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» LymeNet Flash » Questions and Discussion » Medical Questions » Do LD patients have suppressed immune systems?

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Author Topic: Do LD patients have suppressed immune systems?
DanielleMC
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I just cannot seem to be healthy for anything longer than a week. Started 2 weeks ago, ended up with the flu and strepth throat at the same time, and yes, I did get the flu shot... Then ended up with a bacterial infection. Now, I have an ear infection and have a sore throat again.

What can I do to boost my immune system because this is getting ridiculous and it's depressing. I feel crappy enough from LD and don't need all these other infections too!! Thanks

--------------------
7/09- WB IGG Neg all bands -WB IGM Pos bands 23 & 41.
Treated w/ 21 days of Doxy.
10/09- WB IGG Pos bands 41 & 58 -WB IGM Pos bands 23 & 41.
04/11- WB IGG Pos band 66 -WB IGM Pos bands 23 & 41 Pos EBV.

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TF
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Do one continuous hour of weight lifting. Do it every other day. Do a full body workout each time.

Burrascano says it will boost the immune system and I proved it to myself twice now in my lifetime.

It works wonderfully. You will get rid of lyme this way, and you will stop getting every illness that comes down the pike. It's almost like a miracle.

See page 31 of Burrascano for the medical explanation of how it works. Here is the start of it:

"Despite antibiotic treatments, patients will NOT return to normal unless they exercise, so therefore an aggressive rehab program is absolutely necessary. It is a fact that a properly executed exercise program can actually go beyond the antibiotics in helping to clear the symptoms and to maintain a remission."

http://www.ilads.org/lyme_disease/B_guidelines_12_17_08.pdf

My doc told me this was absolutely necessary if I was ever to get well, just like Burrascano says. It worked for me.

It is now nearly 7 years since I completed my treatment and I am still symptom free, enjoying my life.

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DanielleMC
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Thank you TF for your response. The thing is, right before I got sick with the flu and strept throat, I had just started seeing this personal trainer to help me strengthen my body's inner core.

I had continuous problems of my back and hips going out of place, so started seeing him to help with that.

I seen him for about 2 weeks, then haven't gona in about 3 weeks now because I keep getting some sort of cold and am too run down too.

Hopefully I'll get better soon and can start that training back up again. Thanks!!

--------------------
7/09- WB IGG Neg all bands -WB IGM Pos bands 23 & 41.
Treated w/ 21 days of Doxy.
10/09- WB IGG Pos bands 41 & 58 -WB IGM Pos bands 23 & 41.
04/11- WB IGG Pos band 66 -WB IGM Pos bands 23 & 41 Pos EBV.

Posts: 121 | From Western PA | Registered: Oct 2009  |  IP: Logged | Report this post to a Moderator
Lymedin2010
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TF has convinced me of the importance of exercise too. �I wanted to hit good workouts months ago, but was worried that my ABX ( IV Rocephin back then) would get floushed out of my sys quicker. �Did not want to waste the time and money on precious Rocephin, and to blame it all on too much activity.

I know my sys and know how much quicker I flush out alcohol and medicines when I workout. �I think I have super functional kidneys and are part of the reason why I remain sick despite treatment. �The ABX get flushed out quicker over time. �

I can actually feel the bacteria moving and becoming more active after weeks on the same ABX. �Each day the time is a little shorter between administration and the bacteria activity (tremors, vibrations, twitching, head and neck pressures).

The first time I got back to working out, after exchanging info with TF, I had a big herx (within 2-3hrs). �I felt tingling in my hands and feet and as if a toxin was coursing my body. �Shortness of breath and feeling like I am dying.

The next time I was expecting the same, but instead of feeling like death i just felt bad the whole day. �Had to lay down and recoup most of the day. �I see how important it is to take a break too, hence the every other day insistence. �Subsequent times, post workout, I was expecting stronger herxes, but not the case thus far.
I also jump into a hot tub for a few minutes afterward.

Although, it is still too early for any concrete conclusion, I have built muscles and feel stronger. �I have the power to handle death like episodes, although I have not had one since starting the workouts again and a new antibiotic.

With months of ABX's I have noticed that the more I move and walk the harder and quicker the herx for me. �It puts me to a grinding halt at times. �More so now that I switched from Doxy to Amoxicillin. �The workouts have not helped with this so far and I think this may be Babs. �I am currently not taking any Bab meds with Amoxi and Probenecid.

I hired a landscaper to mow the lawn and do the leaves. �He has that Lyme look at times, the one I have seen with others and myself who are sick. �I asked him about ticks and he has been bitten a few times throughout the years. �He is VERY active and proclaims not to have any symptoms.

I am now a believer in exercise for healing and plan on taking this to town. �The more I try to analyze this, with the reported experience and hearsay from others, the more I am convinced that this type of movement is an IMPORTANT KEY FACTOR and acts to do the following:

-Acts as the best biofilm buster through the stretching and squeezing of muscles and increased heat generated by movement.

-Many of us report immune suppression. �I have heard of and personally witnessed sluggish White Blood Cell movement via microscopy. �The increased circulation, that comes with activity, increases the chances of bacteria coming across WBC's and being phagocytosed.

