daystar1952
Frequent Contributor (1K+ posts)
Member # 3255
posted
Hello there :-)
I may have brought this up before but don't know as I included the flashing lights. Oh, maybe about 8 times now, at night in my room, while I'm awake or have just woken up, I will see flashing lights shining in my bedroom windows. I always think at first it is someone outside with a flashlight, spotlight or headlights. Then....a hallucination ( or maybe a vision from another dimension :-)always appears. The night outside turns to daylight and I usually see one of my family walking around outside or doing chores.
I know it's not real so I sit there in bed with my jaw hanging open , trying to sustain the moving picture that looks so real right in front of me. As I strain to keep it there, it gradually fades away and I just sit there and say Holy Cow!....this is fascinating.
Seems as tho Lyme opens up a whole plethora of new perceptions and even abilities. Many have commented on having increased intuition or creativity or even psychic awareness.
I have noticed that I have auditory hallucinations.....but whose to say they are really hallucinations. Maybe our brains are now wired differently to recieve frequencies out there in the atmosphere that others can't hear. When I was sicker, I was hearing morse code tones...very electronic so I do not think they were organic in nature.
Posts: 1176 | Registered: Oct 2002
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Jellybelly
Frequent Contributor (1K+ posts)
Member # 7142
posted
My family and I were having a similar conversation about some of this stuff. We particularly have heard voices. Not like people are talking to us, but maybe this has happened to others. It is more like someone whispering our names. It used to happen to my son a lot when he ws about 10-13, did worry me a bit, because it would scared the heck oout of him.
Every now and then I do hallucinate a bit when coming out of sleep. One time I saw my son's 18" iguana who had run away, up on my bed post. Clear as a bell, and in full color, he was bright green. They only last maybe 4-5 seconds, but it does make me sit up.
All of us seem to notice this when we feel not so good. My son says he notices the voices when he needs to eat, and he is very sensitive to low blood sugar apparently.
Posts: 1251 | From california | Registered: Apr 2005
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bpeck
Frequent Contributor (1K+ posts)
Member # 3235
posted
What antibiotics are you on.?
I took alot of the tetracycline family of drugs- first as a monotherapy, then as a combo therapy.
I had alot of neuro symptoms (migrating burning pain throughout my extremities, constant headahces, trigeminal nerve pain, etc)) and I had to take a break from the abx many times because of worsening eye pain (posterior uveitus, stabbing pain - flashing & swirling lights-immune cells packed into the vitreous humor- foggy vision - lost part of my visual field - hurting to look right, left up, down)
So I pulsed my abx and would stop when the symptoms got too much then waited to resume them when these symptoms subsided.
On Doxy, then on Mino I also had vivid dreams, progressing to nightmares, progressing to night terrors - then progressing to Daymares... and I'd I'd have to fo off the abx for this too.
I had very late stage (25 years+) untreated Lyme and I'm guessing this brain activity was due to the Doxy (and then Mino)...
While I've always been an active (and Lucid) dreamer - I've never experienced anything like this in my past.
I really do not know if that brain activity was because the abx was in the brain rattling up colonies of Lyme- or if it was a drug side effect - but either way - I had to stop the abx for a while (and I'd switch to a different abx).
ALso for a while the Docs thought I had MS - BUT I never gave the Docs a chance to dx me with MS- because I consistantly refused an MRI - I figured why have one and then just have them argue over how to read it.??
In any case- if you are on abx- and they're causing night terrors then I'd back off for a while.
daystar1952
Frequent Contributor (1K+ posts)
Member # 3255
posted
Hi Barb.....I'm on doxy, Biaxin and artemesinin.....and klonopin too , which may also be causing this. However, it's funny because these visions/ hallucinations are not terrifying at all. I sit there in amazement watching it all, hoping it won't go away but of course it always does fade out. I am amazed at what the brain can do.
If seeing something like this looks that real....I wonder if "real" life uses the same concept or mechanism. Some physicists say there is no matter and our experiences are our conciousness objectified. Anyway, it's all so interesting.
I've also heard how lyme creates new positive creativity and intuition in people. It's almost like the brain gets rewired and maybe even sound hallucinations aren't really what we think of as hallucinations ....but instead being able to tune into sounds and realities that are really out there but others are just not aware of.
