shazdancer
Frequent Contributor (1K+ posts)
Member # 1436
posted
Here are my impressions of the show, listening this morning at 7:00:
-- A 20-year award-winning health medical reporter for an ABC affiliate, "came out" with her own chronic Lyme disease on the show. She described her condition as similar to the U2 roadie in the movie, who looked good but dealt with a lot of pain. She described being infected after a car wreck left her in a field, and later having an incident where her hands froze and her ability to read the teleprompter and function in her job was eroding.
-- Andy mentioned a doctor who treated both Lyme and HIV, who said that, currently, his Lyme patients are more debilitated than his AIDS patients.
-- Dr. Oz talks about the problem of insurance companies being unwilling (understandably so, according to Dr. Oz) to shell out tens of thousands of dollars for a treatment that may only help a few.
-- Dr. Oz isn't ready to totally buy into chronic Lyme, having talked to some of his friends, who suggest that there may be many infectious organisms (including viruses) that we haven't yet identified. He does acknowledge that there is clearly some kind of disease process, noting that the park ranger in the movie did not seem like a stereotype for hypochondria.
-- The health reporter said she had spoken to the head of the IDSA, who said that "we already know everything we need to know about Lyme." She said, duh, we don't even know everything there is to know about the effect of coffee.... The others laughed, they got it that mainstream medicine is behind when it comes to Lyme.
-- Shaz
Posts: 1558 | From the Berkshires | Registered: Jul 2001
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posted
I did not hear this show, and I don't know who this Dr. Oz is (all I can picture is someone behind a curtain ). Is he a real doctor?
I just find it interesting that he chose one of the few men in the movie as not the stereotypical hypochondriac .
He sounds bizarre.
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cb Posts: 669 | From somewherebetweentherocks | Registered: Mar 2008
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
thanks for the report.
As far as who is Dr. Oz. He is a regular on the Oprah Show.
They had a good show yesterday on the Blue zones.
Dr. Oz is a heart surgeon, but open to learning new things in the medical field.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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quote:Originally posted by njlymemom: I just find it interesting that he chose one of the few men in the movie as not the stereotypical hypochondriac .
In general I think men are taken more seriously
when they walk through the door into a doctor's
office anyway. Stereotyping of women as hysterics
or hypochondriacs is still rampant even with
doctors from younger generations. I don't think
it's a Conscious thing on their part necessarily.
But MDs do do it.
Posts: 571 | From Massachusetts | Registered: Oct 2008
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posted
I also listened to the broadcast. Well done Shaz. That is a great summary of what went on.
I feel that Dr Oz is affraid to say which side of the fence he is on. I was a little hopeful that he would be more on our side and help make this disease more well known so we can get help.
Anyway, again great summary.
Posts: 413 | From nj | Registered: Nov 2005
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Angelica
Unregistered
posted
It might be helpful if Dr. Oz talked to Amy Tan about her experiences with the disease or some of Oprah's other guests who have had it that he finds credible.
Maybe when someone close to him gets chronic Lyme he will start believing in it.
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joalo
Frequent Contributor (1K+ posts)
Member # 12752
posted
About seven minutes in he called it 'lymes' disease. Ugh!!
-------------------- Sick since January 1985. Misdiagnosed for 20 years. Tested CDC positive October 2005. Treating since April 2006. Posts: 3228 | From Somewhere west of the Mississippi | Registered: Aug 2007
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quote: -- Dr. Oz isn't ready to totally buy into chronic Lyme, having talked to some of his friends, who suggest that there may be many infectious organisms (including viruses) that we haven't yet identified. He does acknowledge that there is clearly some kind of disease process, noting that the park ranger in the movie did not seem like a stereotype for hypochondria.
[/QB]
so how do you treat this? lol. I hear soooo many doctors say this. I don't care at this point if it's lyme or not. If they agree there's something there, should we just have it and that be that?
Posts: 105 | From east | Registered: Nov 2008
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Angelica
Unregistered
posted
We need to think about doing our part to not be a financial inconvenience to the insurance companies the CDC and most of all the IDSA ; - )
I have heard Dr. Oz call it "Lymes" disease before.
I don't want to sound negative but I doubt Oprah is ever going to do a television show that exposes the truth about Lyme disease and I am losing any respect I had for Dr. Oz if I ever had any.
I am glad some people still want to send him nice emails encouraging him for having a radio show on "Lymes" disease but I will not be doing so.
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daystar1952
Frequent Contributor (1K+ posts)
Member # 3255
posted
Actually I think Dr. Oz should be encouraged for saying that there are other microbes involved and that it is not just about a particular strain of Bb. I think we should thank him for saying that and then go on to talk about the different strains and coinfections.
This is why a single test for all these organisms (impossible) should not be our main goal. One of our goals should be the symptoms complex...doctors need to learn it and need to be free to diagnose clinically without pressure not to...from whoever.
By thanking Dr. Oz for this....praising him for being smart in that respect but then adding more truths to the issue...I think will make him feel kindly towards lyme patients and activists. I have my doubts about Oprah but it's something we need to shoot for.
Please write to Dr. Oz and leave a message on their message board. If there is a possibility of the a lyme show airing on Oprah, we don't want to sabotage it by not responding. Dr. Oz and the others involved in this show are asking eveyone to write in and to ask their friends and family to write in also
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