Topic: When you test posiitve but later test negative, does this mean you are cured. . . ,
nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
Or are your levels just lower and not showing up?
This is for babesia duncani and ehrlichia. I was a weak positive in Nov of 2010 and then negative in Oct of 2011. At the time of the second test I was feeling pretty well but not symptom free. Then I got much sicker.
I found out I may have an inability to detox the drugs so I have more side effects than most people. The medication causes side effects that are the same as the infections.
I have no memory left and my ability to figure things out is greatly compromised so I am easily confused. Is it common to have a positive test followed by a negative test and not be well? I know the opposite is true.
I am taking a short break to see how things go.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Sadly, repeat tests for these coinfections cannot rule out possibility of their continued presence.
Both infections can be chronic and the testing can't always detect it, it can be under the radar.
I recall one of the LLMDs at the recent ILADS conference (during a web stream) and that LLMD said that she had patients for which the tests did not pick up on the chronic state. She looked more at specific symptoms.
If not her, I know I've heard another doctor say the same for ehrlichia.
You might see what ILADS' authors/presenters have to say about it.
Of course, I hope that these are both in the past for you but your LLMD is the best source of information. I know you just went to someone new so have no LLMD who really has a sense of what your symptoms have been over time.
Hope the short break finds you feeling good. I figure you have to win one of these days. May as well be now, eh? -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Looking over my notes from that ILADS conference, I can't find the exact detail I wanted but have found that Dr. H (east) prefers LabCorp for babesia testing.
He also now considers babesia parasites. But the web stream stopped as he started talking about that.
And he's found the tincture Cryptolepis to be very good for those who just could not get past babesia.
You might also scour Scott Forsgren's Better Health Guy site and the PHA (Public Health Alert) newsletter. Scott has a brilliant working memory of all this and may well have written about it in one of those two places. Or cross search the term with his name. -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
Thanks Keebler. I am taking cryptolepsis now along with some other tinctures, while I am taking a little time off the malarone to see what happens. I also just got my special vitamins for the MTHFR and hopefully that will help.
The new doctor suggested the MTHFR might be what is causing the problem and I would not need any more drugs. Wouldn't that be nice? But I don't count on it.
I will look for more infor on the Better Health Guy. My brain is so saturated with muck, it is hard to digest much these days. I do hope the vitamins help as inability to retain information is one of the symptoms.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic