posted
SO I had my second appointment with the LLMD on Monday.
Turns out that I did test positive for Bart (not Igenex) so the Rifampin was the right choice.
My CD-57 was at 46. This was after 11 weeks of doxy 100mg 2x/day from my GP and neurologist. My doc said that if I stop treatment before I reach around 180 my chances of relapse are pretty high.
I asked how long she thinks I may have had this and she said maybe about six months. That would bring me back to June which puts my original theory in the garbage.
So now I think back and wonder....where did I get this from?
I have a few ideas, but I can't pinpoint it. I know I am driving myself nuts about this, but I wish I knew.
Anyway, I also asked how long she thought I would need treatment. She said 6 mon minimal. She added that I am not too bad compared to most of her Lyme patients. I have to agree...more good days than bad lately.
So my question to all of you....She only has me taking Rifampin right now. What abou the Lyme? I also tested pos for that by CDC standards back in September.
Should I also be treated for that? or should I concentrate on the Bart only right now. My worst symptoms are from Bart.
Honestly the only Lyme symptoms that I can think of are the joint pains in my knees and hips. They are however minimal compared to the neck pain, jabbing eye pain, head pressure, flu-like feelings that are attributed to the bart.
Any thoughts???
Posts: 193 | From New Jersey | Registered: Oct 2008
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posted
I believe that Rifampin does have some effect on Lyme, but it is a weak effect. Most LLMDs combine Rifampin with either Doxycyline or Zithromax (even when just treating Bartonella) to prevent resistance and to help it penetrate certain areas better, I believe. My daughter takes Zith. and Rifampin.
Posts: 371 | From CT | Registered: Jun 2008
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posted
I would recommend reading the Dr. B treatment guidelines on www.ilads.org
Rifampin is not typically used as a stand alone treatment because of resistance (I believe that is also stated on the Rifampin website, but you might want to double check that).
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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