posted
I had to have my Groshong catheter replaced....Not fun. but I realized that my hospital takes Lyme really seriously.
One of the ladies there said her daughter has Lyme (she lives in Va....are you out there?)
The anesthesiologist told me she had Lyme and had to do the same thing I was doing before she got well.
I hate this illness but its really nice to have a support of people who understand how serious it really is.
Posts: 347 | From WV | Registered: Jan 2007
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lyme in Putnam
Frequent Contributor (1K+ posts)
Member # 11561
posted
I wish it was taken seriously in New York. They almost laugh when you tell them you've been on
meds for long periods of time. I bite my lip and go on. It might take a while for them to see,
but it eventually hits home everywhere.
-------------------- He took u to it, He'll you through Posts: 2837 | From NE. | Registered: Apr 2007
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tailz
Unregistered
posted
On one of my trips to the ER last summer, an ER med student approached me, exclaiming that she knew EXACTLY what was wrong with me.
I was ECSTATIC! FINALLY! A doctor who could tell me why I felt like I was jumping through my skin 24/7 and couldn't breathe.
She then proceeded to ask me if I heard voices.
Needless to say, I said, "Don't even go there." And she sent another doc in. Unfortunately, he wasn't much better.
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cactus
Frequent Contributor (1K+ posts)
Member # 7347
posted
Isn't it interesting when the techs who run our scans/tests, the anesthesiologists, the radiologists, and even the nurses are all sympathetic and know someone with Chronic Lyme? All the people who don't treat Lyme seem to know how serious it can be...
That's nearly always my experience too, yet the clinical docs at the very same hospital act as though there is no Lyme in this area...
Hmmmmm...
-------------------- �Did you ever stop to think, and forget to start again?� - A.A. Milne Posts: 1987 | From No. VA | Registered: May 2005
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Aniek
Frequent Contributor (1K+ posts)
Member # 5374
posted
I saw a great pain specialist today. He didn't bat an eye when I told him I had been on antibiotics over 2 years.
Granted, I'm not on abx now. But he also didn't bat an eye when I said my rheumatologist (my LLMD) wasn't sure if the Lyme was gone or not.
He said he gets many referrals from primary care doctors who don't know what to do because the pain makes no sense to them. He often thinks Lyme, and runs a test. I doubt the test goes to Igenex, but at lease he is thinking Lyme.
And he said the Lyme pain is extremely difficult to treat, since it can show up in different places different days. He really seemed to understand.
And he didn't recommend injections!
-------------------- "When there is pain, there are no words." - Toni Morrison Posts: 4711 | From Washington, DC | Registered: Mar 2004
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mojo
Frequent Contributor (1K+ posts)
Member # 9309
posted
I think, overall, we are headed in the right direction with Lyme awareness.
I went to the GP with my 19 year old a few weeks back - told the Dr. and his wife my story and they didn't blink an eye regarding my long term ABX. The both knew about Chronic Lyme and wanted to know where they could refer their patients!
We had a very popular newscaster in the area that came down with a very bad case of Lyme (almost killed him). Although he's been "out of the public eye" for the most part for a few years some people remember him and that has raised some local awareness in Detroit. My reverse osmosis water guy remembered him and so did the Dr. that I mentioned above.
We're getting there. I think in the next year or two this thing is going to bust wide open.
Posts: 1761 | From USA | Registered: May 2006
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kelmo
Frequent Contributor (1K+ posts)
Member # 8797
posted
Last night on Conan O'Brien, John Leguizamo was on talking about having a home in upstate NY.
He said everyone panics because he has a home in lyme disease territory.
Conan said he gets the same reaction when he tells people he's going to Connecticut.
Posts: 2903 | From AZ | Registered: Feb 2006
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posted
Not here. I'm in the position of educating hospital personnel. And I do...Burrascano guidelines, brochures, whatever I bring. One day...sigh.
Posts: 13117 | From San Francisco | Registered: May 2006
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posted
i am seeing a accupuncturist who is on his way to a seminar on ld. he's very excited a true believer and said he was bringing me back the info he's learned re new ideas and treatments. he was so positive it was so refreshing.he trys to help me in every way asking all the right Questions.
Posts: 161 | From midwest | Registered: Jul 2007
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posted
Glad to hear the word is spreading, better late than never. Sadly, nothing much has changed in Tenn. ERRRR... Posts: 176 | From Tenn | Registered: Jul 2004
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5dana8
Frequent Contributor (1K+ posts)
Member # 7935
posted
Hi yourtrouble
really heartening to hear those hospital workers are taking lyme & treatments seriously.
I got the eye roll from an er duck here once. They think lyme is something you put is a drink or the ones from up North are so arrogent & defensive. Really piteful down here.
But I am glad you are getting the support you need in a hopstial setting. Good luck with your treatments & hope your feeling better soon
-------------------- 5dana8 Posts: 4432 | From some where over the rainbow | Registered: Sep 2005
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Ann-OH
Frequent Contributor (5K+ posts)
Member # 2020
posted
I saw John L. on the Regis Philbin and Kelly Ripa show and they were talking about his shooting a show in Pittsburgh and having the family with him.
He mentioned running into Lyme disease there as well. Hmmmmmm?????
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