posted
would like any info on symptoms of lyme disease. my husband had blood work done for it but they said he didnt have it. are the tests always right?
Posts: 3 | From penfield, pa. us | Registered: Aug 2004
| IP: Logged |
riversinger
Frequent Contributor (1K+ posts)
Member # 4851
posted
Hi!
NO! The tests are NOT always right. There is a high percentage of false negatives at all stages of testing. Lyme disease should be a clinical decision, based on possibility for exposure, health history, symptoms, and tests as only a part of the picture.
Dr. Joseph J. Burrascano's Treatment Guidelines This is very long, but a very important document. You will find a basic symptoms list, how Lyme and co-infections are diagnosed, and general treatment protocols.
Welcome to Lymenet. Others will be along with yet more information, but those are some of the most critical.
If you give us more information about your husband's history, we can also give more feedback. It is very common for doctors to not be able to diagnose Lyme disease.
You best chance of diagnosis and treatment are to see a Lyme Literate Medical Doctor (LLMD), someone with experience in diagnosing and treating this difficult disease.
If you go to the forum Seeking a Doctor and post a request, someone will send you a referral.
NO! The tests are NOT always right. There is a high percentage of false negatives at all stages of testing. Lyme disease should be a clinical decision, based on possibility for exposure, health history, symptoms, and tests as only a part of the picture.
Dr. Joseph J. Burrascano's Treatment Guidelines This is very long, but a very important document. You will find a basic symptoms list, how Lyme and co-infections are diagnosed, and general treatment protocols.
Welcome to Lymenet. Others will be along with yet more information, but those are some of the most critical.
If you give us more information about your husband's history, we can also give more feedback. It is very common for doctors to not be able to diagnose Lyme disease.
You best chance of diagnosis and treatment are to see a Lyme Literate Medical Doctor (LLMD), someone with experience in diagnosing and treating this difficult disease.
If you go to the forum Seeking a Doctor and post a request, someone will send you a referral.
Thanks for the info. so glad you wrote. have been trying to find some good info. hubby has had so many things going wrong. seems everyday is something different. we do know a guy that has lymes, or rather many people.our next step is to see a lymes doctor. i have said all along that, that is what he has, but the doctors look at me like i am some kind of a nut. we live in pa, in an area that is very bad for lymes. he went to p/t today. the guy told him he has alot of tight muscles and alot of weak muscles, not sure what is causing it. has anyone been told this? thanks again for your help. lopa
Posts: 3 | From penfield, pa. us | Registered: Aug 2004
| IP: Logged |
Kara Tyson
Frequent Contributor (5K+ posts)
Member # 939
posted
There is NO lab test that is always right. And that includes Lyme Disease.
Contact the following PA support groups and they will help you your husband to a Dr. who can say whether or not he has the illness.
posted
I had severakl sets of tests. they were all negative for 3 months from the onset of the illness. but time is of the essence. Letting it go for three months can enable the disease to go chronic. You REALLY don't wabt that!. You should find a "lyme literate doc" ("LLMD") as soon as possible- like SOON! Next time I seem likely to have lyme, I will try to cop some antibiotics immediately! I'm not gonna let what happened last time happen again! DaveS
Posts: 4567 | From ithaca, NY, usa | Registered: Nov 2000
| IP: Logged |
Hope you find the answers you need. This is a good place to start. You will recieve wonderful support here, so continue to ask questions if you need to.
You and your hubby take care. Best wishes to both.
Posts: 688 | From SW Arkansas | Registered: Dec 2003
| IP: Logged |
treepatrol
Honored Contributor (10K+ posts)
Member # 4117
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic