I was on heparin for at least 3 years, so was my daughter. Bleeding wasn't a problem. I had wisdom teeth pulled, and several surgeries, in patient and out while on heparin. My daughter gave birth to her first child while on heparin. None of these doctors were concerned.

They weren't concerned because compared to other blood thinners, heparin is VERY stable and it has a very short half life. Six hours and there is hardly anything left. That is why it has to be taken several times in the day.

The dose is very, very tiny, compared to what you are given in the hospital by IV for blood clots. Underr those circumstances they keep it running through your system continuously.

Another concerrn that might be there is osteoperosis. That was a concern when they first started using heparin in treating our hypercoagulation. They only kept you on it for a few months. They have come to realize at the tiny doses, osteoperosis is not the major concern that they had thought.

My doctor feels that if you have hypercoagulation and are in say a car accident where you are really hurt and bleeding, heparin might just save your life. How? The fibrin that is eliminated by the heparin is just one part of the clotting cascade. If your blood is full of fibrin and your body starts the rest of the clotting cascade in order to stop the bleeding, you might be more likely to produce a life threatening clot with the high fibrin levels.

So unless your medical people have done some research on how it is used for us, they are really just making stabs in the dark about something they really know nothing about. Maybe you could get them some info and help to educate them. Heparin has been one of the most powerful tools in regaining my health.

What the nurse is referring to is heparin therapy they give people with blood clots. They give massive doses of heparin in IV's. That is dangerous.

I've been on heparin for three years. It's helped me the most with pain, fatigue, and brain fog.

What I have read and been told, alot of people with Lyme and CFIDS/FM have hypercoagulation issues, What some on here call sticky blood. What hapens here is that Fibrin increases coats the walls of the capillaries and prevents the body from releasing heparans which is the bodies natural blood thinner.

Bb and other bacteria and viruses get protection from this Fibrin and are harder to get too. So using heparin helps disolve the Fibrin and puts the blood back into a normal state. If a doctor has determined that Hypercoagulation is an issue and has ruled out blood disorders that would be made worse by the use of heparin, it should be ne ok to use.

But there are downsides as with any medication. You do have to be careful that you do not use to much, because it could really redue your clotting factor. Also heparin also does not prevent dammage to platelets due to other problems, such as fragmented red blood cells.

If using heparin you need to protect yourself from injury because the use of heparin will increase clotting time which means that an injury could cause you to bleed more than usual. Regular blood tests should be done to to make sure that you are not taking to much.

I am not a doctor and this is only from what I have experienced and been told by other doctors.

But what would be the problem with using an out of state script and just have the labs sent to the LLMD? The most important one is done 10 days to two weeks from starting the therapy. You need to have a PT,PTT and CBC done. Then monthly and after a while I didn't even do monthly.

it is not dangerous, but also has not shown any empiric proof whatsoever that it has any effect on helping degrade borrelia.

of the utmost importance is to remember that tertiary lyme is not a blood stream infection, if it were abx would kill it much more easily.

it is a central nervous system infection, where the antigen attaches to the cells and tissue, a place where heparin cannot reach.

if borrelia were still in the blood stream (and some of it probably is) then heparin could help inhibit the attachment of the antigen to the cells.

but studies stating the latter has only been done in vitro concomitant to borrelia.

Heparin is not istelf intended to destroy Lyme, although there have been a couple of studies, one indicating it does inhibit Babesia and another study I just read about a week ago that it may also affect Lyme. That report was more complex and I would have to really read it again. I could post it here so that others could try to sort out what it says.

The way that heparin becomes useful to us is this. It is normal that in times of infection our bodies produce more fibrin creating a hypercoaguable state. The problem comes when the infection becomes chronic. When it is a chronic infection you end up with fibrin being constantly produced. Fibrin is a sticky substance and eventually lays down a thick coating on the inside of the viens and can completely clog off capillaries, this was my experinece. This fibrin coating has been described as Teflon.

When we take ABX, whether by IV or orally it should end up in your blood stream. Now, imagine your viens being covered with Teflon, can it even get into your bloodstream from your stomach due to the Fibrin coating?

Lets just say that it manages to end up in your blood by way of IV. It can ciruclate in the blood but will have a very difficult time passing through the Teflon/fibrin coating. If it can't pass through the walls of the viens how is it ever going to get to the brain, tissue, nerves, etc.?

Hypercoagulation is known to prevent nutrients and oxygen from passing through, so it wouold seem logical that ABX would have a much tougher time reaching the target with the fibrin barrier.

Fibrin might well explain why many here can take such huge amounts of ABX and not really herx. The ABX might not even be reaching the pathogens in the first place.

I was on heparin for about a year before I ever tried ABX. Most here say Doxy did nothing for them. Well, 200 mgs a day put me in the hospital, the herx was so severe. Something was definetly being destroyed. I herx severely on just about every ABX I've tried so far and have to move very slowly.

He called the script into a compounding pharmacy and they sent it to us.

Dr. C gave us orders for blood testing and they had it done at our local clinic.

The Heparin that we use for the PICC lines is no were near a theraputic dose.

There is a theory that in fact Bb is being protected by the Fibrin that is formed, which keeps the antibiotics from reaching it.

After a month of IV Primaxin and IV Glutithione, all of a sudden I am having aggregated platelets. This is interesting to me. Now I do have a history of TTP, but normally platelet aggregation starts when the platelet counts fall below 25,000 mine are in the 140,000 range.

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Originally posted by Jellybelly:
Since I have had such good sucess with Natto, my doctor is starting patients on it first and then moves on to heparin if it is not enough.

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I did the shots at first [self-administered] but I would get a rash at the injection site several DAYS after the shot. Really weird.

hwlatin is right about the heparin used for IV flush. It does nothing for you except flush the line.

My husband had a blood clot in the calf of his leg just below his right knee. Our MD told him to take 2 Nattokinase tablets twice a day. In three days the clot was dissolved. t is safe and effective, and best of all from a natural source. Nattokinase is an enzyme derived from a process of fermentation involving boiled soybeans and Bacillus natoo. Research has shown nattokinase to support the body in breaking up and dissolving the unhealthy coagulation of blood and to support fibrinolytic activity.

Research it on www.google.com.

I'm going to take lumbrokinase and baby aspirin.