-Better ABX penetration in to hard to reach places, at the expense of quicker excretion for those with very good kidney function. �For those with multiple and high dose ABX admin, this will be less of a problem.

-Build muscle mass, endurance and stamina. �More energy to handle the herxes and tougher times.

-Release of endorphins to combat anxiety, stress and overall well being. �

-Better sleep patterns if activity is timed properly, which further increases immunity and stamina.

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DanielleMC
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Lymedin, I couldn't aggree with you more. Exercise is def needed for a healthy lifestyle, no matter if your already healthy or have some kind of disease.

At the time that I started working out, I was taking a break from the abx and felt awesome! I seriously hadn't felt that good in years.. That only lasted about 2 to 3 weeks, then I was zapped with flu etc.. and now am back on abx..

Since then, i have felt like complete dog doo. Don't think I've herxed though, unless I did while sick and didn't notice it. strange, all of it. I hope to go back to working out again, even on the abx. It's so hard.

--------------------
7/09- WB IGG Neg all bands -WB IGM Pos bands 23 & 41.
Treated w/ 21 days of Doxy.
10/09- WB IGG Pos bands 41 & 58 -WB IGM Pos bands 23 & 41.
04/11- WB IGG Pos band 66 -WB IGM Pos bands 23 & 41 Pos EBV.

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lymeboy
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exercise definitely, and there is a product called Echinacea premium, by standard process. It's pretty expensive, but HOLY COW did it give me a major boost! You won't even believe how well this stuff works. Cheap echinacea is not effective at all, you have to get the good stuff, and I promise you it will help. I did a round, taking 6 pills/ day, finished it in 12 days, and definitely cleared a few hurdles with it. There are a lot of things you can do for your immune system, but I will definitely be getting more of this product in the future.
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jackie81
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i just wanted to let you know that getting colds and other illnesses while having lyme is actually a sign that your immune system is working.

Here is some info from Wikipedia that I found about colds

Taken from Wikipedia--

People with stronger immune systems are more

likely to develop symptomatic colds.[23] This is

because the symptoms of a cold are directly due to the strong immune response to the virus, not

the virus itself.

People with less active immune systems�about a

quarter of adults�get infected with the viruses,

but the relatively weak immunological response

produces no significant or identifiable symptoms.

These people are asymptomatic carriers and can

unknowingly spread the virus to other people.

Because strong immune responses cause cold

symptoms, "boosting" the immune system increases cold symptoms".

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DanielleMC
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I will look into that lymeboy, thank you.

And Jackie..if this is true, then maybe I am in good shape, although it sucks. I think I am getting YET ANOTHER cold. Been sniffling and sneezing all day. I have literally been sick since Thanksgiving and it is taking a toll on my mentally..

All I want for Christmas is to be healthy....

--------------------
7/09- WB IGG Neg all bands -WB IGM Pos bands 23 & 41.
Treated w/ 21 days of Doxy.
10/09- WB IGG Pos bands 41 & 58 -WB IGM Pos bands 23 & 41.
04/11- WB IGG Pos band 66 -WB IGM Pos bands 23 & 41 Pos EBV.

Posts: 121 | From Western PA | Registered: Oct 2009  |  IP: Logged | Report this post to a Moderator
Brussels
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I believe vaccines suppress the immune system. I regret having giving my daughter all vaccinations as a baby. She got allergies to many foods since she as 10 months old, and started reacting with autoimmune symptoms very early...

The more I read, the more I see that vaccinated kids have messed immune systems, more asthma, more eczema, than unvaccinated ones.

the moment she was bitten by a first tick by the age of 1, she fell very sick very fast. It is like she had no immune system, or as though it was broken. She has only been fed with organic food, almost no sugar, no sodas, no junk food...

And as for lyme, of coures it is immune suppressive. That is the main thing it does, in my opinion, the worse thing it does, I mean, as it wekens our immune system and our body then allows many other pathogens to thrive. Not only lyme coinfections, but many other infections. And parasites.

As for catching colds, I also did not catch colds for very long, specially during active lyme. Now I do catch colds, now that my lyme is dormant. But I don't know if this is for everyone as I keep reading different things here in LN...

In any case, I would avoid vaccines if I am concerned about weak immune system. My opinion.

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In19944
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OMG..how do u work out? I know I need to. I have trouble w/ getting up to go to bathroom or making food. I'm 30..Guess I need more intestinal fortitude. [Smile]
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Lymetoo
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quote:
Originally posted by Brussels:

In any case, I would avoid vaccines if I am concerned about weak immune system. My opinion.

-
Amen to that!

--------------------
--Lymetutu--
Opinions, not medical advice!

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Lala
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TF wow, thanx for your comment. Do you still do weight lifting today?
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Marnie
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Google: IL-2 Borrelia burgdorferi

That is interleukin 2.

Find it on Wikipedia...what it is and what it does.

We are attacking ourselves along with Bb

Bb is too friggin like us (protein wise). We pave the way for it to invade.

BUT...Bb can alter itself to adjust.

