LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » have reached an impasse with my LLMD re Bart-what to do

 - UBBFriend: Email this page to someone!    
Author Topic: have reached an impasse with my LLMD re Bart-what to do
adamm
Unregistered


Icon 9 posted            Edit/Delete Post   Reply With Quote 
So, the only treatments my LLMD would be willing to

prescribe for my bart are Levaquin or a Cat's Claw-Biaxin-

Artemisinin combo. But there's no way I'm going to take

Levaquin after what I've read about it, and apparently,

Cat's Claw, which it seems like I'd have to take to

prevent the bart from becoming resistant, shouldn't be taken

with drugs like Biaxin, which are metabolized via the cytochrome

P-450 pathway (Artemisinin's out as well, as it seems to be

neurotoxic and I don't have babs.)


I won't be able to get an opinion from another

LLMD until at least May, and my life is getting worse by the day.


So what should I do--just give Biaxin alone a shot and hope

things clear up (has anyone had success with this?) Take my

positive Bart test to an ID duck and hope they'd be willing to

treat with something else?

[ 18. January 2008, 10:47 PM: Message edited by: adamm ]

IP: Logged | Report this post to a Moderator
GenaD
LymeNet Contributor
Member # 11988

Icon 1 posted      Profile for GenaD     Send New Private Message       Edit/Delete Post   Reply With Quote 
My LLMD had me take olive leaf extract in capsule form, 500 mg to tolerance for 3 weeks. I was then tested and my Bartonella was gone.

Olive leaf extract goes after both Bartonella and Lyme. I was able to take 15 a day, spaced out over 3 meals. I felt achy and tired, but nothing too terrible. If you have abdominal pain, you're taking too much.

My LLMD also said that it is easy to relapse with Bartonella, especially if you're undergoing stress. (Like all of this isn't stressful enough!)

I just thought I'd share this with you, as olive leaf is pretty inexpensive. Can't hurt to try! Remember to get the olive leaf extract--it's stronger than the regular olive leaf.

Gena

--------------------
"Never underestimate the power of a few committed people to change the world. Indeed it is the only thing that ever has."
--Margaret Mead

Posts: 290 | From New York | Registered: May 2007  |  IP: Logged | Report this post to a Moderator
adamm
Unregistered


Icon 1 posted            Edit/Delete Post   Reply With Quote 
Did all your bart symptoms resolve?
IP: Logged | Report this post to a Moderator
LymeMECFSMCS
LymeNet Contributor
Member # 13573

Icon 1 posted      Profile for LymeMECFSMCS   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
Don't rule out Levaquin -- read up first. Cipro, I'm convinced, saved my life (I was having SEVERE cardiac problems and it pulled me back from the edge). It did give me tendon problems which is why I stopped, but they have resolved in the months since I stopped taking it.

Cat's Claw does not target bart.

Stephen Buhner recommends Japanese Knotweed, Boneset, and Red Root for bart if you want to go the herbal route.

There is a thread on here now about the neurotoxicity claims re: artemesia -- I am now personally convinced it's not neurotoxic and is worth using.

Posts: 929 | From Massachusetts | Registered: Oct 2007  |  IP: Logged | Report this post to a Moderator
lymednva
Frequent Contributor (1K+ posts)
Member # 9098

Icon 1 posted      Profile for lymednva     Send New Private Message       Edit/Delete Post   Reply With Quote 
Why do you think you don;t have Babs? Is it that you tested negative, or because you have absolutely NO Babs symptoms?

Babs testing isn't that reliable because there are so many strains and only a few are tested for.

As for Levaquin, I say try it. If you notice any of the bad side effects stop it immediately. I was able to treat for 5 months on it.

Just my 2 cents.

--------------------
Lymednva

Posts: 2407 | From over the river and through the woods | Registered: Apr 2006  |  IP: Logged | Report this post to a Moderator
sixgoofykids
Moderator
Member # 11141

Icon 1 posted      Profile for sixgoofykids   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
Levaquin was worth the risk to me. I was sick like you are and then three months later, I am being weaned off abx and onto herbs!

So, in the long-run, Levaquin means that I'm on the "hard" meds for a shorter time, even if it meant that I had to take a "harder" med than I wanted to.

I want to note, I took magnesium with the Levaquin.

--------------------
sixgoofykids.blogspot.com

Posts: 13449 | From Ohio | Registered: Feb 2007  |  IP: Logged | Report this post to a Moderator
adamm
Unregistered


Icon 1 posted            Edit/Delete Post   Reply With Quote 
I don't really have any babs-specific symptoms; I haven't

experienced much malaise of or fatigue at all, and haven't

had any night sweats. My symptoms are almost exclusively

neurological (a few of my joints are starting to be affected.)


