posted
Is Harvard a bad or good place to go regarding accurate medical (lyme disease) info? We have a very green LLMD who plans on attending a lyme conference at Harvard. Could attending this conference possibly toss him over to the Steere side of the fence?
Thanks!
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Linda LD
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posted
I believe Yale are were the bad guys hang out.
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when is the conference? do you have more info on it? steere is actually at harvard currently (at MGH). That being said, they're hopefully pushing the understanding of lyme - towards the cronic line of thought.
No ideas as to what to recommend for the new llmd.
please let me know. thank you!
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posted
I don't think Harvard is a good place to get accurate info on Lyme. Steere is their Lyme star.
Can your doc wait until fall? ILADS conference every year, and that would be a much better place for him to learn. And in the meantime, there are the ILADS treatment guidelines, etc that could be used.
There are also DVDs available from previous LDA conferences which are an excellent source of info for newby docs. Maybe you could buy the set from most recent conference and loan or give to doc. Would be money well spent.
Posts: 8430 | From Not available | Registered: Oct 2000
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A. St--re is listed as a staff physician at Mass General (Harvard's teaching school) and also as the: Chief, Rheumatology/Immunology; New England Medical Center (Tufts' teaching school).
I only know this because I was in the middle of losing conciousness during a Tilt Table Test at NEMC when an announcement came over the loudspeaker inviting all doctors to a lunch time conference by A. St--re about recent developments in lyme disease research.
I thought I was in the twilight zone...
[ 15. February 2006, 02:53 PM: Message edited by: Bluetick ]
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liz28
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posted
Columbia is probably better.
By the way, a local hotshot doctor recently shared that that "latest" in Lyme is that people spontaneously recover several months after taking 30 days of doxycycline. So you just patiently wait for several months, don't take any other antibiotics, and then one day, you will be cured by magic.
Foggy
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posted
I loath that our taxpayer $ goes to fund studies to disprove the only efficacious treatment modality we have instead of new diagnostics and therapeutics. Posts: 2451 | From Lyme Central | Registered: Aug 2001
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posted
Thanks much for your feedback and links. Some of you really tickled my funny bone!
I don't know when the conference is, but it sounds like he wants to attend. This particular doctor is 'in training' and so far, he's doing a good job. Don't want to see him led down the wrong path . . . by following a heifer or a steer!
Thanks again!
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hopeful123
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posted
a heffer or a steer
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henson2
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posted
Well, I can tell you this:
The Infectious Disease Dr. I saw at Harvard (not Steere or any other big names) missed my Lyme completely and I was mis-diagnosed w. CFS for almost 6 years.
It is well known that Boston is a tough place to have Lyme because Harvard's Univ. and teaching hospitals are so conservative. (i.e. unreceptive to the possibility that one may need more than 30 days treatment; and unaware that the CDC calls Lyme a clinical diagnosis).
Harvard plays it by the book: Not 5 positive Western Blot bands? Then you don't have Lyme!
It was by sheer good fortune and the grace of Providence that a chance encounter with someone turned me toward pursuing more info about Lyme as a possibility. I didn't even believe them at first. How could I have Lyme if Harvard said I didn't???
Well, they missed it big time. NOT a good place for a young Dr. training to get the right info to truly help Lyme patients.
I called back that Infectious Disease Dr. still sick after 4 years and she said, "Oh, I thought you'd be better by now!"
Antibiotic treatment made me better. But I am still paying in some ways for the long time it took me to get treatment.
BTW, I know of a student at Harvard who was told: "You are just having trouble adjusting to college life." She had neuro-Lyme. She did finally get the right treatment, but it was delayed.
It is very sad.
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