Just my opinion.

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Lymedin2010
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In19944, TF has mentioned that she couldn't even hold her hands up for 30s and had to slowly progress. At first only ten minutes and then slowly build up. Seems slow while you go is a theme for many factors associated with Lyme.

Don't let yourself get worst and slip further, I would say start now. I decided to start now as well, in order not to loose the ability to move and to hopefully make progress.

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TF
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Some time after getting rid of lyme (almost 7 years ago now), I stopped weight lifting.

Then, in Sept 2010, a doctor gave me a steroid nasal spray to use daily for allergy symptoms I was experiencing (an unbelievable headache 24/7).

I didn't know it was a steroid, so I used it daily for 3 months. After that, I began to get every illness that came down the pike. I was sick from Thanksgiving until early February with various illnesses. As soon as I got rid of one illness, I got another. Never had anything like it!

That's when I looked into the nasal spray and found out it weakens the immune system. (It was Nasonex. Flonase does the same thing.) I will never use either of these products again and suggest nobody else do so either.

So, in Feb. 2011, I went back to weight lifting to boost my immune system and get rid of the effects of this steroid on my body. I am doing it to increase my bone density also.

It didn't take any time at all and I was no longer experiencing any sickness of any kind. This has continued until the present, except that this fall I got my usual allergy headache.

So, I have now been back to weight lifting for almost one year. In about a week, I will have my bone scan and I am hoping to see a big jump in my bone density thanks to this. (I have osteopenia.)

That is why I say that I proved to myself twice that weight lifting boosts the immune system. It was so crystal clear this year when I went back to it. Who would ever think of this as an illness preventative?

I do one continuous hour of weight lifting (full body workout with weight machines) twice per week.

At first, I would have to take a nap after the workout, just like Burrascano says in his Guidelines. I knew I was doing better when I no longer needed the nap.

I am very happy with how this is keeping me in shape, so I see at least 3 major benefits to me by doing the weightlifting. I had enough arm strength to scrub down the entire exterior of our house (vinyl siding) this fall. I would never have been able to do that previously because my arms have always been weak my entire life. Now, I have muscles.

I am thinking I will try to continue doing it for the rest of my life. I like it, and hubby and I have made friends at the weight room now also.

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susank
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Jackie - interesting. Thanks for that info.
I wonder how that would tie in to my thread in regards to the immune system? Virus vs bacteria though? FWIW - I don't get colds - knock wood...........

--------------------
Pos.Bb culture 2012
Labcorp - no bands ever
Igenex - Neg. 4 times
With overall bands:
IGM 18,28,41,66 IND: 23-25,34,39
IGG 41,58 IND: 39
Bart H IGG 40

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gmb
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Lymein 2010,

What types of excercise could you do with the PICC line in your arm? I am impressed with your drive while on IV Rocephin.

I just got my PICC inserted on Monday and did my first Rocephin home infusion last night, so I'm a bit causious of extra activity until I settle into a routine.

I still work four days a week, and up to now have stayed active with yard work mowing lawns and rakings leaves.

Now that winter is here I know I need to squeeze in some exercise between 6pm and 8pm along with infusion time, dinner, and O'Reilly. I just hope we have a mild winter with little snow to shovel.

gmb

[ 12-21-2011, 08:05 AM: Message edited by: gmb ]

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twicebitten
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OP-I know what you mean about getting infections all the time. For awhile my PCP doc was amazed at how often my dd and I would be in for bacterial infections of one kind or another. She had sinus or strep..I had to get a 3rd abx several times, for ear, stomach, or whatever infections. He gave me a rocephin shot a couple times.

He said he couldn't understand why we were getting them while taking 2 abx each, both at high doses.

I kind of have a theory, much as I do with pain meds, but I'm no medical pro.
I think the meds we take everyday are focused on the lyme and co and when something else invades, there is no more left to fend that off.
Like with my morphine. It is working so hard trying to keep my nerve pain down that if I have some other pain issue, it's not effective at all.

Of course some have said that the morphine isn't working at all anymore anyway due to amount of time I've been on the same dose. But, I can tell a big difference if I don't take it or miss my dose within 6 hours.

Just wanted to let you know that others share in this with you.

Oh and my dd works out lots, as she has a tough gym teacher at school..but still gets ill.

--------------------
One day at a time

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dal123
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Borrelia suppresses IL-2, Guna makes interleukin homeopathics for balancing, would like to find a good lab test for all interleukins & rebalance, Asparagus promotes IL-2 production,
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Jason21
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Short answer - YES! Blood work showed all of my immunoglobulins were very low before I started LD treatment.

I used to get sick and get a sinus infection at least 4-5 times per year before LD treatment. Now, I get a cold maybe once or twice per year.

--------------------
Igenex WB IgM 28+, 31IND, 34IND, 41+
WB IgG 30+, 31IND,39 IND, 41++++, 58+, 83-93IND
CD57 = 56
Prob infected since 2000
Doxy, Zith, Biaxin, Flagyl, Levaquin, Tindamax, Cipro
Highly Recommended: Trigger Point Therapy Workbook by Clair Davies

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