posted
Started my regiment on the 20th which comprises of 300Mg of Mino and about a week ago i added zythro twice a day. I have not seen much in way of a herx but i have felt the twitches come out much more then before (especially ones in my head behind and around my ears).
I am having more of clonus jerks which i had before but now seem all more common. I am so much more tired then i was before. I think i walked around this mall for about 15 minutes and now i feel like i have ran a 5 miles. Anyway looking for some more energy.
My Co- infection testing has been sent it and i got the works done, babs, bart, myco, and some other stuff i have never heard of. Hopefully some results come back from that that we can act on.
My worst symptom is: Swallowing Issue
Posts: 167 | From Los Angeles | Registered: Jan 2006
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cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165
posted
Luke, im glad you are getting all tests run.
My swallowing issue has resurfaced the past 2 days too...cant eat food without drinking water with it...pills getting stuck in my throat. ugh.
My worst symptom today is feeling lightheaded and woozy and hungry even though i just ate.
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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BostonLyme2005
Unregistered
posted
Lack of consistant company from breathtakingly beautiful hopeless Nymphomaniacs!
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Mathias
Frequent Contributor (1K+ posts)
Member # 5298
posted
That was a herx symptom for me. Stick with it until the co-infection test results come back.
-------------------- Mathias Posts: 1242 | From New Jersey | Registered: Feb 2004
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luvs2ride
Frequent Contributor (1K+ posts)
Member # 8090
posted
Dream on Rob!
Mine is joint pain.
-------------------- When the Power of Love overcomes the Love of Power, there will be Peace. Posts: 3038 | From america | Registered: Oct 2005
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AZURE WISH
Frequent Contributor (1K+ posts)
Member # 804
posted
Worst symptoms today - fatigue.
do you think the increased twitches could be a herx?
I know I have had increased twitching and increased fatigue with herxes - of course doesn't mean that it is the same thing for you.
posted
Not sure, tongue seemed to get more fatigued as well with treatment. Doc wants me on 400Mg of Mino but i took that one day and it really F'ed me up.
I dont get it one day my tongue will be fatigued, the next day it will be ok. Ativan seems to help for some reason, does anyone know what properties Ativan has to help with swallowing problems along with tongue and jaw fatigue?
Posts: 167 | From Los Angeles | Registered: Jan 2006
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posted
My worst symptom is pain - especially in my ribs. Second worst site for pain is hips joints - which radiates all down my legs espcially in the evenings and wee hours of the night. Right up there is nueropathic pain in right thigh.
Of course all this disrupts sleep so fatigue is a major problem.
-------------------- Pam Live well. Laugh often. Love much. Posts: 53 | From Ohio - south/southeast | Registered: Oct 2005
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quote:Originally posted by luke339: I have not seen much in way of a herx .............. I am having more of clonus jerks which i had before but now seem all more common. I am so much more tired then i was before.
[/QB]
That's your herx, right there! Onward, forward!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96227 | From Texas | Registered: Feb 2001
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Timaca
Posts: 2872 | From above 7,000 ft in a pine forest | Registered: Feb 2005
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bettyg
Unregistered
posted
my worst symptoms:
left degenerative arthritis in joint/hip bone, degeerative pain in my neck, FATIGUE, NO SLEEP getting delta 4 to heal/rejuventage, fibro total body pain, EXTREMELY SENSITIVE EYES to lights, glare, reflections & long 1-paragraph notes; AS well as sound/noise extreme sensitivities
I could go on but these are my worst!
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HEATHERKISS
Frequent Contributor (1K+ posts)
Member # 6789
posted
LACK OF STAMINA. fatique
-------------------- HEATHER
Posts: 1974 | From ABERDEEN, NJ 07747 | Registered: Jan 2005
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timaca
Frequent Contributor (1K+ posts)
Member # 6911
posted
I forgot to mention (due to lyme brain ) nerve pain all over my body.
Timaca
Posts: 2872 | From above 7,000 ft in a pine forest | Registered: Feb 2005
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timaca
Frequent Contributor (1K+ posts)
Member # 6911
posted
Luke and Cantgiveup~ Can you explain your swallowing issue a bit more??? I have a friend with that issue. She is thinking she has progesterone dermatitis (which she very well likely has)...but I'm sure she'd like to know about your swallowing issues too...for she may also have lyme.
Thanks....Timaca
Posts: 2872 | From above 7,000 ft in a pine forest | Registered: Feb 2005
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posted
Exercise intolerance.
Posts: 925 | From California | Registered: Sep 2004
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just don
Frequent Contributor (1K+ posts)
Member # 1129
posted
Dead even race for me. Severe arthritiis it is of the 'Oa' look alike variety. And in a dead heat tie with that IS the fatigue, mostly from not being able to sleep(like right NOW) and the 'heavy work' every other waking sun shining day for at least all the daylight hours, continuing for at least two Mouths, the tapers a bit, than Kattie bar the door, petal to the metal,fast as you can run for 2-3 MORE months till hibernation time after the big freeze up Sleep, it is thought one can store up sleep in short winter days, like camels store water in there humps for desert walking/traveling
-------------------- just don Posts: 4548 | From Middle of midwest | Registered: May 2001
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posted
When i swallow it feels like a struggle or that ther eis nothing on the left side of my neck swallowing. I had a barium swallow study and nothing came back, they said it was normal. My neck on the left side has gotten smaller so who knows whats really going on there.
Posts: 167 | From Los Angeles | Registered: Jan 2006
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posted
Well, my most annoying symptom is muscle fasiculations. They are widespread and non stop 24/7 and have been this way for over 4 years.
Luckily, I'm not dealing with much pain right now but my worst symptom ever were the cluster headaches. I'm so thankful I haven't had another cycle since starting abx!
Posts: 144 | From Marysville, Ohio | Registered: Apr 2003
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![[Smile]](smile.gif)
![[Frown]](frown.gif)
![[bonk]](graemlins/bonk.gif)
) nerve pain all over my body.
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