posted
I appear to have relapsed with Lyme (poss Babs) but at the time of the test was not on antibiotics yet. My GP did this test, but my LLMD never had before, so there is nothing to compare with.
Not sure what these numbers mean, but I am herxing a lot since going back on abx. I thought there was just one number for cd57:
HNK1 (CD57) Panel
% CD8-/CD57+ Lymphs 4.3 (range 2.0 - 17.0)
Abs.CD8-CD57+ Lymphs 90/uL (range 60 - 360)
This was done at LabCorp. I read in an article that the test is time-sensitive and must be performed within 12 hours of collection. The timeline on this report notes that it was drawn on 6/22 and reported on 6/24.
Thanks for input!
Posts: 688 | From Florida | Registered: Aug 2001
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I am not sure what the CD8 Lymphs are? I know mine was at 1 which is below range.
Your CD 57 was 90 which is not great but should be higher if you have a healthy immune system. I think they say they want at least 150-200?
Its funny you mention the time sensitive? I will have to look into this. I know mine was drawn and sat for almost 24hrs before it was picked up. It came back at 19 I wonder if something can die off if not tested soon enough?
-------------------- IgM- 31,34,39,83-93 IND IgM- 41+
IgG- 31,34,39,83-93 IND IgG- 41++ Posts: 610 | From Lymeville | Registered: Nov 2010
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More questions: if I am retested now that I am on abx and herxing, are the numbers likely to change? How often do docs usually re-test, if they are using the CD57 as a marker for active infection?
Posts: 688 | From Florida | Registered: Aug 2001
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posted
I don't get how they Gage this test at all. My count was perfect. But I have Lyme. I've read that some people have high counts and are very sick? I question the validity of this test.
Posts: 96 | From USA | Registered: Jun 2011
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posted
Agree, Lada - my CD57 count is in the 140s and I'm sick with Lyme. Am curious - what is your CD57 count?
I spoke with the originator of the test, Dr S, and he said people with Lyme can have a high CD57 count and still be ill, just as people with AIDS can have a high CD4 count.
My opinion: a low count shows ill, but a higher count doesn't matter, maybe until it's wayyyy over, and then I hope someone is well!
Posts: 13117 | From San Francisco | Registered: May 2006
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posted
Mine is 227. But, I was told it's not the Lyme that's bothering me as much as a confection that I tested negative for but I clearly have. Ok.. All this stuff is way over my head. Lol
Posts: 96 | From USA | Registered: Jun 2011
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posted
Well, that's a high count. So you said you have Lyme - did you test positive for it, or you know because you have symptoms?
Posts: 13117 | From San Francisco | Registered: May 2006
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posted
Thanks for the input everyone...as always with Lyme and TBD's there are no black and whites...just shades of gray.
Fuel, I looked at the BRM4...interesting, seems the shiitake mushrooms are the active ingredient. I remember years ago doing some research into mushrooms and their effects on the immune system. Do you know of any studies with this product or anecdotal evidence?
I'll do a search on this site to look for other conversations about it.
Posts: 688 | From Florida | Registered: Aug 2001
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posted
Hi everyone, I am new here with this being my 1st post and am so extremely tired of trying to figure out what to do to get over the hump and finally get better after 3 years of being diagnosed and on antibiotics for lyme. My problem and question is, after 3 years time I seem to be doing somewhat better as long as I stay on my meds, I have switched my diet extremely yet my lymph scores remain extremely low ranginging from 1-2.3 everytime I get tested. I see a llmd in Towson, MD and my primary dr in Frederick MD and nobody can help me get these up , so I can go off my meds. Does anyone have any knowledge with IVIG treatments and if this would even help? WHere I would begin to go to find a dr for these? Or any new ideas for me? I am 32 and have a 5 and 6 yr old and all they wish for me is to get better. I was a very high energy person and do my best to no let it affect my life but in reality it takes over from time to time when feeling so horrible and my hand pain starts in. Sorry to ramble, just hopeful for some new insights. I have never posted anything anywhere but I must be getting desperate for help.
Posts: 1 | From West Virginia | Registered: Jul 2011
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posted
Hi Lesa - thx for finding us - sorry you're feeling badly - sounds like it's time for you to be posting! People are very helpful here.
It's best if you start your own topic here so people can respond to your questions. You can do that by clicking on Post New Topic at the top of the page here.
Also, it's easiest for many here to read if you can type your statement in groups of 1-3 lines.
Posts: 13117 | From San Francisco | Registered: May 2006
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CherylSue
Frequent Contributor (1K+ posts)
Member # 13077
posted
My LLMD feels that if a number is over 120 and you are still sick, Borrelia is not the issue. It's a coinfection. Anything under 120 is Borrelia.
Posts: 1954 | From Illinois | Registered: Aug 2007
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posted
CherylSue, I only have Lyme, no co-infections, and have a CD57 count in the 140s. See my first statement above from the doctor who originated the test.
Posts: 13117 | From San Francisco | Registered: May 2006
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posted
That's what I was told. Probably not Lyme as much of the culprit but, a co-infection. Does that make sense?? I don't know!!
Posts: 96 | From USA | Registered: Jun 2011
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posted
That's what I was told. Probably not Lyme as much of the culprit but, a co-infection. Does that make sense?? I don't know!!
Posts: 96 | From USA | Registered: Jun 2011
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posted
Chlamydia pneumoniae decreases CD57 numbers as well. (at least according to Burrascano)
Posts: 125 | From eu | Registered: Dec 2010
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I wonder if something can die off if not tested soon enough?
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