Am new here .

Am being treated by a LYME MD here in Canada, and have some questions.

Have had lyme about 16 years, just started treating it one year ago.

Did the biaxin/flagyl combo, and did help, but not the whole pic. Was on them for about 6-7 months, and had to wean myself off of them cause of the candida, got really bad in the breathing.

Spent one month in bed sleeping, recovering, fighting... without antibiotics, to get the body to a better level of health. Get rid of the candida, and did.

Thought that I was fine, the LYME was gone, and would continue to improve. LYME MD said he wanted coinfections testing done, and I had to be off antibiotics for 2 weeks for best results. Had the echrilosis, the RMSF, and the Bartonella done.

After being off antibiotics for 75 days, went into a severe relapse I would say, and ended up at the ER, near dead. All the breathing, the lung congestion, the lung burning, breathing basically shutting down.
I thought or think it was a lyme relapse, and got back on the flagyl and biaxin, and did help me, saved my life, but not working like before.

Called LYME MD, said he still did not think it sounded like LYME, and after me sobbing on the phone, telling him I thought it was,
and that the antibiotics saved me again, but not working as well, asked him for a change in antibiotics.

I am now on the flagyl and the azithromycrin. Will see how I do.

I will be visiting him in a few weeks, and he will access me further. He is quite good, and says it does not sound like lyme, that possibly another coinfection.

The echrillosis was negative, or non reactive, the Bartonella borderline, and the RMSF has not come back.
Babesia he has not done, and will ask him about this.

Since being on 6 months of the antibiotics, the fatigue/stamina/exhaustion is about 90% better, did not even return when I went off antibiotics for 75 days. The lungs are what went drastically downhill and got worse. I had the saturation in the lungs show 98, so they think I am fine, I am not.

Since going back on the antibiotics 1 week ago, the suffocation at night is better, but whaat I have developed is so odd, it is DRY mucus membranes. I developed this while I was off antibiotics.. for the 75 days.
It is like a Sjgrodens syndrome, and possibly it is lyme related. It was not a predominant symptom of lyme through the years. Just had the dry eyes once in a blue moon.

I have not read on here, that many have severe lung infestation of lyme.

Can anyone shed some light?
My lungs have become severely dry, and dont sleep at night... and hopefully it is just a lyme symptom, and will go away since on the zithro and flagyl.
Maybe the lyme has morphed?

Any comments would be great,

thanks,

Very early in my treatment I was on Flagyl & it seems to me I had breathing issues while on it - you might want to search Flagyl's side effects.

I couldn't stay on it long, just to many reactions to it.

Someone else will come along soon who maybe has had similar lung experiences.

Welcome. I'm sorry you had to find this site, but glad you did find it.

Just a little advice to remember every symptom isn't always Lyme. I always believe in getting any serious symptom fully checked out by a specialist.

It may very well be the Lyme, or it may be another infection entirely, or the result of a tired immune system. What you describe is very serious.

I would recommend finding a respiratory specialist, in addition to your Lyme MD. Just to cover all ground...you wouldn't want to miss something because you assumed it was the Lyme.