posted
I have issues too. Have they checked for genetic pathway defects? That is extremely important... Genelex in WA state does a great test....and a KPU test is most important..What kind of treatment are you doing? Herbs,Byron White? Rifing?
Before any of it you must detox with systems like ours...Pekana Drainage is great for that as well as apple pectin and binders.
Posts: 871 | From orange county, ca. | Registered: Jan 2006
| IP: Logged |
lyme in Putnam
Frequent Contributor (1K+ posts)
Member # 11561
posted
I used to for 6 years, then they didn't cut it. On herbals since sept. The whole healing process is slow. Maybe you could post this under seek a doctor. Keep goin. Feel better.
-------------------- He took u to it, He'll you through Posts: 2837 | From NE. | Registered: Apr 2007
| IP: Logged |
karenl
Frequent Contributor (1K+ posts)
Member # 17753
posted
you are not - start with extreme low dose over the first months and with an easy abx like doxy
hydroxycobalamin shots helped me a lot.
Posts: 1834 | From US | Registered: Oct 2008
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- The support methods that have been posted for you are what many use to be able to tolerate treatment. Treatment is very hard for most. Without the support methods, may would simply not be able to do it.
Have you been able to read the information on RIFE ? That might be a good option for you. -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
springshowers
Frequent Contributor (1K+ posts)
Member # 19863
posted
I had the same issues and was close to giving up til I went on IV abx and it was a total different story.
That with detox support I easily was able to be treated with high doses of abx for long periods of time daily and I made the most progress ever.
Do not give up because of this.
FOr some of us ORals are Totally different than IV and I still am not sure exactly why!!
Thank goodness I tried
Posts: 2747 | From Unites States Of America | Registered: Apr 2009
| IP: Logged |
posted
I can only do very few, and luckily found one that works for me.
A lot of folks who can't do abx do the Buhner herbs - you could check out the book "Healing Lyme," by Steven Buhner. The yahoo group is called Lyme_Aid_Buhner.
There are many other treatment possibilities to explore as well.
Posts: 13117 | From San Francisco | Registered: May 2006
| IP: Logged |
phyl6648
Frequent Contributor (1K+ posts)
Member # 28522
posted
Thanks everyone. Will post more later.
Posts: 1058 | From VA | Registered: Oct 2010
| IP: Logged |
gwb
Frequent Contributor (1K+ posts)
Member # 7273
posted
I could not do abx. Tried off and on for five years but just couldn't handle them. Look for the Hansa Center thread I posted around Jan 2010 for the protocol I went on. Got me about 75% better and still working my way up.
momlyme
Frequent Contributor (1K+ posts)
Member # 27775
posted
My son got worse on abx. Not like a herx and then better either... just a steady worsening. WBC kept going down. Liver function going up. Went from orals to IV... things got worse quicker.
I believe it has to do with the steroids his primary care put him on before we found our LLMD.
We are treating HPU, heavy metals, parasites, mold. We have been treating with supplements for nearly a month. He seems to be getting somewhat better. At least some of his symptoms are not happening right now.
Saw his LLMD today, we are going to try Alinia. I don't think that is considered an antibiotic. More of a anti-protozoa. Not sure.
As with anything we add, we will start slow and see how he does.
It's all trial and error. Find a good doctor you can trust. They will help you find what works for you.
You must also help yourself. Start somewhere.
Never quit.
Keep a journal. This is important to chart progress. When you feel like crap... you can look back and remember when you felt crappier.
Some days that is enough to know... it could be worse and it has been.
It will get better... and it does.
There are lots of natural protocols. Choose one.
-------------------- May health be with you!
Toxic mold was suppressing our immune systems, causing extreme pain, brain fog and magnifying symptoms. Four days after moving out, the healing began. Posts: 2007 | From NY/VT Border | Registered: Aug 2010
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic