posted
Ok so we are about to take our 2 boys to their 1st LLMD appt tomorrow.
My oldest son is having leg weakness that gets worse while walking or standing. My youngest son is having urinary urgency all day. Sometimes it's worse when he sits. Not sure why? But I just had to go pick him up from school because of it.
Between these problems and many other Lyme symptoms they are missing several days of school each month. Or they are late. This is all before starting abx. So I am thinking it will get worse!
If anyone else out there is homeschooling their kids with Lyme please send me your advice. Also if you have Lyme how to do you manage with your own cognitive problems? Are there ways to get a tutor instead of you teaching? I have a hard time with just homework!
Also what do I need from the doctor for the school? Any other ideas? Thanks!!
One last concern....my son is signed up to go on a band trip to an amusement park. I already paid $66 for it. He is also signed up to go to DC with his class in May. His dad is going too. I paid over $400 for that! I wonder if I can get my money back or if he is up to it if he can still go if he is not in school? Anyone ever been in a similar situation?
-------------------- My lyme disease blog: http://lymetimes3.blogspot.com/ One BIG Lyme family! I tested CDC + 10/08 My mom Igenex + 11/08 & My brother Igenex + 4/09, My 2 boys some + & IND bands, clinical diagnosis 3/09 (youngest has Aspergers too) Posts: 470 | From Painesville, Ohio | Registered: Mar 2009
| IP: Logged |
posted
Hey Amy, how's Y-Town I know there are actually a lot of home schoolers in the Y town Western Pa area.. The beka system is a real easy system almost self taught and is way way ahead of public schools. In esense your kids could come out way ahead
I am a Dreamer, Believer, and Conquer; I will overcome this disease !!! Posts: 382 | From Alabama Via PA | Registered: Jun 2008
| IP: Logged |
bettyg
Unregistered
posted
amy, i'd ask for $$$ for both trips BACK.
amy, go to my newbie links page, use table of contents and unlimited info there about home schooling from several people...very detailed! good luck.
IP: Logged |
Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
Check with your local school system.
Find out what they need before your LLMD appt with kids.
They may need a letter with diagnosis and recommendations
For teaching at home.
For you to "home" school you may need to apply to the
State Board of Education to get permission and also
Get the current curriculum from them so your children stay current.
I would call the school first.
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
| IP: Logged |
posted
I was able to have the town provide a tutor for my daughter. Her lyme specialist prepared a letter and spelled out everything and every reason why she couldn't attend. We haven't had any problems at all. The tutors are wonderful, caring, and very understanding about how she is feeling. He even requested a 504 Plan for her so the teachers are making special accommodations for her, i.e. english - reading is an issue because of her migraines, so the tutor reads to her, amount of books to read has been cut down drastically, and she takes mini tests after each chapter. This has worked out really well.
Posts: 51 | From Connecticut | Registered: Sep 2008
| IP: Logged |
posted
Thanks! I am working on everything for their LLMD appt tomorrow. I have details for him to write a letter to the school. I called the school today and that is what they want. So we will see what happens!
-------------------- My lyme disease blog: http://lymetimes3.blogspot.com/ One BIG Lyme family! I tested CDC + 10/08 My mom Igenex + 11/08 & My brother Igenex + 4/09, My 2 boys some + & IND bands, clinical diagnosis 3/09 (youngest has Aspergers too) Posts: 470 | From Painesville, Ohio | Registered: Mar 2009
| IP: Logged |
bettyg
Unregistered
posted
from my newbie links...
EDUCATION - Lyme discrimination law geneal, 8-22-07 http://idea.ed.gov. It is Public Law 94-142; Free and appropriate education for all children.
I homeschool my two boys who do not have lyme, but I'm waiting for my diagnosis. I'm not going to candy-coat it, it is difficult. But, I must also say it is very rewarding.
And seeing that they have many issues with school & their health, it may be worth considering if you are up to it.
Check the laws in your state. We have none in Illinois so it's totally up to the parent what they do. But, each state has their own regulations & you can find them on the net.
My boys are ahead of their peers, even though we are actually behind the school system this school year by a few weeks. It's hard to keep up with all the appts. and such!!!
Posts: 18 | From United States | Registered: Mar 2009
| IP: Logged |
posted
We have homeschooled(6 kids) for 20 years. This is the 1st year they are all out of the house or in college. We started homeschooling because of problems with our school system. I'm sure I had Lyme before that time because I was diagnosed with fibro 22 years ago.
Because of my health I consider our homeschool style to be relaxed. I couldn't do what many others were doing - school at home. I wasn't healthy enough to be part of co-ops.
Our kids have all gone on to lead productive lives and those that have went to college have been at the top of their class. (I think I bored them so when they had the chance they really took off!)
Remember that much of school in the early years is busywork. The teachers have to keep everyone at the same level. It may only take an hour a day to do basic math and reading, etc.
The most important part, I feel, is to keep them reading and doing chores around the house(cooking-math, laundry, dishes, cleaning, taking care of siblings, etc). If you live in rurally having animals to take care of and be responsible for is a big plus(science).
If their health is very poor, some of the science programs on TV may be something they can do. Also, writing, drawing and other things that don't take much energy. Grocery shopping with you may be all the exercise they can handle.
It is funny that the years I was the worst health-wise, my older kids scored higher on their standardizes tests. They basically were taking care of me, siblings, and the home, and not doing much school work. Go figure!
If they learn to work, as their health allows, I think everything will fall into place. Remember they all learn at their own pace and in their own way.
Check with Homeschool groups in your area for the state laws. Government agencies will usually give you requirements that go beyond what the law calls for.
-------------------- "His faithful love endures forever." Psalm 136 Posts: 189 | From MN | Registered: Dec 2007
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic