-------------------- 5dana8 Posts: 4432 | From some where over the rainbow | Registered: Sep 2005
| IP: Logged |
northstar
Frequent Contributor (1K+ posts)
Member # 7911
posted
I tested negative for bart. Discontinued lyme combo abx after 9 months (toxicity), went with ND for 6 months, and discontinued that in Feb, 06.
For the next 4 months, I had 4 instances where arch would hurt for 1/2-1 day, then go away in a heartbeat. Also had 2 instances of deep shinbone pain on right leg during 9 months.
No rash.
No rage (did not have the energy to spare, and encephalopathy meant I could barely whisper without pain).
No fever (low temp always til recently...finally above 98)
One violent nightmare in 2 years......I remember squishing someone's head like a grape, with my knee! Quick, to the point, no remorse, just a job that needed to be done....and went on with the dream! Weird.......
The physical symptoms may have been present during lyme tx., but it was hard to discern/tease out because of so many symptoms.
Now I am treating bart based on those specific symptoms, despite irregularity.
I had lost 10% body weight in beginning 2 years ago (loss of appetite, taste, anhedonia, never felt hunger literally), and managed to re-gain 5% by end of first year. That was done by mechanically feeding myself, not because I tasted/enjoyed food or was hungry).
This spring I added some fattening foods, such as using some butter, eating avocadoes, a dab of real cream, and snacking on nuts, a cookie here and there, or small fraction of a portion of cheesecake.
I am back to original weight, now. And enjoying taste again!
N.
Posts: 1331 | From hither and yonder | Registered: Sep 2005
| IP: Logged |
posted
My Bartonella symptoms got worse when I started abx specifically for Bart.
Before Bart tx, my biggest symptom was foot pain, but it was sporadic. Sometimes I would get up and my soles would feel very painful.
As soon as I started Bart tx, I developed a Bart rash -- those long red streaks -- on my abdomen. After 4 months of tx, my rash has actually gotten a bit worse and has spread more to my breasts and hips as well.
Also one of my major symptoms when I was getting sick a couple of years ago was recurring sore throats that lasted weeks.
When I was younger I was found to be anemic, which can be a Bart thing but who knows for sure?
I also have a feeling like my brain is swollen all the time, lovely encephalopathy or whatever that is, but again don't know if that is Bart. I don't get headaches much, just feel like my cranuim is a pressure cooker or something.
Oh how I *wish* I was one of those people that experienced weight loss from Bart. Sigh. Alas, with the Lyme/cadida etc. my weight has gone in the oppositye direction of up. My sis who has Lyme and Bart also has weight gain issues.
The rage...oh my goodness yes, the rage. I often turn into the Mr. Hyde (or is it Dr. Jekyll, I can never remember) at the drop of a hat. The rage, while not painful per se, is really really really hard to deal with.
I am a very happy positive person, despite being sick. It confounds me as to why, then, I often want to bash my husband's head into the wall repeatedly and with great fervor for daring to crinkle a paper bag too loudly.
Or why I randomly want to scream and run around the house with a sledgehammer breaking satisfying things like sliding glass doors or bone china.
It often hits without warning, no provocation, and I instantly turn from David Banner to the Hulk without having time to even rip off my shirt or have my eyes change color.
It is very difficult to find the appropriate venting for such aberrant emotion. If I'm lucky, a telemarketer will call. Like today, when the Red Cross called. I told them my entire family had Lyme which they don't test for so their blood has infected millions and hung up on them. Boy did that feel good.
But usually I just sit on the couch and clench my fists and try not to burst a blood vessel.
Oh, right...er...Bart symptoms...um...yeah...so there you have it.
<----deceptive smiley
Alison
--------------------
The obscure we see eventually. The completely obvious, it seems, takes longer. --- Edward R. Murrow Posts: 923 | From California | Registered: Aug 2005
| IP: Logged |
foot pain (almost my right foot), sore throat (pain for about less than 5 minutes to 2 hours), that awful stretch marks, sometimes joint and muscle pain.
and of course some other little symptoms (fatigue, "feels like that i could vomit in the morning"-feeling (sometimes))
i treated bart for about 6 weeks with levaquin. in this time almost all symptoms were gone, and the stretch marks went from purple to silver. but i had to quit cause of tendon problems. after four weeks all the symptoms came back more intensive.
now i will start with rulide (macrolide) and tmp (this combo is called gassertherapy) and also very good for treating lyme. hope that will work for me.
greetz ticktickbooom
-------------------- mercury-victim Posts: 20 | From austria | Registered: Jul 2006
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Smile]](smile.gif)
<----deceptive smiley
![[bonk]](graemlins/bonk.gif)
Printer-friendly view of this topic