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I think most of you are aware that the reason there's no research being done for a Lyme cure and the reason that we can't get enough treatment for chronic Lyme is because of the 2006 IDSA guidelines that say that chronic Lyme doesn't exist.
Those guidelines were supposed to lose their power at the end of last year. The government agency that gives credibility to guidelines by posting them on their website, the National Guidelines Clearinghouse, requires that they be reviewed and updated every 5 years to keep the government backing.
SO knowing the IDSA, whaddya think they did? They claimed (lied) that they had reviewed and updated them. That way they didn't have to worry their pretty little heads about making the 25 changes that had been recommended. They also didn't have to include the two new studies that give evidence of chronic Lyme.
And the National Guidelines Clearinghouse blindly accepted their claim. That is, until Lorraine Johnson of CALDA found out about this and complained, and got legislators to complain.
THe NGC has finally agreed to "look into the matter."
Now we have to really do OUR part to let NGC know that we are watching, that the public will hold them responsible for making the IDSA update their guidelines.
So please sign the petition at www.lymedisease.org and then write to everyone you know, with and without Lyme disease, and ask them to sign it.
We can't go five more years under these dishonest, sickening guidelines. Thanks, Ellen
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Posts: 819 | From New York, NY | Registered: Oct 2001
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