not necessarily LL at this point because of the urgent need for inpatient neurology work-up. from there we will advocate for neurorehab program transer, or tx at the hospital.
need nyc hospital neurologists, with admitting privileges, at columbia, nyu, mt. sanai, or other hospital with good neurology dept.
i am doing allot of my own research and work, but i need more names to follow up with.
i have very good documentation to present need for this service, including severe SPECT results and doctor backing.
i need names of decent neurologists, have packages prepared with tests and medical files, plus a referring doc.
son is in psych unit and needs to be transfered to neurology work-up now.
doc to doc referral is best in this situation, not through admissions.. i have a referring doc, need a recieving one.
m
also, does anyone have feedback on doc Y in nyc? please PM if you do.
Posts: 8337 | From the other shore | Registered: Jul 2002
| IP: Logged |
Hoosiers51
Frequent Contributor (1K+ posts)
Member # 15759
posted
Mo,
I sent you the name and phone number (hopefully still the same since 2005!) of a neurologist I have seen at Columbia who, from my experience, was good.
Should be in your PM box.
Posts: 4590 | From Midwest | Registered: Jun 2008
| IP: Logged |
quote: also, does anyone have feedback on doc Y in nyc? please PM if you do. [/QB]
Yes was a patient of Dr. Y for over a year. He is Lyme "Tolerant" (even that is pushing it a bit), but if you are really in need, he at least does treat some Lyme patients. He takes no insurance, and appointments run from $4,000-$6,000/each. My daughter has severe brain SPECT scans as well, Dr. Y is definitely no expert in that area-- He is a Neuromuscular specialist, and is more concerned with physical abnormalities of the autonomic and central nervous system and the use of IVIG to correct them.
He is affiliated with NYU, Lenox Hill, perhaps he would be kind enough to make a contact for you.
There is also doctor C.B (female Neurologist) at Columbia who is Lyme Tolerant/Friendly too.
We see a neuro. who is associated with Weill Cornell and Columbia, but he is very sub-specialized to our daughters specific secondary condition, I'm not sure he see's general Neurology patients. PM me for the name, if you would like.
God bless, I hope you find the help you need.
Posts: 371 | From CT | Registered: Jun 2008
| IP: Logged |
sometimesdilly
Frequent Contributor (1K+ posts)
Member # 9982
posted
Mo-
have you asked our former Dr. L for names/referrals?
as i recall, his "rolodex" of recommended specialists was very comprehensive.
d
Posts: 2507 | From lost in the maze | Registered: Aug 2006
| IP: Logged |
yes, we definately need a neurologist who acknowledges the severity and understands the significance of SPECT scans, coupled with cognitive behavioral, somatic symtoms.
also to understand our need for sub-acute care following a work-up. sounds like y may not be our man.
please do PM me about the doc you see affiliated w/cornell.
dilly, thanks, you are right, and yes, i have left word on that.
m
Posts: 8337 | From the other shore | Registered: Jul 2002
| IP: Logged |
I previously sent you info on Dr Y affiliated with NYU and Lenox Hill Hospital in NYC. Would not recommend him. Seriously considered reporting him to medical board when he stopped hubby's IV Ativan, IV Phenergan and IV Demoral all cold turkey against the advice of both a pain specialist and the psych dept.
To be perfectly frank, all he seemed interested in was getting money from us to do his tests so hubby would qualify for IV IgG treatment -- not why we went to him to begin with. Hubby was having problems with muscle rigors and severe myoclonus -- subsequently symptoms much much improved with Bart treatment.
The doc was upset we could not come up with $6300 for tests and tried to talk pulmonologist into diagnosing sarcoidosis. When that didn't work he referred hubby to psych dept, but made no effort to get him transferred to Columbia as we requested.
Also, Dr Y told hubby that a SPECT scan was a functional test and not relevant to his treatment and symptoms. Hubby's SPECT was from Columbia but was nowhere near as bad as your son's -- showed mild to moderate global hypoperfusion and listed Lyme and vasculitis as possible causes.
This is just hubby's experience, but there are others who have had similar experiences.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
| IP: Logged |
Hospital admin office should be able to provide you with a list of all neuros who have priviledges at their hospital. Imagine it would be a very long list for the larger hospitals in NYC.
Our small local hospital gave us a list the last time we were looking for a PCP -- they actually had a brochure listing all docs with hospital priviledges.
I also previopusly sent you the name of another neuro in New York I got from the new LDA referral website -- let me know if I need to resend it. Still haven't gotten around to contacting the doc myself.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
| IP: Logged |
-------------------- life shrinks and expands in proportion to one's courage -- anais nin Posts: 8337 | From the other shore | Registered: Jul 2002
| IP: Logged |
sometimesdilly
Frequent Contributor (1K+ posts)
Member # 9982
sometimesdilly
Frequent Contributor (1K+ posts)
Member # 9982
posted
list of 10 top neuro's in NYC-
NOTE: Your search is limited to those doctors who are featured in the current New York Magazine Top Doctors article. To search the entire Castle Connolly database please become a member.
