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» LymeNet Flash » Questions and Discussion » Activism » Support leaders: Check your listing !!

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Author Topic: Support leaders: Check your listing !!
pineapple
LymeNet Contributor
Member # 11904

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It has come to my attention with patient referral issues that many of the support group listings on the "left" links are out of date.

http://www.lymenet.org/SupportGroups/UnitedStates/

Because a patient called one of these entities and sent an email with no return phone call or reply, this patient became extremely frustrated. Later I found out that this organization listed here as a support group no longer exists.

PLEASE PLEASE PLEASE !!

Click on YOUR state and verify that all information is correct for your organization. If you are not involved as a leader, please contact the individual who is responsible for updating this information and ask them to update. Even if there are NO changes, it would be nice if the date reflects that the information is current so we know.

My suggestion is that if you are not going to regularly update meeting dates, do not list dates, but rather include a general statement to call or email for support group meeting information.

Just my 2 cents. Thanks for listening!

Posts: 339 | From nowhere | Registered: May 2007  |  IP: Logged | Report this post to a Moderator
Meg
Honored Contributor (10K+ posts)
Member # 22

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Good advice Pineapple--

Also, if you have a new group, contact the moderators to add to the support group listings.

So many States have no groups listed!

--------------------
Success Stories---Treatment Guidelines

Posts: 10010 | From somewhERE OVER THE Rainbow | Registered: Oct 2000  |  IP: Logged | Report this post to a Moderator
Freethinker
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i have tried several times to get this added to no avail so here is the information.


Name of Support Group: Little Egypt Illinois Lyme Disease Network (LEILDN)
Contact Person for this Group: Dottie L. Heffron
Contact Person Telephone: (618)204-8084
Contact Person E-Mail: [email protected]

City: Centralia
State or Province: Illinois
Country: United States
Regions of your state / province served by this group (i.e. south-east Pennsylvania): - Little Egypt Area -Southern Central Illinois
Your Name: Dottie L. Heffron
Your E-Mail Address: [email protected]

Other Information: Grassroots organization to educate the citizens of Southern Illinois and the surrounding areas. Speaking out to area schools about Ticks and Vector-Borne Diseases. Education is the key, and our children are the future.
URL For Support Group: http://www.LymeDiseaseNetwork.com

Comments:
We are dedicated to bringing education and hope to the citizens and doctors of Southern Illinois and the surrounding areas. Networking with other Lyme Disease organizations to help locate doctors and personal help for so many suffering from vector-borne diseases. Topics include: Babesiosis, Ehrlichiosis, Rickettsia(Rocky Mountain Spotted Fever), Masters Disease, Bartonella, Q-fever, and Tumaremia.
Email or call us for meeting times and places. We can come to you or your group, for TOGETHER WE STAND!

--------------------
Stop Lyme Cryme!

-Data Over Dogma
Evidence Over Egos
Patients Over Politics.
-EJ Masters

Peer Observations Magazine

Posts: 40 | From Southern Illinois | Registered: Aug 2007  |  IP: Logged | Report this post to a Moderator
   

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