posted
I often see off balance/dizziness with out true vertigo listed as a Babesia symptom.
This symptom fits me to a "T". I have been evaluated by evey imaginable specialist and have had misdiagnoses galore- Meneire's, Migraine Vertigo and POTS to name a few.
I do see a LLMD. I tested negative for Babesia one time via the FISH test from IgeneX.
My only remaing disabling symptom is this off balance thing. It is maddening- 3 1/2 years straight now, 15 years off and on.
So- what other tests, where and is this truly a Babs symptom?
Anyone have this symptom improve by treating Babesia?
Thanks!
Posts: 819 | From East Coast | Registered: Apr 2009
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Treatment for Babs helped get rid of this symptom for me.
posted
Kitty, you sound a lot like my husband. He's had that off balance thing for a long time.
Just a week ago we got off any artificial sweetners and he is almost back to normal.
He had been to ENT's and had tests done but nothing showed up. I ran across the symptoms of aspertame poisioning and he had almost all the symptoms.
This may not be the case with you but I just wanted to give you his experience.
I do hope you get it figured out. I have had it too some and it's definitely no fun and can be very debilitating.
Posts: 495 | From KY USA | Registered: Dec 2004
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posted
Really? What was the intensity of the "dizziness"?
Mine is all or most of everyday. The boat is always a rockin'.
What strains do IgeneX test for? I hear there is an East and West coast strain. I'll check the website as well.
Posts: 819 | From East Coast | Registered: Apr 2009
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posted
What strain is common in the South East US?
I got the bulls eye after a camping trip to the beaches of N. Carolina.
Found this on IgeneX website:
"The FISH test (#640) is also included since it is a more sensitive indicator of Babesia infection, even in the absence of antibodies"
That does not seem right. I think it would be easier to demonstrate antibodies that see a glowing cell show up w/ Babesia inside, given that just a very few Babs organisms can cause infection.
Guess I need to read up on why this is so.
Posts: 819 | From East Coast | Registered: Apr 2009
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quote:Originally posted by sapphire101: Kitty, you sound a lot like my husband. He's had that off balance thing for a long time.
Just a week ago we got off any artificial sweetners and he is almost back to normal.
He had been to ENT's and had tests done but nothing showed up. I ran across the symptoms of aspertame poisioning and he had almost all the symptoms.
This may not be the case with you but I just wanted to give you his experience.
I do hope you get it figured out. I have had it too some and it's definitely no fun and can be very debilitating.
Thanks, I had heard that about aspartame. I wish it was my problem, but I have almost never used artificial sweeteners.
It IS very debilitating and one cannot understand unless you have been through it- thanks.
Posts: 819 | From East Coast | Registered: Apr 2009
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posted
Thanks, Keebler. I have read all of the links in the past and have been doing this for 15 years with doctors, diagnoses, etc. I would say I have read nearly every site that has to do with dizziness.
I just finished an unsucessful trial of Vestibular Therapy with a Lyme knowledgable therapist. I am to still do the exercises at home, but they are not helping so far after nearly 2 months.
I know my dizziness is some type of tick born disease as it began after the bulls aye rash and swollen knees.
I am just trying to pin down: Is it due to Lyme/Bart for which I am being treated, or Babs, which is yet undiagnosed?
I appreciate the links, however.
Posts: 819 | From East Coast | Registered: Apr 2009
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posted
I sure hope you find the source of your dizziness. You've been dealing with it a long time for sure.
Posts: 495 | From KY USA | Registered: Dec 2004
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posted
I can totally relate! I have had this rocking boat feeling non stop for 4 years. I was also infected in eastern NC. I did a round of Mepron/Zith for a clinical diagnosis of Babesia. It helped with the night sweats I was having at the time but not the dizziness.
I also did about a 6 month treatment for Bart which did not alleviate the dizziness either.
I started having night sweats again about a year after Babs treatment, so I've been pulsing Artemisinin for the past 6 months or so. Again, the sweats are gone but the dizziness still remains.
It's so annoying! I hope someday we will be dizzy free.
Posts: 26 | From Washington | Registered: Aug 2006
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posted
I just looked at an old post of your re: mal de barquement syndrome. That is exactly my symptom description, but one of the only things I have not been dx'd with! lol
Dissapointing to see that Babesia tx did not help.
What did you use for Bart? I am on Rifampin/Zith for that.
I was infected in the Outer Banks camping on the beach. Also was eaten alive by sand fleas!
Posts: 819 | From East Coast | Registered: Apr 2009
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posted
I did Rifampin/Zithro too. I feel like it still could be Babesia lingering. Maybe I haven't fully treated it? I don't know. Maybe Babesia treatment could resolve it for you! Hope so!
Posts: 26 | From Washington | Registered: Aug 2006
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Lauralyme
Frequent Contributor (1K+ posts)
Member # 15021
posted
Do you consume sugar? That can cause dizziness...it did for me anyway
-------------------- Fall down seven times, get up eight ~Japanese proverb Posts: 1146 | From west coast | Registered: Mar 2008
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posted
Not much of a sugar person, though I have never noticed a difference in symptoms either way.
The dizziness began as a vertigo attack out of the clear blue a couple of months after my bulls eye rash. I have had 3 such attacks over 14 years and this one is going on and on---thanks to a month's worth of steroids at the onset...
Thanks for all the suggestions everyone.
Posts: 819 | From East Coast | Registered: Apr 2009
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