posted
We flew to the DC area last week to see an LLMD. LOVED him, by the way. He found symptoms that my daughter never thought to mention, and no other doctor bothered to notice. His office just informed us that my daughter's blood work was positive for lyme, babesia and rocky mtn spotted fever. They said, however, that the rocky mtn could be a false positive. At last, a reason for my daughter's pain that makes sense!
Haven't actually had our follow-up with the doc yet. But I'm trying to figure out how to go about getting treatment. I really want him to provide her care, but he said that we may not be able to get his prescriptions filled in FL. And I've already had our hospital refuse to do the MRI that he ordered because he's out of state.
Anyone else dealing with getting treatment from a doc that is several states away?
Posts: 48 | From Orlando, FL | Registered: Apr 2014
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posted
I'm seeing a doc in DC and have had no problem getting tests, labs and prescriptions in my state. Does Florida have different laws in play?
Posts: 11 | From MN | Registered: Jul 2012
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96227 | From Texas | Registered: Feb 2001
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cottonbrain
Frequent Contributor (1K+ posts)
Member # 13769
posted
You could try to get a sympathetic general practitioner in your area who might order the labs and diagnostics for you -- some but not all are willing to help--
the docs at big clinics have checklists they have to stick to, so your best luck is a small private practice.
Posts: 1173 | From USA | Registered: Nov 2007
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cottonbrain
Frequent Contributor (1K+ posts)
Member # 13769
posted
is there a mail order pharmacy you could use?
Posts: 1173 | From USA | Registered: Nov 2007
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posted
I took my daughter to her primary care doc today. He ordered the MRI for us. He also made a referral to a pediatric cardiologist because our LLMD noted an arrythmia. He also said he was not going to mention Lyme anywhere in her record for as long as he thought he could avoid it.
He's a good man and a very intelligent man. He also holds other positions very high up at the hospital system here (which also owns our insurance company). I'm hoping that he'll be willing to order for us whatever our LLMD recommends... and fight for us to get it covered. I'm thinking he might.
Additionally, my daughter's physical therapist is very close friends with the hospital system's chief of infectious disease. She said she's going to contact him to try to elicit his help. The physical therapist is feeling a bit guilty for not catching my daughter's peripheral neuropathy (that the LLMD noted right away but nobody else had caught), and that might play to our advantage.
Posts: 48 | From Orlando, FL | Registered: Apr 2014
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poppy
Frequent Contributor (1K+ posts)
Member # 5355
posted
I am worried about getting the ID involved in a lyme case. Doubting it will succeed, and may hurt. Might discourage the GP from helping and get him in hot water too. Why don't you sound out the GP before the physical therapist says anything to involve the ID. See if he thinks this will be useful. I am betting not.
The big clue here is that the GP does not want to mention lyme on her records. That is a red flag to me. Also, while we are being paranoid, thinking it might be a good idea to list only your state as an identifier, not city. There is probably not a lot of hospitals in that area, and someone could figure this out.
Posts: 2888 | From USA | Registered: Mar 2004
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
I agree with Poppy about getting an ID doctor involved. They will pronounce your daughter cured in two weeks of abx and then after that any further treatment is negligence. That is the way they work - no exceptions.
It is a very good idea to order the drugs from online pharmacies.
You are so lucky to have a sympathetic GP. Do your best to keep him under the radar. Tell the physical therapist not to contact the ID doctor. Just keep this between the two of you.
I hope your daughter improves quickly. You did the right thing taking her to DC to see a good LLMD. You are ahead of the game.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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