After reading what I have on sites like fluoroquinolones.org

and fqresearch.org, I've become certain that I will only take

Levaquin if all else has failed. I know there are other effective

treatments (Septra, azithromycin, etc.) but my LLMD

just hasn't had enough experience with them to be comfortable

using them in his practice.


What I'm worried about is that, with the neurological issues I

already have, I would not be able to discern the effects of

quinolone toxicity from those of my infections.

[ 18. January 2008, 09:25 PM: Message edited by: adamm ]

IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
Willing to travel??

That's interesting about the Olive Leaf Extract, Gena!!

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96227 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
disturbedme
Frequent Contributor (1K+ posts)
Member # 12346

Icon 1 posted      Profile for disturbedme   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
I don't know if Andrographis is one of the herbs used for Bart or not, but I've been taking it and it's been giving me herxes like crazy. I started very slow and took even less than HALF when I started and herxed for two weeks in a row and then finally started getting better from it. Now I'm starting to add more. Maybe it just goes after Lyme or something?

Rifampin has helped immensely with my Bart, but I think you've tried that, right?

--------------------
One can never consent to creep when one feels an impulse to soar.
~ Helen Keller

My Lyme Story

Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007  |  IP: Logged | Report this post to a Moderator
sixgoofykids
Moderator
Member # 11141

Icon 1 posted      Profile for sixgoofykids   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
quote:
Originally posted by adamm:
I don't really have any babs-specific symptoms; I haven't

experienced much malaise of or fatigue at all, and haven't

had any night sweats. My symptoms are almost exclusively

neurological (a few of my joints are starting to be affected.)

Levaquin is used for Bartonella, not babesia. Are you trying to treat both?

There is a good talk online by Dr. B. about "bartonella like organisms". In the talk, Dr. H asks a question in the question/answer session and talks about how he treats both together. If you can't find the talk, I will look it up later.

Also, I have a copy of a talk that Dr. H gave where he says what he uses to treat both ... can't remember off the top of my head, but if you're interested, let me know and I'll look it up for you. I don't have it on my computer, it's in the file cabinet.

--------------------
sixgoofykids.blogspot.com

Posts: 13449 | From Ohio | Registered: Feb 2007  |  IP: Logged | Report this post to a Moderator
adamm
Unregistered


Icon 5 posted            Edit/Delete Post   Reply With Quote 
So...

Biaxin monotherapy: to do or not to do (I'm not trying to tx babs)


I just posted a study on bart's ability to develop resistance to

macrolides, but I've heard that zith alone is sometimes used.


Has ANYONE gotten rid of their bart this way?

IP: Logged | Report this post to a Moderator
jamescase20
Unregistered


Icon 1 posted            Edit/Delete Post   Reply With Quote 
I took massive zithromax 1500mg amediten and bactrim for 2 weeks, then switched to the gasser protocal for 2 more weeks. The got black under my eyes, went for live blood anal and I believed I was seeing lyme nearly gone, but bart bugs everywhere. Taking cipro and minocin and got bart herxing like crazy still am...my hands and feet hurt like heck. But ALL my so called tendon pains are gone. Wasnt cipro was bart caused.
IP: Logged | Report this post to a Moderator
sixgoofykids
Moderator
Member # 11141

Icon 1 posted      Profile for sixgoofykids   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
Okay, I had time to get this talk out of my file cabinet ... unfortunately, I do not have it on my computer .... but this is what it says about bart treatment.

Doxy+Rifampin

Quinolones+Tetras or Macrolides

Septra/Bactrim+Macrolides

All above with Plaquenil 200 mg bid

I hope that give you more options. For those who are curious, it says for bart and babs together, consider plaquenil+mepron+macrolide+septra. Continue with Malarone when sweats and chlls are reduced.

[ 19. January 2008, 12:18 PM: Message edited by: sixgoofykids ]

--------------------
sixgoofykids.blogspot.com

Posts: 13449 | From Ohio | Registered: Feb 2007  |  IP: Logged | Report this post to a Moderator
CherylSue
Frequent Contributor (1K+ posts)
Member # 13077

Icon 1 posted      Profile for CherylSue     Send New Private Message       Edit/Delete Post   Reply With Quote 
I can't tolerate most medicines. Levaquin and Cipro make me deathly ill. Zith makes me so depressed even a 1/4 tablet. Doxycycline actually lifted my brain fog, but has done its jub and my LLMd wants me to move on to Plaquenil for possilbe babs.

I've been taking cumanda since July but had to work up to the therapeutic dose of at leas 15 drops/twice daily. I got up to 20/2x and then switched to banderol for a couple weeks. I'm relapsing, so I think cumanda was a good thing. It didn't cure me, but it didn't make me relapse either. I've read on this board it is a moderate killer of bart. I also take burbur drops to help with that herxing.

CherylSue

Posts: 1954 | From Illinois | Registered: Aug 2007  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code� is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.