posted
I am about to add Alinia added to my Zithromax (250mg-500mg daily) as I my LLMD's energetic tester found that Babesia and Mycoplasma are my remaining problems. Lyme seems to have resolved.
I am also taking BLT (herb combo) and Enula (herbs for Babs).
Can Alinia users tell me their experiences and whether it has helped them?
It's a very expensive drug. Has anyone found a generic version from Canada? If so, where?
I did take Biltrizol a while back, but it was in 2 big doses. Are Alinia and Biltrizol similar?
I can't find anything online about Alinia being effective for Babesia and am a little concerned about this.
Apparently Mepron did not test well for me, but Malarone did.
For some reason my LLMD wants me to try Alinia for 2 mos.
I suppose I can add Minocin or Doxy into the mix to hit the Mycoplasma also.
Any feedback?
Thanks!
Posts: 770 | From USA | Registered: Jul 2006
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CD57
Frequent Contributor (1K+ posts)
Member # 11749
posted
My LLMD uses it for babesia, I think he may pulse it. I haven't done it.
Posts: 3528 | From US | Registered: Apr 2007
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posted
I started Alinia about a month ago. I suspect we have the same LLMD (sundays).
It's been rather rough. It seems to be gaining popularity as a babesia drug that also is supposed to have cyst-busting capabilities.
My insurance wouldn't cover it. As usual. I ordered from a canadian pharmacy, and it came from India, via canada.
I read on the california lyme yahoo group that SOME doc in California is getting it for his patients from Canada/India for somewhere around $300. I'm not sure who it is though.
It's too early for me to say whether it is helping. I'm early in treatment. I did have trouble taking the dose he told me to....I had to back off a bit and slow down.
Good luck.
PS. What did you think of the energy tester? They mentioned that to me at the last appointment. I'm a bit skeptical. I'm open-minded, but......yeeesh, it's so hard to know.
Posts: 322 | From Venice, CA | Registered: Sep 2008
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posted
My experience was positive. i took it as a cyst buster & found it much easier to take than flagyl.
Only real side effect i noticed was it turns bodily fluids a radioactive yellow---goes away when you stop using it. It is quite expensive---over $20 per pill.
Posts: 213 | From ohio | Registered: Jul 2006
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posted
I was on Alinia/Zithromax for quite some time. Well tolerated, except for the radioactive yellow bodily fluids - but I guess that meant the drug was being carried everywhere! All in all, a good drug. Some LLMDs don't believe in its usefulness as a cyst buster, but for "misc" protozoans it is supposed to work well. Jury still out on if it is equivalent to anti-malarial for Babesia - my current feeling is that it works, but not as well.
Posts: 690 | From East coast, USA | Registered: Jun 2006
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Jill E.
Frequent Contributor (1K+ posts)
Member # 9121
posted
I'm supposed to start it for Babesia (same doc as you I think). I didn't know about the radioactive yellow - thanks for the warning. Gee, Rifampin turns us orange, Alinia turns us yellow.
I'm super-sensitive to medications and everything so I am worried about how strong it is supposed to be - I haven't been on a cyst buster or Babesia medication yet so there is a lot to kill off.
Jill
-------------------- If laughter is the best medicine, why hasn't stand-up comedy cured me? Posts: 1773 | From San Diego | Registered: Apr 2006
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posted
They don't seem to have it.
Posts: 770 | From USA | Registered: Jul 2006
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groovy2
Frequent Contributor (1K+ posts)
Member # 6304
posted
Hi Mico--
I dont know why the link dose not take you to the correct page- it worked for me last night--
Go to Medsmex page and enter -- nitazoxanide -- in the search space-
They have it in 2 sizes 200 and 500mg-
I have used Medsmex before takes 2 weeks to arrive at your home --Jay--
Ps -- No script needed --
-
Posts: 2999 | From Austin tx USA | Registered: Oct 2004
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cottonbrain
Frequent Contributor (1K+ posts)
Member # 13769
posted
I hate alinia!
I used alinia for 2 months, switched to plaquenil for a couple months, and just finished one addtl month of alinia.
I am not going to renew my script for it, because insurance wont pay anymore, and i just feel like crap on it.
reasons i don't like it-- side effects: -depression -detachment -worse brainfog, cloudiness -increasing stiffness and all-over soreness. - increased pain in feet
for me it takes about three weeks for the depression to lift...
one positive reaction to Alinia: it has lightened the Bartonella streak marks on my back. I mean REALLY LIGHTENED them, but they are still visible.
So if it's for babesia, why did it do that? seems curious.
oh, yeah -- my llmd says it is an effective killer of GI parasites. he says it works in three days for that purpose
Posts: 1173 | From USA | Registered: Nov 2007
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