It's all just speculation but I love thinking about this stuff
Posts: 1176 | Registered: Oct 2002
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BostonLyme2005
Unregistered
posted
How long have you guys been ill with Lyme, co's, etc?
posted
I took biaxin a while ago and had a lot of dreams. In fact, my PCP at the asked if I had any nightmares without me mentioning anything...seems like she knew something that I didn't.
Posts: 187 | From Gaithersburg, Maryland | Registered: Feb 2006
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daystar1952
Frequent Contributor (1K+ posts)
Member # 3255
posted
Hi Boston Lyme
I've mostly been on Biaxin, Klonopin and doxy. I also had an out of body experience...just once tho. I've heard many people have also had these experiences who are not on any type of drug.
I feel something else is going on here with folks....besides just a sick or drugged brain. Like our brains are rewired in some manner to recieve perhaps different frequencies, intuition, etc.Perhaps it's a spiritual thing. You never know. In fact there is really so little that we do know. People have different experiences. My friend Sue Vogan who wrote NCO: No Compassion Observed...about lyme and the military, says that she has talked to many many people who ...after having lyme have developed new talents , such as painting, writing, new musical abilities, etc.
She has also talked to those with say diabetes, cancer, etc and says that she hasn't heard of that classification of diseases as having the same experiences.
So, who knows...maybe there is a good side to having lyme and eventually most everyone will experience the benefits. So, keep an eye on the positive. :-)
Blessings to all Margie
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Jellybelly
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Member # 7142
posted
At my sickest I was highly intuitive. Many say that I am an empath. I could be in a group of people and feel totally exhausted after a short period of time, because I felt like I was feeling everyones stress. They didn't even have to do anything but walk by.
Thankfully! the healthier I get, that intuition is disappearing. I never knew what was wrong with people, just that something was terribly wrong. Eventually I would be told what, and I have heard some of the most awful things. It's like people were also drawn to me. I have had perfect strangers tell me the most horrendous things in a matter of minutes, wreck my day, and I never see them again.
Sphirochetes are very smart, and maybe it is the accumulation of their brain power with ours that makes us sense things in their realm. LOL Posts: 1251 | From california | Registered: Apr 2005
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daystar1952
Frequent Contributor (1K+ posts)
Member # 3255
posted
Very interesting Jellybelly. I don't blame you for wanting that to go away. I kind of find the opposite. As long as I periodically recharge myself, it seems I give off something....energy I guess, that makes people want to hang around me. I don't feel it's my personal doing but that I'm just being a channel. When I am on the right track (which isn't all the time)I try to stay open to whatever one wants to call it that flows through all of us when we let it.
Seems like all that empathy and intuition you experienced could come back but in a better way for you?
How bout synchronicities....anyone experience more of them since they've been sick? Unlike Jelly Belly this stuff...like synchronocities and everything began to come around as I got better...so who knows if there is any rhyme or reason to it. See guys....if you are still in the real sick place where things look hopeless...all this fun stuff might lie ahead of you Posts: 1176 | Registered: Oct 2002
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suki444
Unregistered
posted
I get the strobe lighting effect in my eyes at night...my LLMD said it is brain inflammation..mine is a bit better with treatment - it comes and goes now.
It should resolve in the long term with abx...Babesia treatment helped mine.
NP40
Frequent Contributor (1K+ posts)
Member # 6711
posted
The abx will eventually clear these symptoms. My teenager would see people that weren't there and hear gunshots. The Bb can affect different area's of the brain.
Strong pain meds can play a role as well, especially fentanyl patches.
Posts: 1632 | From Northern Wisconsin | Registered: Jan 2005
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I'm sort of at a loss as to what to say, and you put things so eloquently...
I know exactly what you are talking about. I agree with everything you wrote.
I have had some interesting abilities develop with the onset of my acute lyme symptoms. I hesitate to elaborate because it might seem strange or scary to some people.
I really do feel that this disease is also about transformation (and indeed it is transforming our very DNA as was just published somewhere).
I also get the flashing lights. At night sometimes it feels like a light show there are so many different things happening. Also, yes on the synchronicities - they are wonderful!
Sometimes the spider senses can get a bit overwhelming, but I don't think these abilities will neccessarily diminish as I get better, I really feel that they won't.
Very interesting to learn that I'm not the only one having things like this happen!
Alison
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The obscure we see eventually. The completely obvious, it seems, takes longer. --- Edward R. Murrow Posts: 923 | From California | Registered: Aug 2005
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