posted
Alright, I have been out of the loop for several years, but to make a long story short: Daughter, 28 years old, has been suffering from Chronic Lyme since 1992. She has been off and on oral antibiotics over this time and was seen by Dr. Burrascano himself, so we have used as much ofhis protocol as possible. We have also studied and tried nearly every intelligent alternative therapy that we could deal with. We have been living in Britain for the last 11 years, where knowledge of Lyme is in the stone age, but we have managed to find a doctor who will prescribe according to our research. Two years ago we tried combining and pulsing Flaxyl and Cefuroxime at the high levels recommended by Burrascano. We didn't see any results after 6 months and went onto pain killers thereafter (tramadol - which seems pretty good by the way, not for the Lyme pain, but for relaxing the muscles so the lyme pain isn't so miserable).
Question: After Dr. B's Guidelines, there seem to be good feedback on three protocols. Marshall Protocol however is rejected as the Benicar seems dangerous - my daughter already has low blood pressure.
Schardt Protocol looks best to me. But what do you think of Roxithromycin with diflucan, sequencing them or combining?
Combination and Pulse: Schardt is against using broad spectrim antibiotics, but I hear good things about minocycline.
what do you think about combining and sequencing Mino with Diflucan and Bactrim? with Ketek?
Thank you for any help you can offer, Linda, aka Pal Linda, aka Laura Dunlap
Posts: 6 | From Bath, UK | Registered: Aug 2005
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posted
Hello Linda, At last, it's good to see someone else from the Uk posting- and I see you live not far away from me, I'm just over the river Severn from you. I see that you too are up against the stone age UK system- GP's that have even heard of Lyme are hard to find over here. I have been doing various antibiotic therapies along with plaquinil but an allergy to the former has meant I've had to stop- just one lot left to try which is the cephalosporins. I was thinking of trying Benicar but I see you mention it with links to low blood pressure- something that I've had in the past. As to your question- I think anything is worth trying, we are all different and what works for one person might not for another. And you are in the right place to find an answer to your question!
Posts: 229 | From United Kingdom | Registered: Jul 2005
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Hello, Please e-mail me and let me know some further info about your situation. I actually used to know a lot about all this, but I have been out of the loop. I am playing catch up pretty quick though.
thanks for saying hello, Laura
Posts: 6 | From Bath, UK | Registered: Aug 2005
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posted
Hi I am a UK patient of Dr B too, I'm 34, Scottish and live in Northern Ireland.
I tried the MP with his guidance (not that he was convinced it would work) and I went downhill very badly so it didn't work for me and I did have low BP after it (though I didn't before.)
I haven't heard of the other protocol except that I have done Diflucan for 3.5 weeks and it didn't help my Lyme.
What I believe is in finding the right combination for the individual and that combinations have greater killing spectrums. Personally atovaquone works best for me, then probably Biaxin out of everything I've tried.
I continue to try combinations with Dr B's guidance. Ketek worked well for me and has some action against co-infections but I developed an allergy to it unfortunately.
Ketek has many interactions, I don't think it'd be a good idea to take Diflucan simultaneously.
Ketek and Cipro is possible, Dr B had me on that. I'd get professional guidance tho with what to use with Ketek. It can prolong the QT interval, so I got an ECG done first.
Best wishes Emma
Posts: 37 | From Whitehead, Northern Ireland | Registered: Feb 2009
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Print off the links then check them off as you read as you could spend several months reading all of this. Treepatrol constantly adds new links as they become available from the members here.
print & read Dr. B's (a lyme literate MD) info first; you will come back to this often.
Some guidelines from Betty/others on using this message board:
* Do NOT use all caps when posting; it's hard on our eyes. But I know one of our members has macular degeneration, and all caps is what she can see & read so exceptions like this are acceptable for good reasons.
* We chronic, late-stage lymies can NOT read long paragraphs. So please limit your paragraphs to 6-8 lines max of text and double space between paragraphs.
* You can EDIT your text comments anytime. You can NOT edit your subject line so please make it as specific as possible instead of ``help, question'' etc. in order to have more readers/replies in trying to assist you. There are between 30-40 NEW/replies to post daily so we can't read all the posts on our limited time here...thanks for understanding.
* If you use the ``quote'' icon, please DELETE [B] bold at the beginning & ending of the quote. This makes it easier on our chronic, late-stage lyme eyes.
* To just reply without quoting, go to the top or bottom of screen in the black & white area to reply or post a new topic. Many of us couldn't see it when we 1st started posting. Thank you for helping us all out! * * LYME SYMPTOMS - http://www.lyme.org/otherdis/ld_symptoms.html Bettyg, Iowa
Posts: 1 | From US | Registered: Aug 2015
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