janice victorov
Frequent Contributor (1K+ posts)
Member # 22937
posted
morning, Well my bart has really kicked in with the crying, can't sleep. Last night had strnge tremors all night. I couldn't sleep so spent two hours crying.
Emotionally I am a mess just because I think omg, i'm going nuts.
I'm on Bactrim DS with zith/mepron for the babs which is doing bettr.
Anyone else experience this?? I also have been herxing the last ten days which is another whole ball of wax.
OMG,,can it get better.
-------------------- jkv44 Posts: 1247 | From virginia | Registered: Oct 2009
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janice victorov
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-------------------- jkv44 Posts: 1247 | From virginia | Registered: Oct 2009
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nefferdun
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posted
I am not sure what you mean by tremors but I have muscle twitching. It was gone for a long time but recently returned when I cut back on the abx, taking it just four times a week instead of seven. I am back up to full dose and things are quieting down. I also take Bactrim DS with zith.
I also had trouble sleeping but that is getting better. One night I was just like you, nothing to do but cry. It was then that I decided to stay on the abx forever, if necessary, as it was preferable to the alternative even if I got liver damage. I was THAT down thinking I would rather die from a failed liver (not saying that is what happens) then the craziness of bartonella.
It got better for me and I hope you begin to feel better soon.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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BackinStOlaf
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Member # 23725
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Sorry this is happening. I also had a rough day yesterday. *hugs*
-------------------- First Symptom 9/09 Multiple docs, negative Labcorp test LLMD: 1/10 Positive Igenex/CDC test Treatment 2/10 2/10-8/10 Amox, ceftin, zith, flagyl Currently: Bicillin, Minocycline, still dealing with severe breathing issues
Posts: 1121 | From New York, New York | Registered: Dec 2009
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posted
I have had a lot of tremors- some you can see physically when I lay down in bed, most are "internal" and I can just feel them or they wake me up.
At my worst, I would have 20+ tremor sessions a night. Each lasting from 10 seconds to a few minutes in length. Now after almost 9 months treatment, I am down to 1-2 most days, some days none.
They were extremely scary at first, but then I just sort of thought "OK- here we go again, hang on..."
Mine have gotten better with my current treatment regimen: IV rocephin, 600 mg Rifampin, Plaquenil. Also did a course of Mepron/Zith this spring. I am Igenex pos for lyme with clinical bart/babs.
I personally attribute the tremors to bart, but I can't be sure. Most importantly, you are not going nuts, and it will get better. Keep fighting.
Posts: 233 | From Hudson Valley | Registered: Jun 2010
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I have "tremors" or spasms, or major twitching, myoclonus, whatever you want to call it. I don't understand it, and I don't know if it is lyme of bartonella.
Yesterday was a bad day for me as well... I also cry (better to let it out) then get a notebook out and write positive affirmations, goals, and things that went well during the day.
I also write things to cheer me up...suchas.."I am taking the appropriate medication to get me closer to my goal of health". This is TRUE.
Also, having been through bizarre spasms, I now know that they will not kill me.
I have sought symptomatic relief from a movement disorder neurologist. You may want to try this...they might not believe you have lyme, but they can help you with medications (many not ideal, but they can reduce symptoms) that will allow you to be comfortable (or more comfortable or less freaked out or whatever) during your treatment.
Once symptoms can be controlled even just a little, we can get our mind into a state that can believe we are on the path to getting better. That is key.
I don't know what the difference is between the tremors people experience and what I experience. For me, it is scary and debilitating psychologically. It takes a lot of positive self-talk, reading books, and seeking some counseling to maintain a positive attitude.
Best of luck, you are not alone, keep treating, it will get better!
Posts: 172 | From ohio | Registered: Feb 2010
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janice victorov
Frequent Contributor (1K+ posts)
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posted
Thanks for all the kind words. I appreciate it more than you all know.
My llmd said it would get worse before better. Was he ever right.
For me it seems to be worse at night after I fall asleep.
The bart seems worse at night rather than during the day.
Does that happen to you regarding the babs?
Thanks again for the kind words of encourageent.
-------------------- jkv44 Posts: 1247 | From virginia | Registered: Oct 2009
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janice victorov
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Member # 22937
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-------------------- jkv44 Posts: 1247 | From virginia | Registered: Oct 2009
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
Research the drug Amantadine. It helps with tremors. Parkinsons patients use it.
I just found this interesting link and it is used with tigecycline for bartonella
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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I have read that night tremors are associated with the lyme's bacteria lowering the bodies temperature so it can thrive at night. My entire body would shake on occasion as I tried to sleep and could not get warm no matter what.
My tremor attacks were mostly at night to begin with on occasion. Now I live with tremors in my hands and arms everyday. And the burning in my wrist joints.
Posts: 9 | From Central Florida | Registered: Sep 2010
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I think it is 95 %coused by viruses and that's what is in my case to.And same is with cold in upper and lower limbs.OLE and monolaurin(lauricidin ) will help,and we have to treat lyme till our immunity takes charge to fight back.
Posts: 482 | From Nebraska | Registered: Feb 2010
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canefan17
Frequent Contributor (5K+ posts)
Member # 22149
posted
Boneset tea (buy bulk from 1stchienseherbs.com)
can help with Bart and will immmediately help symptoms.
increase macrophage ability
Also... since I've started cryptolepis I've been hitting bart.
I use red root and some smilax for detox
Posts: 5394 | From Houston, Tx | Registered: Aug 2009
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lymeladyinNY
Frequent Contributor (1K+ posts)
Member # 10235
posted
The "tremors" for me are more like earthquakes. They resemble seizures. My body used to get so out of control with them and I didn't know which disease was causing it.
I don't even remember how I figured out it was bartonella. I had to go to the ER a lot and finally got a prescription for valium for home use. I need to use valium almost every day to calm the tremors.
I have fallen out of bed from shaking violently and have arched backwards so far that I thought my back would break. It is exhausting and painful. I look like I need an exorcism sometimes.
Rage, insomnia, crying - all a part of bart infection.
It is so fun - NOT.
- Lymelady
-------------------- I want to be free Posts: 1170 | From Endicott, NY | Registered: Sep 2006
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