posted
I live in the Houston area and need to get my kids tested for Lyme. I was tested via Igenx four years ago and I was positive. However, since no one will accept this w/o a positive Elisa I have been going the herbal route.
Now my kids have symptoms, my hypothesis, Lyme. Can you have a lab test w/o a Dr. consent etc? I probably could beg a Dr. to do this, but I wanted to try to alleviate the questioning and lectures.
We are extremely worried as my son will probably have to have a colonoscopy and daughter an endoscopes as recommended by the pediatrician.
quote:Originally posted by Keebler: one poster poses a good question: if Bb is deep in tissue would it be in a small sample of blood taken for the test?
nope...but there are probably at least SOME spirochetes there...and what the Western Blot is checking for is an antibody response.
Dr. Bransfield's Reason's for Seronegativity the reasons why you can test negative and still have Lyme disease.
1. Recent infection before immune response 2. Antibodies are in immune complexes 3. Spirochete encapsulated by host tissue (i.e.: lymphocytic cell walls) 4. Spirochete is deep in host tissue (i.e.: fibroblasts, neurons, etc.) 5. Blebs in body fluid, no whole organisms needed for PCR 6. No spirochetes in body fluid on day of test 7. Genetic heterogeneity (300 strains, 100 in U.S.) 8. Antigenic variability 9. Surface antigens change with temperature 10. Utilization of host protease instead of microbial protease 11. Spirochete in dormancy phase (L-form) with no cell walls 12. Recent antibiotic treatment 13. Recent anti-inflammatory treatment 14. Concomitant infection with babesia may cause immunosuppression 15. Other causes of immunosuppression 16. Lab with poor technical capability for Lyme disease 17. Lab tests not standardized for late stage disease 18. Lab tests labeled "for investigational use only" 19. CDC criteria is epidemiological not a diagnostic criteria 20. Lack of standardized control 21. Most controls use only a few strains as reference point 22. Few organisms are sometimes present 23. Encapsulated by glycoprotein "S-layer" which impairs immune recognition 24. "S"- layer binds to IgM 25. Immune deficiency 26. Possible down regulation of immune system by cytokines 27. Revised W.B. criteria fails to include most significant antigens
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96227 | From Texas | Registered: Feb 2001
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Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
Hi Texas neighbor,
There is a really good LLMD here in Louisiana.
A little of a ride for you, but worth it.
It doesn't matter who signs the order for the Igenex test kit.
One would prefer a LLMD, but a doctor at a walk-in clinic can sign it and draw your blood.
Or children's in this case. I actually had the order signed and my neighbor's
Drew my children's blood (both RN's). Results were sent back to ordering doctor.
I got a copy of them and started my quest to getting my children well.
Please PM me if I can be of any help to you.
Both of my sisters live in the Spring Texas area.
Swear there is no Lyme there.....Ha!
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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