posted
I have been on numerous oral and IV antibiotics and am just not improving. I just feel like crap most of the time and extremely fatigued. I'm thinking it must be babesia. I can't do this much longer.
**EDITED to remove doctor's name. AL**
[ 03-04-2010, 10:38 PM: Message edited by: Anna Lee ]
Posts: 383 | From Ar | Registered: May 2007
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tick battler
Frequent Contributor (1K+ posts)
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posted
Sorry to hear this. I can't help with the LLMD, but what are your symptoms? Have you tested for babs through Igenex? Both duncani and microti?
tickbattler
Posts: 1763 | From Malvern, PA | Registered: Jul 2009
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sutherngrl
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posted
Please post your symptoms.
Posts: 4035 | From Mississippi | Registered: Jul 2008
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posted
Incapacitating fatigue. I feel bad and have to push myself to do anything. I feel a lot worse if I do much. I get burning sensations that migrate--it's a burning sensation like mentholatum feels but this is in my muscles, especially my left lower leg and my tongue. Headaches, neck pain, chills. My heart pounds but my pulse isn't elevated.
I haven't been tested for babs. My LLMD thinks we have an infection soup from a tick so treats for everything. I've been on malarone but didn't notice any improvement. I felt a little better on bactrim but it didn't last. I've been on several oral and IV antibiotics. My adrenals, pituitary have been affected, I have sleep apnea. I've been this sick for almost 11 yrs. Prior to that fatigue and my neck weere a problem but not to this degree. I also startted rife. I am sick and tired of being sick and can't stand anymore herxes.
Posts: 383 | From Ar | Registered: May 2007
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WildCondor
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posted
You arent allowed to ask questions about Dr. S, its against the rules here. I dont know why. But it is banned.
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Most LLMD's should be able to treat babs, but as with Lyme most do have favorite drug combos they like. Not knowing your financial situation I will just say that I was actually glad hubby was allergic to Mepron because even with insurance I just don't know how we would have ever been able to pay for that med.
Lyme Md has a very good blog post on babesia which covers the basics including testing -- see comments to the post.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96227 | From Texas | Registered: Feb 2001
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seekhelp
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posted
I love reading LymeMD's blog. The guy is a genious!
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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TerryK
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METALLIC BLUE keeps patient comments about many lyme treating doctors. You may want to write to him and ask if he has gathered any comments. [email protected]
Terry
Posts: 6286 | From Oregon | Registered: Jan 2006
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WildCondor
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posted
I'm not kidding, it's right in the rules at the top of all the forums, but for some reason this post is allowed.
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sparkle7
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posted
The Lyme MD blog has alot of good info.
I didn't have typical babesia symptoms but my doc just suggested that I treat it. I asked him about it years ago & he said he didn't think that I had it but he's changed his tune now.
I'm not sure if the drugs will effect it. I'm going the herbal route for now. You just have to keep working at getting well.
I've been ill for 15 years & it sucks... Try some of the herbs for babesia & see what happens. Seems that if you get worse - you may know that you may be onto something.
There are hundreds of strains of babesia - the tests don't seem to be cutting it for diagnosis. Who knows if the abx are the right ones for all of the strains out there.
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
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I didn't use the name of the Dr. just his initial and state like I've seen many do before. I didn't know this rule had changed. Sorry.
Posts: 383 | From Ar | Registered: May 2007
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96227 | From Texas | Registered: Feb 2001
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Haley
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Member # 22008
posted
I have the same feeling about myself. I have never treated Babs. How long were you on Malarone? Have you been on any other Babs meds?
Posts: 2232 | From USA | Registered: Aug 2009
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posted
I've been on several meds--- doxy 100mg 2 three times daily ceftin500mg 1 twice daily zithromax 250mg increase until 2 dailyflagyl250 three times daily clindamycin150/quinine 324 biaxin/plaquenil rifampin 150mg 1-2 twice a day malarone 250/100 4 daily---i brkfst, 1 lunch, 2 dinner Tindamax500 1/2 three times daily biaxin 500mg 2 daily
IV drugs: claforan tetracycline rocephin vancomycin doxycycline flagyl I've done the questran. Didn't help much. Did 7 mos of heparin injections nightly After all that I'm still sick. All the IV therapy cost around $100,000.00
Posts: 383 | From Ar | Registered: May 2007
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tick battler
Frequent Contributor (1K+ posts)
Member # 21113
posted
It does sound like babs. Why haven't you tried Mepron/zith together? I would ask to try that.
Often when people don't get better it's b/c they haven't adequately treated babs. I would insist on a trial of Mepron/zith and move on to another doc if he doesn't agree.
tickbattler
Posts: 1763 | From Malvern, PA | Registered: Jul 2009
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posted
that dose does seem aweful low, I was just on that combo and was taking the clindy 3x per day and the q @ dinner time !
and I took artemesinin 3x per day with this combo!
maybe your doctor prescribed it at a lower dose as it is a brutal herx !!
ive said it before and will say it again I would rather pass 2 more kidney stones than go back on this combo !!
Posts: 294 | From sw chicago suburbs | Registered: Apr 2007
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quote:Originally posted by WildCondor: I'm not kidding, it's right in the rules at the top of all the forums, but for some reason this post is allowed.
Only because it did not get reported until just now .... 1:35 PM on Monday. Before it was reported, moderators did not see it. Thank you to the poster who reported it.
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