It really helps with the pain weakness and overall energy,,,even if its for an hour

How much is too much,,

I used to take 90 mg then went up to
200mg daily now im taking
400mg daily of the softgel

Does the coq10 also give energy to the bacteria and yeast???

How are you doing? Hope things are going well for you.

I respond to COQ10 very well, also.

I've finally worked myself up to 500 mg per day of CoQ-10. It's 500 mg per capsule in the powdered form so it's fat soluble.

I know the liquid is water soluble and more easily assimilated by the body, but I really wanted to try this stuff.

The actual instructions on the bottle are one 500 mg. capsule twice daily. Can you believe that? 1000 mg daily?

This brand can only be purchased through a doctor:

Pure Encapsulations
Sudbury, MA
CoQ10 500 mg per capsule
60 capsules per bottle
Cost $125
http://www.purecaps.com/faqs.asp

Their website has a great question & answer section. I just wish you could make direct purchases.

I think folks with cancer and congestive heart failure use this in high dosage. It takes a while to see benefits. I'd love to take 2 capsules a day, but can't afford that.

Because it's an anti-oxidant, I would think it's best taken away from ABX. It's always a chore of how best to schedule everything.

I notice my gums are no longer spongy. I just know it helps my brain, heart & liver.

I wanted to tell you that I just went on Amantadine (anti-viral) for my brain. This med makes dopamine in the brain.

Dr. B. recomends it to increase absorption of Zithromax or Biaxin.

I'm so excited to finally get it. My former LLMD said no, but I have a new LL/FNP (Member of ILADS) and she said YES.

How great is that?

I haven't used Wellbutrin in a long time. This really helps balance my neurotransmitters. I feel like I'm operating on all cylinders.

It also treats the Borna Virus which causes depression. This is tested & treated routinely in Germany, but over here seems to be forgotten. Why? Probably because the tratment is too cheap.

It does lose its effectiveness over time, so you want to start with a low dose for as long as possible.

If you overdo, it would caue major imbalances in the brain and work against you.

I think taking just this I could fall asleep. But when I add on my new Doxycycline--------well that screws my brain up all over again. I still haven't worked up to the recommended dose of 400 mg. daily.

After l8 months straight of treatment, Doxy is still finding stuff to kill off. I was totally shocked. It triggers really bad head pain. (It can cause increased intracranial pressure.)

My LL/FNP also prescribed B12 injections to be taken daily. This is so great. I use the insulin syringes and it doesn't hurt.

I think anyone who is a member of the Neuro Lyme Club should try it. LD patients don't absorb Vit. B12 properly and the routine blood test is not the proper diagnostic test.

You have to do a 24 hour urine for maledonic (sp.) acid. It's easier just to get the prescription.

Here's my favorite article if any other readers want to see it:

A Shot in Times Save Mind

http://www.mts.net/~baumel/B12.html

So what's your favorite brand of CoQ10. Did you find a good one?

I think there were a couple of threads about CoQ10 a couple of months back, if you want some fast answers about CoQ10.

Hope this helps. Let me know how you're doing.

Thank you for your response and for wondering how i was.

things have been worse,,lets just say that

I still have the vertigo and the feeling like there is fluid moving around in my ears.
This is very annoying cause when I got it b4 it went away with drugs.

Its now been 6 months that ive had it.
3 doctors and no help.
All triggered from staying in a sauna with PVC mats emitting strong chemincal fumes.

I did get most of my money back from the gym at least.

The nasal-corticoids that I was taking for a month just gave me a bad bloddy nose so I stopped.

The ear drop corticoids made me feel really buzzy and anxious in a bad way.

The anti-histamines work a little.

Im considering going on a fast, or a near fast. I hear that this will help drain and get things moving again.

I will not live with this vertigo any longer.
Maybee I should go to a religous seminar and have them heal me. lol

As far as ABX I am on 1000mg of biaxin daily.
This took 5 months to get to this level.

He added in some doryx which is coated doxy.
I was on doxy b4 with no reaction.

He says that it might work with the biaxin in my benifit.

My last appointment with the LLMD was disapointing. He asked what ABX I was on and then forgot that he gave me the nasal-corticoids.----------I am optimistic that this is because he was seing soo many patients. That he is inundated.

I do like him though. I told him that the wellbutrin was causing me to not sleep (after a week).. It did help with motivation, libido and made life and objects more colorfull. however.,,

it did lose effectiveness over time and my blood pressure was def- raised on it chronically, and the insomnia part.

He still didnt even wana talk about benzos or mood stabalizers. He just said that he wasnt a fan of them.

I can see his point in that how much of the mental stuff is just from the infection.

Good to hear that the amantadine is working for you. Does it stimulate you too much?
The wellbutrin at first was very drastic(lots of side effects)

but they really did subside, except for what I just mentioned above.

What makes you think that you have the bora virus anyway, ,,, did you have a test?

good to hear.

Sorry to hear things are actually getting worse.

I can't believe you still have that vertigo. I don't know how you stand it or how you function.

Does your LLMD think the Biaxin is contributing to the vertigo? Just wondering.

Well, I'm glad you got your money back from the gym, but naturally I'm more worried about your health and that your struggling.

I remember you saying how good you were doing prior to them placing the mats down. You were doing all the right things trying to get well & WHAMO.

Is there anywhere you could find that offers those ozone saunas. I've found a place, but can't seem to get over there. My sister-in-law started doing them & said they helped her sleep.

She said she was exhausted after work and had the ozone sauna and left feeling wonderful. She goes there regularly.

She said you sit down in this encasement with your head sticking out with a towel around the neck; as it's dangerous to breathe the ozone.

In fact, Orion on Lymenet posted how to construct your own Ozone sauna with specific instructions.

I'm hoping we can do that eventually.