1. Dr. Brian Apatoff, MD/PhD (N) - Hospital: NewYork-Presbyterian Hospital/Weill Cornell;
Address: 1305 York Ave, Ste Y217, New York, NY 10021; Phone: 646-808-5454; Board Cert: Neurology 1991; Med School: Univ Chicago-Pritzker Sch Med 1984; Resid: Neurology, Columbia Presby Med Ctr 1990; Fac Appt: Assoc Prof N, Cornell Univ-Weill Med Coll Website Available: http://www.nyp.org/FPHTML/1168360046984.html
2. Dr. Hal Blumenfeld, MD/PhD (N) - Hospital: Yale-New Haven Hospital; Address: Yale Dept of Neurology, New Haven, CT 06520-8018;
Phone: 203-785-3865; Board Cert: Neurology 1998; Med School: Columbia P&S 1992; Resid: Neurology, Mass Genl Hosp 1996; Fac Appt: Assoc Prof N, Yale Univ
3. Dr. Susan Bressman, MD (N) - Hospital: Beth Israel Medical Center - Milton & Caroll Petrie Division;
Address: 10 Union Square East, Ste 2-Q, New York, NY 10003-3314; Phone: 212-844-8379; Board Cert: Neurology 1983; Med School: Columbia P&S 1977; Resid: Internal Medicine, New York Hosp 1978; Fac Appt: Prof N, Albert Einstein Coll Med Website Available: www.docnet.org/physicians/phys_bios.asp?phys_id=53
4. Dr. Jonathan Charney, MD (N) - Hospital: Mount Sinai Medical Center; Address: 1111 Park Ave, Ste 1H, New York, NY 10128-1234;
Phone: 212-831-2886; Board Cert: Neurology 1977; Med School: NY Med Coll 1969; Resid: Neurology, Methodist Hosp-Baylor 1971; Fac Appt: Asst Prof N, Mount Sinai Sch Med
5. Dr. Lisa De Angelis, MD (N) - Hospital: Memorial Sloan-Kettering Cancer Center; Address: 1275 York Avenue, New York, NY 10065;
Phone: 800-525-2225; Board Cert: Neurology 1986; Med School: Columbia P&S 1980; Resid: Neurology, Neuro Inst-Presby Hosp 1984; Fac Appt: Prof N, Cornell Univ-Weill Med Coll Website Available: www.mskcc.org/prg/prg/bios/189.cfm
6. Dr. Orrin Devinsky, MD (N) - Hospitals: NYU Medical Center, St Barnabas Medical Center; Address: 403 E 34th St Fl 4, New York, NY 10016-4972; Phone: 212-263-8871;
Board Cert: Neurology 1987; Med School: Harvard Med Sch 1982; Resid: Neurology, New York Hosp-Cornell Med Ctr 1986; Fac Appt: Prof N, NYU Sch Med
7. Dr. Stanley Fahn, MD (N) - Hospital: NewYork-Presbyterian Hospital/Columbia; Address: 710 W 168th St, Fl 3rd - rm 350, New York, NY 10032; Phone: 212-305-5277;
Board Cert: Neurology 1968; Med School: UCSF 1958; Resid: Neurology, Neuro Inst-Columbia Presby Hosp 1962; Fac Appt: Prof N, Columbia P&S Website Available: http://www.nyp.org/FPHTML/1168360178188.html
8. Dr. Matthew Fink, MD (N) - Hospital: NewYork-Presbyterian Hospital/Weill Cornell; Address: NY Cornell Med Ctr Dept Neurology, New York, NY 10021-4870; Phone: 212-746-4564;
Board Cert: Internal Medicine 1980; Med School: Univ Pittsburgh 1976; Resid: Internal Medicine, Boston Med Ctr 1980; Fac Appt: Prof N, Cornell Univ Website Available: http://www.nyp.org/FPHTML/1168360381035.html
9. Dr. Sun-Hoo Foo, MD (N) - Hospitals: NYU Medical Center, New York Downtown Hospital; Address: 650 1st Ave, FL 4, New York, NY 10016-3240; Phone: 212-213-0270;
Board Cert: Internal Medicine 1976; Med School: Taiwan 1972; Resid: Internal Medicine, St Vincent's Hosp 1976; Fac Appt: Prof N, NYU Sch Med
10. Dr. Jacqueline French, MD (N) - Hospital: NYU Medical Center; Address: 403 E 34th St Fl 4, New York, NY 10016; Phone: 212-263-8327;
Board Cert: Neurology 1987; Med School: Brown Univ 1982; Resid: Neurological Surgery, Mount Sinai Hosp 1986; Fac Appt: Prof N, NYU Sch Med
Physicians selected for inclusion as a "Castle Connolly Top Doctor" who appear on this website may also appear in one of Castle Connolly's Top Doctors guides, such as America's Top Doctors� or America's Top Doctors� for Cancer, in one of the many national and/or regional magazines with which Castle Connolly partners to create "top doctors" features, or may appear only online as a Regional Top Doctor.
- denotes the doctor is in either the current edition of America's Top Doctors� or America's Top Doctors� for Cancer. NOTE: Doctors are listed in alphabetical order and the results are not reflective of any rank order.
