posted
Ever since I was diagnosed with LD after a positive WB (about a year now), I have only ever really had a few symptoms. They have been constant and slowly improving even before I started treatment.
Basically, I got diagnosed with Labyrinthitis which caused my inner ear (left ear) to be damaged. I remember that right before all of this mess happened, I was very sick with a sore throat and such. After taking antibiotics, all of this went away and just left me with the dizziness/spaciness and tinnitus. The spaciness has done nothing but improve since I first had this mess. I have never had any other symptom indicating Lyme or co-infections. Do most people in here only ever have one or two symptoms?
I know that it's entirely possible for inner ear damage to take a very long time to heal (sometimes years according to my inner ear doctor). What I'm asking here is is it worth it to continue to take the antibiotics? I have taken breaks for as much as a few weeks in my treatment (7 months total so far), and I never really felt any worse at all. Just continued slow improvement. The only thing the antibiotics seems to do to me is upset my stomach. I tested for almost every co-infection under the sun too, and they all came back negative. I am under going treatment for them regardless, but it just doesn't seem to really be doing anything at all.
I don't know, I guess I'm just confused. I am tempted to fall back onto an herbal regimen and just keep myself in shape and see what happens. I am not debilitated in any way, just depressed every now and then from the tinnitus and the remaining spaciness.
Posts: 20 | From TX | Registered: Nov 2010
| IP: Logged |
payne
Frequent Contributor (1K+ posts)
Member # 26248
posted
take antibiotics on full stomach, and don't get dehydrated, keep the water going. as far as most people here getting one or two symptoms i say not, it seems more likely many symptoms are Lyme related.. i had 124 outta 148, those were woman symptoms i missed out on... if you have a LLMD, you should ask them about your ears and lyme.. I believe my LLMD said you will need 3 months of treatment for every year you had been with untreated lyme.. glad you are slowly improving.
-------------------- TULAREMIA/rabbit fever ? Posts: 1931 | From mid-michigan | Registered: Jun 2010
| IP: Logged |
payne
Frequent Contributor (1K+ posts)
Member # 26248
posted
cure/ on hallmark things to look for as lyme weakens and you feel normal.
it seems to be a cycle of the bug goes everywhere in your body, i had head(mycoplasma) symptoms, presuure then throat and lymp nodes in neck, soreness then esphogus and upper GI - like my food just sat then lower GI and liver pain, poor urination, then the runs, a month of the runs (Yellow) all through this my eyes blew a vessel, and felt like steelwool behind them.. my vision came and went with focas problems as i feel the bug ran to the water in my eyes to hide from the blood(antibiotics).. many symptoms were weaking and my body tells me we just kicked the bug (lyme) in the pants good. my wording and thoughts are stronger too hope its the hill i needed to get over..
-------------------- TULAREMIA/rabbit fever ? Posts: 1931 | From mid-michigan | Registered: Jun 2010
| IP: Logged |
posted
Dizziness can be from ear problems. If you had an ear problem and only have tinnutitus and dizziness, I would ask your doctor what benefit it is to continue on abx for Lyme. Personally, it doesn't make sense to me to hit it hard if you don't even have symptoms.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
| IP: Logged |
posted
Yeah, and I have hit it really hard to no avail. I even did IV for 2 months + orals at the same time. I can take Flagyl for weeks like it's candy and nothing really happens to me. The positive progression remains no matter what it seems (which is a good thing).
My LLMD even hinted the last time I visited him if the antibiotics might not be helping at all with my limited issues. He told me to try it for these next few months and we'll go from there. I will listen to him, but I think at that point I will go off antibiotics and just do maintenance herbs & vitamins. The good thing is that I have been getting into mega-shape and my blood pressure which was high from my horrible, horrible diet of mostly fast food is now perfect.
This ear thing just ****es me off though. If only the stupid ENT doctor would have given me antibiotics earlier, I don't think any of this would have happened. It blows my mind looking back on it. They saw fluid in my ear and everything, but they just sent me home with meclizine. Grrrr... when will docs learn that a dose of antibiotics won't kill you? Now I am dealing with freaking ear damage. Posts: 20 | From TX | Registered: Nov 2010
| IP: Logged |
map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
I will never forget what it felt like to be well. Totally well. I can remember it as if it were last month. It's been 12 1/2 yrs.
I can remember what it felt like to wake up refreshed. Ready to go at another hard working day.
Somethings are priceless.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Frown]](frown.gif)
Printer-friendly view of this topic