I know over the years my list of 'weird' sx has grown! This one though scares me to death--like I can't get a deep breath, plus someone or something I'm looking at will zone in and out. Then I get the 'shakes'..sort of -more like vibrations. I know..weird.
Difficult to describe. Had it for years without knowing what it was and I still don't.
I've had brain MRI's, CT scans, nothing. Seen a neuro, we were too busy dealing with my low BP and dysautonomia. I don't think this is dysautonomia though.
Would love to hear from others who have this 'zoning in' and 'zoning out'-- I almost become unable to put a sentence together. Happening now, I'm surprised I can even write or look at the computer screen.. Thanks!
Posts: 182 | From hills and valleys | Registered: Jan 2009
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You just described me!!! I had that same issues and was diagnosed with lyme in dec. I had an mri that showed white lesions in september but do not think that is causing it.
Are you taking any meds? Do you feel like you are having an outta body experience when someone is talking to you? I shake after too and wonder if it panic from the experience itself?
The med that I just wrote about and now stopped Rifampin caused this to be 1000 times worse and I cant seem to get over it at all now.
-------------------- Diagnosed with chronic neuro lyme 12/10 after 30 years of vertigo.2 tick bites in 3 yrs from upstate NY. Was on omincef for nine mths..zith and rifampin stopped.Remission~ All the pain and symptoms are back and I am not treating now with biaxin. Posts: 788 | From New york..queens | Registered: Nov 2010
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posted
You just described me!!! I had that same issues and was diagnosed with lyme in dec. I had an mri that showed white lesions in september but do not think that is causing it.
Are you taking any meds? Do you feel like you are having an outta body experience when someone is talking to you? I shake after too and wonder if it panic from the experience itself?
The med that I just wrote about and now stopped Rifampin caused this to be 1000 times worse and I cant seem to get over it at all now.
-------------------- Diagnosed with chronic neuro lyme 12/10 after 30 years of vertigo.2 tick bites in 3 yrs from upstate NY. Was on omincef for nine mths..zith and rifampin stopped.Remission~ All the pain and symptoms are back and I am not treating now with biaxin. Posts: 788 | From New york..queens | Registered: Nov 2010
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No, I've had this before I started meds and somehow it doesn't seem to be getting any better or easier. Sorry you have the same thing.
Ugh-sorry about the Rifampin exacerbating this. I think mine is more infection/neuro related, because I get the chills, feel feverish and fatigue and need to lie down. I also get short of breath.
All I can say is "hang in there" there are lots of alternatives to Rifampin and I hope you feel better soon.
Posts: 182 | From hills and valleys | Registered: Jan 2009
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I've had the same experience on and off for years. First in grade school a few months after a rash that the doctor diagnosed as ringworm. Had all kinds of tests and was diagnosed with a mild form of juvenile epilepsy. Came on again my junior year of high school for a month straight. Doctors then said it wasn't epilepsy, but panic attacks!! Ended up in the psych ward of the local hospital for 3 weeks.
I'm now 45 yrs old and still suffer from it and almost every other symptom of Lyme that have piled on over the years. Unfortunately, I live in Montana and was never able to find a doctor who could figure it out or even consider Lyme.
Just recently I found a Doctor here that specializes in Lyme and have an appointment in 2 weeks. It is definitely one of the more unsettling symptoms that I have. The air hunger was also horrible when I was younger, but not as bad now, or maybe I've just adapted to it. Good luck. BBCOACH PEACE
posted
It sounds like "absence" or possibly temporal lobe seizures.
My son has been taking Lamictal and Tegretol for years for bipolar disorder (along with other psychotropic drugs). These two meds also happen to be prescribed for temporal lobe seizures.
He was recently started on rifampin, which has a drug interaction that results in a decreased blood level of Lamictal, and sure enough, he had one day of "zoning in and out of reality" until we increased the dose of Lamictal to compensate for the rifampin interaction.
I don't know if this helps, but that's our experience.
Susie
Posts: 234 | From albany, ny | Registered: Mar 2011
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chiquita incognita
Unregistered
posted
See my thread about the blood brain barrier. I don't know if this applies in your case or not, but it could be worth asking your doctor about.
I am so sorry to read about your distress.
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Bbcoach--what a heartbreaking story but at least now that you have a diagnosis and will be seeing a Lyme doc things will start to improve.
Susie R--yes, I was thinking 'seizures' too but more like 'seizure-like' activity. Hope those meds are helping your son, it must be so hard to be so young and have this illness. Thank you for your thoughts, I know these 'episodes' that happen throughout the day when I'm flaring are cyclical so I'm assuming that only treatment might help but as you say, other meds might help too.
CI--I'll check out your post on the BBB. Not sure what I'll find but as always I learn a lot on here.
At least I'm not alone in this.....
Posts: 182 | From hills and valleys | Registered: Jan 2009
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Thanks Loonie, After suffering from brain shocks (for lack of a better term) a few years ago, I actually had a full blown seizure. Started with a low, whistling sound in my right ear, and then exploded like a freight train going through my head with uncontrollable shaking of my whole body. Saw a neurologist who found nothing and, once again, labeled it as a panic attack. I also had an episode of showers of sparks that would cross through my vision and completely blind me for 20 seconds or so, then stop and come back a minute or so later. This happened continuously for three straight days, even while the doctor was examining me. He confirmed the phenomena, but never found a reason. I've never heard of anyone experiencing the same thing so I don't know if it's lyme related or not, but it sounds like it can cause a myriad of neurological symptoms.
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