme disease patients, for what other disease are advocates for decent treatment for patients so hounded?

The patients only want the decision of kind and duration of treatment left to a licensed physician who is allowed to treat as best fits each individual case.

They have every right to speak up and go public when they see the damage that is being done to citizens and families whose lives are being ruined by a disease that can cause such pain and expense.

Of course, they feel obliged to demonstrate against the writers of the "final word" on how Lyme disease should be treated. The "guidelines" of the Infectious Disease Society of America are being treated as gospel by insurance companies and state health boards who go deny payment for treatments and who go after physicians who do not comply with the "guidelines".

Meantime, Lyme disease and other tick-borne disease cases (and you can have several tick-transmitted diseases at one time) will continue to grow in numbers and spread to create more endemic areas, especially in the light of global warming.

This is a world disease, not just a New England disease, and attention must be paid by good journalism and good research.

--------------------
www.ldbullseye.com

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Tincup
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By the way... in my note did I mention how wonderful all the letters were? EXCELLENT!!!

NOT wanting to argue... Ann.. but I think they are planning an entire "spread" of letters???

I wouldn't want to see your wonderful letter passed by .. or anyone elses... especially when it would be leaving ROOM for others that are not so swift.. which they HAVE gotten.

If you want to hold off until after chances of NOT being published are past.. it might be a good thing?

Anyhow.. I hope everyone posts their letters here and also saves their letters... once the newspaper publishes. I've seen some really good ones!!!

Oh.. Wreck...

Since you KNOW yours can't be published.. due to length... certainly keep it here for others. It will inspire and give others a basis to go by.

Did I tell you it was GREAT??? Good work!

[Big Grin]

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

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Vanilla
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I agree some very powerful letters were written and I hope to heck they do a spread of them but the health editor to me did not seem like the type who would want to admit that happyslappy might have written anything other then a wonderful well researched and informative article.

We shall see and keep the letters emails and phone calls pouring in.

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bettyg
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[bow] [bonk] KUDOES TO MARY, LYMEWRECK for a well-documented letter that is for US LYMENETTERS only due to the extraordinary length you put into this!

DO NOT DELETE IT! good material; you could not possibly have met their meager 200 word limit and done justice to what you did.

mary, keep up the good work. hope you write ladies home journal too! you're very gifted, and why not share it with the world! lol [lol] [group hug] [kiss]

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bettyg
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[bow] [bonk] KUDOES TO MARY, LYMEWRECK for a well-documented letter that is for US LYMENETTERS only due to the extraordinary length you put into this!

DO NOT DELETE IT! good material; you could not possibly have met their meager 200 word limit and done justice to what you did.

mary, keep up the good work. hope you write ladies home journal too! you're very gifted, and why not share it with the world! lol [lol] [group hug] [kiss]

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CaliforniaLyme
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The letter I posted was posted on the WAPO site already by the person who wrote it- is the comments board- online- at WAPO site-
It was not a letter to the editor-

Was a great letter thougH!!!!!!!!!!!!!!!!!!!!!!
Best wishes all,
Sarah

--------------------
There is no wealth but life.
-John Ruskin

All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer

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valymemom
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Yes, it was.
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Anneke
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Great letters! I learned a lot myself! I'm proud of us!
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T2JRW
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Hi Sarah,

I wrote the post that involves quotes from the IDSA members' own studies. So PLEASE take it down because I sent an abbreviated, modified version of it to the Editor of the Washington Post and I don't want my "letter-to-the-editor" version to be disqualified from publication.

Thanks.

--------------------
I am not a doctor nor a trained scientist. Do not rely upon what I write to diagnose or treat any medical condition.

"Rejoice in the Lord always; again I will say, rejoice!" -- Philippians 4:4

www.needgod.com

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bettyg
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T2...

i just copied your request and sent sarah a PM with your comments so when she comes on later today, she'll see it promtply and can take action quicker than eventually coming here to read it.


mary,

i have a request, the long url links caused this to go superwide, could you use the tinyurl.

All you have to do is ask tiny url to produce a short
version, which it will do with a unique address, which you then
use instead in your post. Works just the same when clicked!

Here is the website, spread the word!

http://tinyurl.com/ from other LOU

thanks mary! [group hug] [kiss]

mary, did you get my 55 page newbie links, advise, symptoms, igenex, ssdi disability, info when you joined? i was off board for 1 month due to hip replacement surgery.

IF NOT, send me a PM asking that i send it, and i wil ok! [Wink]

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CaliforniaLyme
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WHAT letter*)!>?! Thanks BettyG- would not have been back over here for sure at all this am!!!

T, best letter I've seen!!!
Best wishes,
Sarah

--------------------
There is no wealth but life.
-John Ruskin

All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer

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lymewreck36
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Bettyg:

My lyme is taking me over, and I will try to make the change you recommend. I certainly see the need for it.

My brain is "swimming," and I am dizzy, but I'll try to figure out the instructions for the change today.

And I'll try to get to the Ladies Home Journal article.

Thank you all for your approving comments. I am a writer at heart. And teaching writing is my love.

But my illness gets in the way. Sometimes I write long descriptive pieces that my family encourages me to publish, but they fall dead because I have no energy.

But you people I hold way up, and your opinions mean so much to me. I feel like I really did something good with my mind, and that is comforting. It is like receiving a parent's approval.

Thanks you guys.

Mary

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lymewreck36
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O.K. Made an attempt at correcting the width of my long post, but obviously don't understand the instructions. Can somebody do this for me, like a moderator?

mary

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bettyg
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mary, that's OK; i understand completely! i tried this before on my newbie links/advise, and had NO success either!

when lyme hits our brains; lots of luck understandings.

i went to plan B; go to bottom left and read it using the option of read FRIENDLY copy; click on it and it doesn't exceed YOUR screen width!

best wishes mary on your problem we all go thru ok! [Wink] [group hug] [kiss]

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WakeUp
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Hi Mary,
Please keep ALL the info you presented-- excellent job and I plan to purchase the books you cited! I'll just cut and paste your piece to my hard drive to ensure that I have it. And then back it up on a memory stick!

Thank you so much for your huge efforts on our behalf. I pray for you and your beautiful children who have been so harmed by this horrible relapsing parasite.

You are a wonderful and brave Mom... [Smile]

Maybe ----with enough dogged persistence-- we can get some of the billions that the government and its no-bid biowar contractors are spending on useless "offensive bioweapons" diverted to finding a CURE for parasitic spirochetes such as Lyme.

THERE'S ONE SMALL PROBLEM -- just about ALL the Lyme researchers in the US are working on bioweapons like yersinia pestis, bubonic plague amd anthrax!!! NOT ON FINDING US A CURE!! Why are Lyme researchers being diverted into these other destructive pursuits? Why have so few double blind studies on treatment been undertaken given the BILLIONS of dollars these guys are getting?

THE ANSWER: These "boyz with bugz" with fat Homeland Security contracts and their "bugionaire" friends couldn't care less about finding us a cure. [Razz]

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listenswithcare
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Did the Post ever print any of these wonderful letters/replies????

Robin

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