LymeNet Flash: afraid to finish bottle of ABX after bad reaction

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»	LymeNet Flash » Questions and Discussion » Medical Questions » afraid to finish bottle of ABX after bad reaction

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Topic: afraid to finish bottle of ABX after bad reaction

i want help
LymeNet Contributor
Member # 9786

posted

lost my pcp support and she will not gibe me z pack which helps my joints and chills

i only have avelox and ceftin left--which seem way harsh

how long ok to take break after herx?

have burning eyes and flushing skin and chills now too every day something new-do I have this right????

bewildering these TBD

Posts: 225 | From home | Registered: Aug 2006 | IP: Logged |

Lymetoo
Moderator
Member # 743

posted

I would take low dosages at first.... make sure you can tolerate them.

Why don't you try artemisinin for the chills. Were you tested for babesia yet?

You can stop the meds for a few days at most without anything terrible happening!

You may run through the entire gamet of lyme symptoms by the time you're finished!

Have you read about Herxheimers in Treepatrol's links? That may help you understand it all.

hang in there!!

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96227 | From Texas | Registered: Feb 2001 | IP: Logged |

i want help
LymeNet Contributor
Member # 9786

posted

i am trying day by day

so hard

Posts: 225 | From home | Registered: Aug 2006 | IP: Logged |

Aniek
Frequent Contributor (1K+ posts)
Member # 5374

posted

Do you have an LLMD or are you getting an appointment with an LLMD? From a few of your posts I get the feeling you are self-medicating.

You really want to find somebody who reallys understands and can treat Lyme. You can't do this alone.

--------------------
"When there is pain, there are no words." - Toni Morrison

Posts: 4711 | From Washington, DC | Registered: Mar 2004 | IP: Logged |

Carol B
Unregistered

posted

Wish I could help you- but I can only tell you my experience. I am taking Ceftin- and have been for 5 months now-2000mg daily. I am okay with it.

I am also taking Minocycline- which I could tolerate only so much- had to drop back to 200mg daily-any higher and I was wasted. Mino has caused me more problems all around.

I am also prone to severe headaches. the achiness in my bones and muscles just seems something I have learned to live with although it's a drag.

I am blessed that for the most part I can crash and go to bed by midday for a period of time.

At my next LLMD appointment I hope to discuss more how to manage life and medications. Or should I really just expect to put life on hold while being treated.

I definitely cannot multi task anymore-which has taken away some sort of sense of control. I feel so limited in what I accomplish.

But I hang on to the hope of others who go before me.

[group hug]

Carol

IP: Logged |

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