Posts: 2507 | From lost in the maze | Registered: Aug 2006
| IP: Logged |
sometimesdilly
Frequent Contributor (1K+ posts)
Member # 9982
posted
top 10 childrens' neurologists in nyc:
1. Dr. Jeffrey Allen, MD (ChiN) - Hospital: NYU Medical Center; Address: Hassenfeld Childrens Ctr, New York, NY 10016; Phone: 212-263-6725;
Board Cert: Child Neurology 1977; Med School: Harvard Med Sch 1969; Resid: Pediatrics, Montreal Chldns Hosp 1973; Fac Appt: Prof Ped, NYU Sch Med
2. Dr. Mary Andriola, MD (ChiN) - Hospital: Stony Brook University Medical Center; Address: SUNY-Stony Brook, Dept Neurology, Stony Brook, NY 11794-0001; Phone: 631-444-2599;
Board Cert: Pediatrics 1970; Med School: Duke Univ 1965; Resid: Pediatrics, Univ Fla Shands Hosp 1967; Fac Appt: Prof N, SUNY Stony Brook
3. Dr. Darryl De Vivo, MD (ChiN) - Hospital: NewYork-Presbyterian Hospital/Columbia; Address: Neurological Institute, New York, NY 10032; Phone: 212-305-5244;
Board Cert: Child Neurology 1972; Med School: Univ VA Sch Med 1964; Resid: Pediatrics, Mass Genl Hosp 1966; Fac Appt: Prof N, Columbia P&S Website Available: http://www.nyp.org/FPHTML/1168360321933.html
4. Dr. David Kaufman, MD (ChiN) - Hospitals: Mount Sinai Medical Center, Lenox Hill Hospital; Address: 3 E 83rd St, New York, NY 10028-0459; Phone: 212-737-4911;
Board Cert: Pediatrics 1980; Med School: Boston Univ 1975; Resid: Pediatrics, NY Hosp-Cornell Med Ctr 1977; Fac Appt: Asst Clin Prof N, Mount Sinai Sch Med
5. Dr. Joseph Maytal, MD (ChiN) - Hospital: Schneider Children's Hospital; Address: Dept Pediatric Neurology, New Hyde Park, NY 11042; Phone: 516-465-5255;
Board Cert: Pediatrics 1986; Med School: Israel 1979; Resid: Pediatrics, Brookdale Hosp 1983; Fac Appt: Clin Prof N, Albert Einstein Coll Med
6. Dr. Walter Molofsky, MD (ChiN) - Hospitals: Beth Israel Medical Center - Milton & Caroll Petrie Division, St Luke's - Roosevelt Hospital Center - Roosevelt Division; Address: Phillips Ambulatory Care Center, New York, NY 10003; Phone: 212-844-6910;
Board Cert: Pediatrics 1982; Med School: NYU Sch Med 1976; Resid: Pediatrics, Columbia-Presby Med Ctr 1978; Fac Appt: Assoc Prof N, Albert Einstein Coll Med Website Available: www.docnet.org/physicians/phys_bios.asp?phys_id=27
7. Dr. Ruth Nass, MD (ChiN) - Hospital: NYU Medical Center; Address: 400 E 34th St, rm 311, New York, NY 10016-4901; Phone: 212-263-7753;
Board Cert: Pediatrics 1980; Med School: Albert Einstein Coll Med 1975; Resid: Pediatrics, NY Hosp 1977; Fac Appt: Clin Prof N, NYU Sch Med
8. Dr. Edward Novotny, MD (ChiN) - Hospital: Yale-New Haven Hospital; Address: Dept of Pediatrics, Yale Sch of Med, New Haven, CT 06520-8064; Phone: 203-785-5730; Board Cert: Pediatrics 1986; Med School: St Louis Univ 1979; Resid: Pediatrics, Univ CA Daivs Med Ctr 1981; Fac Appt: Assoc Prof Ped, Yale Univ
9. Dr. Jayoung Pak, MD (ChiN) - Hospital: UMDNJ-University Hospital-Newark; Address: UMDNJ Doctor's Office Ctr, Newark, NJ 07103-2406; Phone: 973-972-5204; Board Cert: Child Neurology 1993; Med School: South Korea 1978; Resid: Pediatrics, Ewha Women's Univ 1983; Fac Appt: Assoc Prof N, UMDNJ-NJ Med Sch, Newark
10. Dr. Shlomo Shinnar, MD/PhD (ChiN) - Hospital: Montefiore Medical Center; Address: Montefiore Medical Ctr, Bronx, NY 10467-2401; Phone: 718-920-4378;
Board Cert: Neurology 1984; Med School: Albert Einstein Coll Med 1978; Resid: Pediatrics, Johns Hopkins Hosp 1980; Fac Appt: Prof N, Albert Einstein Coll Med
Posts: 2507 | From lost in the maze | Registered: Aug 2006
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[group hug]](graemlins/grouphug.gif)
![[kiss]](graemlins/kissing.gif)
Printer-friendly view of this topic