It's supposed to be great for detoxification.

Just make sure you go somewhere reputable.

My only experience with ozone is with the UVBI treatments which is an IV.

Prelyme diagnosis I had several UVBI tratments which is ultra-violet blood irradiation.

Anyway, they remove a small amount of your blood based on body weight and pass it through a quartz curvette in front of a light. Then they add ozone gas to the IV bag which has your blood in it.

Then the blood is returned to you via IV.

The first UVBI had no ozone, but I still felt like a million dollars. I felt l8 again. It was great.

That was a lightbulb moment for me and I knew I was fixable.

Eventually they started adding ozone to their UVBI treatments and that packed a punch. Now that's what you want.

I had die-off with that. That night the back of my head was burning due to the inflammation. It kills bacteria and viruses, but it is not a cure for Lyme.

I felt then that I must have some form of meningitis. Just couldn't quite figure it out.

I would use it today as an adjunctive therapy if I could afford it, but I'm not working. There are a few antibiotics which you cannot be on & do the UVBI.

That was done through my pain doctor and he was wonderful.

Got sidetracked there, but I just want to tell you that I do believe in the benefits of ozone in detoxification. You might think about that, too.

I have to eat protein to stay out of pain.

Whatever detox you choose, I hope you will be sure & get on a "tried & true" program.

Don't let yourself get too weak. I know some use spirulina capsules as protein while detoxing.

I found this site yesterday about Patricia Kane detox. I think I've heard the name, but don't know anything about it or what it targets.

http://www.detoxxbook.com/

I have used ear drops for ear pain. Mine were RX Neomycin and Polymixin B Sulfates and Hydrocortisone 1% by Bausch & Lomb which was approved by my LLMD. I didn't use it everyday-----just for pain. I had to have them or I would've died.

The Biaxin is supposed to be real strong. Gosh, I can't believe the Doxy didn't affect you.

People are so different on meds it's unbelievable. I dread next week because I'm starting Doxy again and gradually ramping up.

Sometimes office visits are disappointing, but I'm getting the feeling that all these LLMDs' practices are exploding with patients.

But still, I know it's not like it use to be when you went to the doctor. Now, they're pretty much in a hurry. Plus, LD treatment is extremely complex and individualized.

I'm sorry he didn't even want to talk about benzos. That's got to be a letdown.

You will improve with ABX, but I do hate to see you suffer in the meantime.

The amantadine is not stimulating at all. You don't feel it. You just feel clear-headed and calm.

You definitely couldn't take amantadine with Wellbutrin because they both augment dopamine. You'd go into dopamine crises or something like that.

It's not anything like Wellbutrin. There is no hyper feeling to it. I have a fine head tremor that nobody notices, but I feel it. My neck is weak. It's probably full of toxins.

Anyway, I took it first one Sunday morning and by that evening-----my brain just felt normal. I know my brain has got to be low in dopamine so I just think my brain soaks it up like a sponge.

I didn't want to go to sleep that night because I felt good in my brain. I was enjoying my brain and my speech was strong. LOL

There are symptoms of low dopamine levels and one is weight gain. For me, Elavil made me gain weight like crazy, too.

I'm trying not to take Elavil which is seratonin related. Seratonin and dopamine are inversely proportionate. I'd just be undoing the effects of the amantadine by taking elavil.

I was never tested for the Borna virus. I had taken amantadine for the early days of the flu in the 90s.

I felt better on the amantadine with a horrible case of flu, than I did without the flu. I didn't understand why then, It's taken years to figure out the dopamine link.

All Lyme patients are immunocompromised, so I guess I probably have some viruses on board, anyway.

I read that ticks carry viruses on Lymenet.

If you're still reading, I'm glad you gave me an update on how things are going.

Keep me posted about your vertigo.

Take Care,
Jan

Cancer (virus - according to Rife - which was once a bacteria - and can revert) also follows the glycolysis pathway.

CoQ10 carries hydrogen INTO the cells.

This is documented on my "In a nutshell" post.

The beta glucans (neg and pos. charges)= the mushrooms. These produce hydrogen. That's why mushrooms are used to fight cancer in Japan.

Dr. Weil said, "Lion's mane (one kind of mushroom) can repair the myelin sheath."

Thanks for the great information. I appreciate your input so much. It always helps me.

Jan

Glad to hear that the amantadine is working for you. Im thinking about ordering some myself, allthough Id like to get rid of this damn vertigo first.

Ive had it much worse, but now its just annoying and effecting my memory majorlly.

I just ordered some fenugreek extract and am gonna take mass doses of that again,,

Im also gonna focus on losing 5 pounds of fat as fast as I can,, I think this will move things around.

The sugar def- makes things worse and this new ND says that salt is also bad.

The thing is Jan that I know it is because of too much fluid in my ears,,

I can feel it moving around,, I guess this is a good thing because it means that nothing is attacking my nerve.

I bet its just a sensitivity/allergic reaction.

The thing is it is all the time chronic.
My arms feel like they are 7 feet away from me and when I walk forward I feel like im moving backwards!!!!

Im really trying to control my mind so I dont focus on it. I do belive in psychoneuroimmunology and all I have left now is my faith.

The doctors dont have any answers, I could go for an ENT, but that wont "fix" anything.

This last ND even pulled on my ear lobes really really hard until they snapped,

he still says that the lymph needs to drain.

I know something that needs to drain. Ill say it again,, I can feel it, the pressure in my ears.

I just wanna open my head up and scrape it out!!! lol

..if surgery were effective and there was no risk of losing hearing I would go for it.

Take care jan and stay well.

I know you don't feel well, so I thought I would be sure & let you know that Amantadine is a prescription. I didn't want you to try and spend precious energy trying to search for a source.

mainlly piracetam