posted
I do check in every now and then and read, just haven't been able to respond or post due to extreme pain and exhaustion.
Does anyone else ever feel like this? where you just can't do 1 more thing, like check your emails, take 1 more step, 1 more bite (because it is tiring to chew), open your mail, or even answer the phone, cause you just don't have the energy to even talk.
I have absolutely NO energy, my pain is unrelenting non-stop and my fatigue is unbelievable anymore. I am on 20 mg. of ritalin for energy, and I could lay right back down, because it does nothing for me.
I am using a walker to walk, because my legs are just too tired and achey to move.
I just started treatment with a new llmd 1 month ago and haven't noticed any difference yet, but I know it may take a long time also.
Anybody have ANY ideas for energy? Would be greatly appreciated.
Posts: 111 | From northeast Iowa | Registered: Oct 2006
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posted
How is your B12 level? Maybe get some IM shots.
They are my lifeline to any energy level.
-------------------- Lyme, Babs, Fry Bug..... Whatever it is, may a treatment be discovered to make us all whole again! Posts: 941 | From AZ-MT | Registered: Oct 2004
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posted
lou - this has been ongoing for 4 years now,so i know it is not from starting new treatment. Thanks for the well wishes.
Keebler - yes please, I would appreciate adrenal support links
I do take sublingual B12 daily, I was doing shots for a while (months ago) but maybe should have levels checked again.
Posts: 111 | From northeast Iowa | Registered: Oct 2006
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17hens
Frequent Contributor (1K+ posts)
Member # 23747
posted
Yes, I had this type of fatigue a while back. While stirring, I had to rest my fingers every time around the bowl as they were too tired to keep going.
Is that what you mean? Like something is sucking the energy right out of you? This resolved for me with Bartonella treatment.
It was replaced with throbbing fatigue. As if I had a flu, throbbing all over, upon waking, etc. This has resolved with Babesia treatment.
-------------------- "My flesh and my heart may fail, but God is the strength of my heart and my portion forever." Psalms 73:26
bit 4/09, diagnosed 1/10 Posts: 3043 | From PA | Registered: Dec 2009
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six - need help with detox. what, how, how much, how often? I know what an enema is, where to put it, how to do it, - just don't know the rest. Thanks
Posts: 111 | From northeast Iowa | Registered: Oct 2006
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
Yes I have felt too tired to stand and didn't get out of bed much. Starting treatment did that to me but after two months I was much better although I still have bouts of extreme fatigue. Then my mind was the problem.
Acetyl L carnitine is very good for stamina. It helps convert fat to muscle to give you more strength and is also very good for your memory. I take 1000mg along with 600mg Alpha Lipoic Acid.
I agree you need to consider co-infections that might be causing your symptoms. Not everyone infected presents with classic symptoms. If you have babesia you are being robbed of oxygen so of course you would be exhausted.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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